aww Gill

Am sending you HUGS lots of them((((((()))))))).

I bet its hard to cope but am sure you know you have to, I cant tell you it will get better as i haven't been through it, but I show/read out these posts to Elaine (i think am getting her ready sad in it? )

Much Love and many thoughts from one teary eyed Tom xxx

Love Tom xxx

Hi Sue and Michael

Am sure that at anytime in anyones illness you are never wrong in asking Q's it may seem silly to you but if you are thinking it then its imprtant to you, so i would say ask away and get answers it might not alter the outcome ?? but trying and knowing is better so ask away
Thinking of you both

Love Tom xxx

Hi Vicky and Wide awake Colin 😀

Its Going Good you two (even though it dunt feel it or look it) the Dr wouldn't say "Home at week end" if he thought it was not a Doable 😉 If I remember correcltly I was still Ill a day or two before i was shipped off home and was even sick in toilet the day I came home (i dint tell them) but took anti…[Read more]

Hi Carol
Aww am sorry you have had that MM kick back in 🙁 but hey am sure your Dr will get something to throw it to the back of your mind pretty soon 😎
Stay Strong.

Love Tom "Onwards and Upwards" xxx

Hi Chris and Lena

Its working well and it wont be long stick with it and you will soon be home, but trust me you are still going to need to be looked after for a month or so when you are home but the wait will be worth it 🙂

Keep Well

Tom "Onwards and Upwards" x

Hi Keith

Well wot a to do as the saying goes 🙁

Am sure you kn ow I say am a "If My Dr is smiling am happy" well that is because I trust my Dr and I know if I need to know anything its him that I see, and if its My Cancer Nurse Helen I see and need to know more My Dr is in the next roomits a case of waiting till he has done with who is in…[Read more]

Hi Eric (am pleased that OUR Eve Misses nowt Lol)
And am with Eve, stick with the trials I am on nowt at the moment and still in remission 😀 and mine was just CDT then SCT all in 2009.

Tom "Onwards and Upwards" x

Hi Phil

Think its all been said Nowt normal in this dept so not one shoe fits all, I never ever bothered with my PP nuets or anything els i just wanted to see My Dr with a smile on his Face and to be fair that worked and still is for me 😎

Keep well and stay Fit

Tom "Onwards and Upwards"

Hello Stewart

Well a very bonny welcome,and congratulations on your new baby:-)

Well MM is the last thing anyone needs or wants,but saying that on here you are going to see and hear lots of people who live with it for many years,so you will learn to cope with it.

First may I say forget that diet,you will need all your body to sustain the…[Read more]

Hi Keith

You sound very down,and who can blame you,I would agree they know the results,the meeting will be to decide the next treatment,in some ways they are trying not to leave you in a state of not knowing,but they forget,you become an expert on yourself.My advice is look on here at all the trials taking place in you area or not,and go armed…[Read more]

Hi Chris
Sounds if things are going well,they have taken your tube out,well well they must think you will not need any extra,s to help you improve like platelets.So that must be good,when you start feeling better you tend to want it to constant,well everybody is going to tell you it will take time,its something you cannot rush,if you stop and…[Read more]

Hi Carol
I am so sorry Carol,cannot help with PAD,Andy is the one to help you as he had PAD but it did not work for him:-(

Your right,you do not have to put on a brave face here,we do understand,although Slims in remission,the brain says when do we have to start going through this again,never said at home but the thought is there,then I give…[Read more]

HI Eric
Hello and welcome.You must be wondering why you have not had any reply,s???

Well if i may explain,because you went into an old thread,although it shows a posting it has come on screen in the middle of an old posting.The best thing to do is ,log in go to the first section,which you did,then scroll down to start discussion ,then you can…[Read more]

Hi & Thanks so much Helen

As you can probably tell by the time of my reply I am on DEX and wide awake and twitchy!
Keep well you too.
Love Carol xxxxxx

Hi Sue
May be the answers lie in what you did not hear!!!!!

When Slim was being taken to ITU a doctor in front of me said to him,you are being taken to ITU "I cannot promise you,you won,t die",he did nor ask and he cannot remember:-P.

Sue you need to speak to someone may be a consultant or your own doctor,you need to ask for a second…[Read more]

Hi Joe
Many thanks and lets keep thinking that yours is going to go on for years to come so relax and enjoy!!
I have heard from a lady in America who was diagnosed thirteen years ago and is still going strong, so it does happen.
Take good care of yourself
Love Carol xxxxxx

Hi Keith
Many thanks for the prompt reply – especially when you are going through the mill at present and over past years.
The general information is great but I suppose just hearing from someone in a similar position helps me to treat the situation in a calmer fashion too!
I'm very reticent about another transplant as mine didn't go too well…[Read more]

hi Kieth

good luck with the BMB i hate them i suppose its parr for the course but i hope its good news for you and they can sort you out to get a bit of normal life I have just started Velcade had 3yrs 6mths remission from CDT hope i get a good one from velcade
love Jo x

Hello Carol

sorry about the relapse I havnt had an SCT but have just started treatment after a 3year 6month remission its a bit of a b***mmer for us we know it will happen but always hope it wont I have started VCT had two injections already with cyclo and the dreaded DEX but only 20mgs two days running last time i was on 40mgs four days…[Read more]