Hi Maria,

Welcome to the board, it is as supportive and friendly a place as you will ever want to find… but I'm sorry you had to find it in the first place. 😀

The beauty of this board is that there will be someone a few days or a few weeks ahead of you and there will be a line of people stretching all the way down the gamut of…[Read more]

All good news Etta

hope it stays that way have a good holiday christmas and new year
Love Jo x

Hi Maria

welcome to the forum not a place you would have wanted to join its always a big shock to all of us the question is why me nobody seems to know that sort of makes it worse it seems most of us here were fairly fit and active
you will have some knowledge about the illness as you have worked in the enviroment but I dont suppose it…[Read more]

Hi Sarah and Henry

Well at long last, I hope they soon find out what Anti Biotic to use on Henry and get him well fast.

Its a bugger when you have to fight to get Proper treatment at a hospital ?

Love to you Both

Tom "Onwards and upwards" xxx

Hi Etta

With the 100 day I assume came a BMB (bless)well done on your Bloods and you know thos sniffles get where water cant ha ha.

Well Done and stay Well

Love Tom Onwards and upwards" xxx

Good luck with your fight too Scott.

I hope the Bendamustine shows good results and puts you back on your feet. I too suffered with Velcade… It made weak and groggy and exacerbated the PN I'd got from my CDT. I got into full remission with Velcade, the medics were all pleased but it relapsed within 4 weeks. That seems to have been my MO…[Read more]

Hi Colin & Vicki

Yes Dai and his post had me shedding a tear or two, dai you went same as I but you put it so Calm and clear you are a great Man with words al give you that 🙂
Right tear over 😀

Back to you two V and C and yes you both deserve the VC after what you both have been through, but I hope I aint tempting fate But I think…[Read more]

hI sCOTT

just completed the last of four Velcade injections got a week off not been too bad on it yet but not had a result yet to see if its working how are you on the bendamustamine manageing ok?
Regards Jo:-)

Keep going Andy
my docs have kept me going for the last 4 years no SCT on the velcade trail now just keep hoping for any new treatments I have dodgy kidneys like Scott so as tom sort of says onwards and onwards! Chin Up
lOVE jO X;-)

Hi Andy

this is such good news I worry about all my cyber friends and how they get on keep up the good work hopefully you are on the right track now:-)
Love Jo x

Hi Andy

Am sorry to read this Andy as you know i seen it on Face Book, and am Like Dai and others you just might get that Donor pop along tomorrow 😀 now thats great thought 😎

Kepp us posted Andy and good Luck My Friend

Tom "Onwards and upwards" x

Hi Maria

First the welcome, welcome to your forum sit down and be comfy as am sure you will use it for many years to come 😀

What treatment are you having and do you know what they have planned for the road to your remission.
Where are you being treated as we might have the odd one (other than me that is Lol) that might be at same…[Read more]

Hi Sarah and Henry

Am sorry that Henry has another infection but I say its the same one that has not been cleared correctly try not and get upset but pleased do get angry we are not talking a "Normal Run of the Mill Body" here we are talking about a man that has got MM and if that means ruffling a few feathers then lets start the…[Read more]

Hi Colin & Vicki ,

As Ali so rightly put it Whoop, Whoop…. and do you know what? Whizzee!

When Janet brought me home she went into mode and treated me the same as any other time that I had been 'inside'. She put me in my chair, made sure I was comfortable, then went out to get my bag and bits, switching on the kettle on her way out. :-)…[Read more]

Hi Andy,

I think the technical term for your news is 'bummer'. To get to a point where everything looks as is it is in place, only to be faced with a 7,000,000 to 1 chance must be devastating. Your donor (or possible donor) has 2 points that make their possible contribution invalid, or dangerous, begs the question: 'What are the qualifying…[Read more]

[quote]I am in full agreement that a positive attitude & outlook is important & extremely beneficial and this is something that comes with time following a diagnosis.

However, with regard to feeling down and utterly depressed, which can be as a result of many factors for each individual, I disagree entirely that it is a matter of "choice".…[Read more]

Hi Helen

Frozen shoulder the only frozen shoulder i get is from the young bride Elaine if i want to leave the pub early Ha ha, good luck on the results Helen

Love Tom

PS Ps Vicki and Colin

As and when Colin decides to go for that walk let me say the same as Helen the walk no matter how short and how slow it will take it out of you…[Read more]

Hi Vicki and Colin

Well I am thinking Colin is still home? and as for getting Home when I got home 16th December 2009 around about 6.30 pm (not that i remember it much lol) but I was worried and scared? (yep a hairy as Docker) I knew I was OK (even though i was sick before I came home) but it was Just missing the Nurse the consultant and the…[Read more]

hello David
so glad your anniversery party went well very best wishes to you and your wife:-)
Love Jo x