hi Heather

it is a bit mind blowing when you join this club,lots of information to take in,it,s a learning curve,try not to worry ,you will in time learn all the jargon,and will become an expert on your husbands condition.

my advise is get in touch with Ellen she can put you in touch with someone who you can talk on the phone so you do not…[Read more]

Hi David

And a Happy New Year to you, and a Happy 70th Birthday.
Never suffered leg cramps that often so never looked into it at all.

Hope the post from Michele works for you

Tom Onwards and Upwards x

Morning Megan and phil

I tell you that stand is a Buger to get rid off ha ha, but it wont be long now before you see the back of it.
Re the bleeding after brushing teeth? well I hate to admite it but when I was having mt SCT when moth and gums got sore I never brushed but used Plenty of mouth wash a bottle used to only last me two days at a…[Read more]

Hi Heather and John

Sorry you had to join us but a warm welcome to you both.
I cant help you out on this as I have just had CDT then SCT in 2009.

Am sure some one will be on that has or is having that treatment.

Where is John getting his treatment?

Good Luck in the road to remission.

Tom Onwards and Upwards xx

Hi Sue

The posts above are correct.
A Hospice is one of the best places to go to have the pain sorted out faster than a GP or Hospital can do it.

I have talked to my young bride Elaine and said that I dont want her to have to care for me 24/7 am not fussed about going into a hospice for her to get a break and for Last stages I dont want to…[Read more]

Hi Chris

Good Luck in your new treatment I hope its fast and puts you and keeps you in remission for many a year 😀

Re the hiccups ? well My steward at our local drinking hostelry gets rid of everybody's and she has never failed.

get a glass of water (we do it with beer lol) fill your mouth DONT SWALLOW YET, put your fingers in your…[Read more]

Hi. Chris

Just read you. Post with great interest,my husband is not in your position concerning SCT second time round so unable to comment,just storing info for future ,as we all know MM will find you.

I can say I think Velcade is a not as harsh as CTD,but y ou do spend more time at the hospital ,I would like to see Velcade given as a…[Read more]

Hi Sue
I just cannot believe this is happening to you.i do not think it is different we're every you live.

You should have a package sought end by now it can be different depending on your needs.were is you local surgery,in this get in touch with the district nurse,she should be able to sit down with both of you,and decide what you…[Read more]

Hi Sal
Your welcome, sorry to hear Dad had two heart attacks, am sure they will find treatment that will work with your Dads heart problem.many have said that RT helps ease the pain.

Tom Onwards and Upwards xx

Hi Trish

Your welcome and you need two more to catch up with my young bride and I. Who have six from age 9 years down to Sophie who is nearly 8 months young.

Love Granddad Tom

Hi Charlie

Am sure it will be a none impact one, I do walking and A bit of leisure cycling, but not too much am afraid so am not the best to advise, am sure Some one might have been told what's best I would love to know myself .

Tom Onwards and Upwards .

Hi Sue

I would agree with |Tin,I know you feel how an earth are you going to cope,but you will find that inner strength.

I have 2 friends who have both lost there husbands last year,one to Myeloma and one to lung Cancer,both stayed at home and both had different deaths.
Both the wives coped and have no regrets,I wish I could say I was there…[Read more]

Hi Trish

Yes it is wonderful that first holiday,after SCT,as you say you just could not believe this would be possible after Myeloma,so just go out there and grab a slice of life.

we are just back from NZ,blood test Zometa then consultant,and with a little bit of luck off to France in our motor home,then home for 1 st march as my daughter…[Read more]

Hi Susannah,

I have followed Michael's progress through your posts on various threads and I hope that by now they have found a pain management regime to give him complete freedom from all but the slightest of aches and pains… he deserves that with bells on. 🙂

What is the state of his MM? Are the hospital still measuring?

Lastly, how…[Read more]

Hi Sal,

I hope that the medics get your Dad's (Name?) Kidney function up and running PDQ (I am aware of his age but Kidneys usually respond well).

Regarding the crushed vertebrae, radiotherapy can bring about almost magical results as reported by several people on the board. I had two crushed vertebrae, with one being forced against my…[Read more]

Hi Scott,

I too will be enduring the joys of Bendamustine on Monday next… I shall think of you as they struggle to find a vein. 😉

We have a free drinks and sandwiches trolley which makes its rounds of the Day Case Unit between 12 and 2 PM – so that, literally, caters for the eating problem. 😎 The same trolley glides around dispensing…[Read more]

Hi Rosie,

[quote][i]I have to say that the main side effect for me was how tired and weary it made me feel. A bit of nausea but nothing that the tabs couldn't sort.

No sickness but I did have to reduce the dose of Thalidomide as that did cause me more face/lips tingling and 'clumsy fingers'. I had the same during CDT so I don't associate…[Read more]

Hi Badger, Eva, Vicki, Tom, Elaine, & Eve.

Thank you for your messages of support, they are truly appreciated. 😀

I will keep you in touch as the treatment commences, especially regarding the processes, procedures and side-effects… they may come in handy in the future, although I hope, truly and deeply that that need is a long, long way…[Read more]

Hi Eve
Yes thats correct you cant smell it lol. ye reflection is hard even for us in remission? but hey ho.

The site is great for old and new members as out treatment changes as some one will have been through it before.

Pleased you like the Onesie my youngest Son bought it for me as a christmas Pressie 😀 and yes he likes a laugh 8-)…[Read more]

Hi Peter and Trish

Great to read you all had a great time I bet it was worth that long flight 😎 and trust me May will be here before you know it enjoy the twins.

Love Tom "Onwards and Upwards" xxx