tom replied to the topic Here for dad in the forum Newcomers 12 years, 7 months ago
Hi Sal
Am sorry your Dad has been Diagnosed with MM. your Dad has done well getting it found out as soon as he did.
What Hospital is your Dad getting his treatment from (some on here might be in same hospital)
What treatment is your Dad on or going on?
Good Luck to your Dad in his treatment and stay strong for your Mum also.
Love…[Read more]
tom replied to the topic So Alone in the forum End of Life and Grief 12 years, 7 months ago
Sue
You are correct this site is a godsend for us all, Patient and Carer.
The One I would advice anyone to phone would be 999 they would be my first call.
Honest Sue please ask anything you feel you need to know more about I know it wont be easy for you but am sure if you feel its important then it is.
Stay Strong
Love and Hugs Tom xxxx
eve replied to the topic Bendamustine C1. in the forum Treatment 12 years, 7 months ago
Hello Dai
It is nice to hear you are doing well,with this new treatment,I just want to wish you well and to let you know although Slim has moved to remission,you are never very far away from our thoughts,I know the last few months have been hard for you, I wish you a good 2013with not many hiccups. Love Eve and Slim
eve replied to the topic A Sunny Happy New Year in the forum Off topic 12 years, 7 months ago
Hi Tom,
With baited breath and anticipation,now I know why you drink vodka,you cannot smell it,( only joking ),it is the reflection time that hurts,that,s why it is so nice that Tina can reflect and enjoy the memory.
This is what is good about this site,people understand what you are going through plus the feelings which do come to the…[Read more]
tom replied to the topic Phil's SCT Journey in the forum Treatment 12 years, 7 months ago
Hi Megan and Phil
Still doing good as far as i can see 😀 , RE the hair thing well I got the Nurse to shave it in Hospital and when I came home I used my Leccie Razor and took it to the bone :-S and kept it like that till it started to grow back, and it was bloomin cold but a good hat sorted that out.
Megan you do right in resting as you…[Read more]
tom replied to the topic A Sunny Happy New Year in the forum Off topic 12 years, 7 months ago
Hi Eve
And a Happy New Year to you and Slim 😀
I know what you mean when you say you look back each new year, I also do that but I also look forward with baited breath and anticipation 😎 but yet again I still worry during every new pain cough/cold and or ache its normal (or so am told) I also try and shove the MM to the back of my brain…[Read more]
eve replied to the topic A Sunny Happy New Year in the forum Off topic 12 years, 7 months ago
Hi Tina and Tom,
Happy New year to you both,this New Year seemed very strange to me,as We were going backwards in time on our journey home from NZ,and a;ways at new year your mind goes back to the last year,and you cannot help but ponder and reflect about the good and bad of the year,and wonder what the future year will hold.
the year 2011…[Read more]
tom replied to the topic Itchy Rash Post SCT in the forum Side-effects 12 years, 7 months ago
Hi Suzy
I had an itchy rash after my SCT but it soon settled, I have had exma for many a year in the winter months and as I had SCT in December I was on top of it straight away.
Hope hubby is soon sorted.
Love Tom Onwards and Upwards xxx
tom replied to the topic So Alone in the forum End of Life and Grief 12 years, 7 months ago
Hi sue
Am pleased Xmas was ok for you, this time of year is difficult for us all and I send you hugs during those dark moments (( hugs )) am not sure why you were both told how long?? As it doesn't sound like it has helped.
Stay strong.
Love Tom xx
tom replied to the topic A Sunny Happy New Year in the forum Off topic 12 years, 7 months ago
Hi Tina
I am pleased you had a good time at your Brothers wedding, it's brave picking this time of year for the wedding.
It's a beautiful place to live/visit. But Ice cream. Brrrrr.
Keep having god thoughts Tina.
And my best wishes for you this year.
Love Tom xxxxx
tom replied to the topic Bendamustine C1. in the forum Treatment 12 years, 7 months ago
Hi Dai
I hope you have a good run on this Dai, and Rosie seems to be doing ok on it 😀 .
Like all treatment it's a listen to your body and you Dai are a good listener 😎
Good luck with it Dai
Happy new year to you and Janet.
Tom Onwards and Upwards. X
BADGER replied to the topic Bendamustine C1. in the forum Treatment 12 years, 7 months ago
Well Dia
touching wood and fingers crossed this is the one, you are a surviver i am sure you will get through this you are an inspiration to us all
Big hugs Jo xx
DaiCro started the topic Bendamustine C1.. in the forum Treatment 12 years, 7 months ago
Bendamustine… Cycle 1…
Has started. Consult at 10am… bloods first as usual, followed by the pre treatment consultation… which was running an hour late. The treatment in the Day Case Unit was booked in for 11.30 but the news filtered down that there were problems with the airflow in the pharmacy and that the pharmacy would be closed…[Read more]
tom replied to the topic Phil's SCT Journey in the forum Treatment 12 years, 7 months ago
Hi Megan and Phil
Am plased they are sorting out the infection once that has gone its a move closer to home.
Dont worry about the daily postings mit brings back things I forgot in 2009/10 ha ha, this post will help others comming up to or just starting the road to remission, if you can please keep it going.
Love and Hugs to you both, and…[Read more]
tom replied to the topic So Alone in the forum End of Life and Grief 12 years, 7 months ago
Hi Mary
Am sure it was/is tough for you at anytijme let alone this time of the year, Hugs sent to you ((HUGS))
My Link with MM is I was told in 2009 that I had it went through CTD them stemcell transplant in Dec 2009 and now am drug free, Thanks for asking.
I hope this year you find time to remember the God times and am sure you both had…[Read more]
kaychappers replied to the topic Phil's SCT Journey in the forum Treatment 12 years, 7 months ago
Hi Megan and Phil. I was on Bodley Scott Ward but started on A4 absolutely no difference so Phil is not missing out on anything. Infact the ward in A4 is nicer as on BS ward you are lined up in cubicles but the isolation rooms are the same. So pleased he no longer has the IV once they put the stem cells back in me they came in 11 days later and…[Read more]
tom replied to the topic hi from another newbie!!! in the forum General 12 years, 7 months ago
Hi Steve
Just nipped in to see how you are ? Hope you are copping well and not too many side effects.
Let us know how you are doing 🙂
Tom "Onwards and Upwards"
tom replied to the topic Phil's SCT Journey in the forum Treatment 12 years, 7 months ago
Hi Megan and Phil
My you have done well Phil I never let my stand leave my room Lol, I was still on anti sick tabs (was for a couple of months when got home to be fair)
I was out on my 16th day and even threw up on that day (but dint tell the nurse ((Nawty Tom)) as she might have kept me in )
Keep it going and it will work dont forget…[Read more]
tom replied to the topic Second anniversary visit to haematology in the forum General 12 years, 7 months ago
Hi Helen not to put a damper on your Rechargeable Battery's but my energy levels vary ?? some days I could dig holes for England others I would struggle to hold the shovel let alone use it :-S BUT I have learnt to do a little and often still rest when both my body or my young bride tells me 😀 as she knows me better than I think I know…[Read more]
tom replied to the topic Bendamustine 2nd Cycle in the forum Treatment 12 years, 7 months ago
Hi Keith I try M8 I try and Thanks. But am sure I will put up a good fight with the demon Drink dont you lol. Have a good un
Dai All the best for your start on Monday, fingers crossed it work well for you 🙂
Have a good you all
Tom "Onwards and Upwards" x