Hi Vicki & Colin

Its Good Colin is out of bed for a time even if he is asleep in chair, I bet he is a great Host before and will be again after SCT
Dai is correct but as for me I went out amongst it all club and walks (short ones)

Hope your counts are good Tomorrow Colin and get you off home where the hard work starts 🙂

Love Tom…[Read more]

Hi Pat

hope you are feeling ok today had a very interesting time at the MM day in London had major speakers from the medical world there was a lot of talk about new treatments which was encourageing we paid £20 for the day there was a nice lunch and really the chance to talk to others in the same boat some people have had MM for twenty years…[Read more]

Hi Vicki & Colin,

It's good to hear you are out of the bed and sleeping in the chair Colin… hopefully it will be your own chair and your own bed within the next few days or so. 😎 😀 🙂

You need to draw up an action plan for when you get home… who is allowed to visit, where you want to make your base for daytime hours… (I had/have…[Read more]

Hi Phil

This disease has no normality,so one persons story,has no baring on your,s,my husbands neuts and platelets took a long time to become stable.The thing they look for is,although the neuts dip,they look for a little gain each time,my husbands went down to o.3 when he was taken back in,he is now 6 months on and plates are 84 should be…[Read more]

Hi Kerry and Melvin

Sorry it was another Hospital Dash but am pleased That you are now back Home Melvin, this MM is a bloody hatefull thing, but you are both fighting it with all the strenth you can muster keep that strenth going you two.

Love Tom "Onwards and Upwards" xx

Hi Vicki and colin

Well Colin you are soon on the move and sleep is good for you I slept for about 5 days when i had my SCT some times didn't know the young Bride was with me (wot sort of a host was i lol) as for the eating I didn't just water for me I used to order sandwhich for tea and choos it for Elaine so i didn't eat it.

Sleep well…[Read more]

Hi Tina
That long and hard ride you are having will soon be a distant memory for you (mine is nearly lol)
Think if i am correct I was about two months post SCT before I woke up and turned that Corner to being Fixed and that I knew I just felt "Fixed" 😎

Keep Well Tina and it wont be long now before you are "Up and At Em"

Love Tom…[Read more]

Hi you all

Not be long before you are at home Chris 😀 then you can start to get better faster, just keep away from those bugs and you will still need to sleep a lot and if you are like me still keep the bathroom door open Lol.
I was also stil taking the Anti Sick Tabs for a few weeks after getting home so ask for them before you…[Read more]

Hi Helen

Well I stopped smoking in November 2009 just prior to SCT and my cough/chest has never been as bad 🙁 I have always had a iccle tiny cough when I smoked as my Young Bride (Elaine) called it an attention cough Lol, but that iccle cough has grown up and been a bother for a few years now its just weaker :-S

Had me flu Jab…[Read more]

Hi Sue and Michael

I am Pleased you are Home Michael as am sure its best place for rest and comfort, sorry you had a panic attack michael it must have been scarey ?

Sue I have three Handsome Sons but all soreted now but am sure that Pretty Daughter of yours will be sorted when she is ready, aint no rush these days is there?

You both kep…[Read more]

Thanks wendy for your kind thoughts i do have a good medical team at the Lister and UCH
Love Jo x

Well Dia

who knows what is the right course i made my mind up not to go for a SCT it was discussed but i didnt want to finish my kidneys off completely as it happened it has not worked out too badly so i do hope i get the same responce this time thank you for your kind wishes:-)
Love and a hug from Jo xx

Hi Sue
If it is any help Sue,Slim had panic attacks when in ITU,and of course I was not there,and I was there 20hrs out of 24.made me feel awful,but he did say to me they were bad dreams,and we did talk about them after he came home.

So glad to hear he is coming home,make time just for you and Michael,you will need all your strength in the…[Read more]

Hi Emma
Glad to hear your mum is feeling better,there is so much to learn when starting treatment,so it is a big learning curve.:-)

When your mum starts treatment everything will be explained,about tablets when to take them and the best times,there are a lot of tablets so go out and buy a pill box,and make a chart makes life easier.

Kidneys…[Read more]

Hi Jo,

3 years 6 months from your CDT alone… that is impressive.:-D

I have said on here many times that my biggest regret of my treatment was not holding out for my full remission from the CDT treatment. 🙁

My consultant said it was 'a no brainer' to go for my SCT after my CDT but due to my Hickman Line infection which made me…[Read more]

Hi Sue,

I can easily understand and empathise with Michael… I always feel on the edge of a panic attack when Janet leaves me at the hospital. Silly as it sounds but every time she comes in from shopping or when she has been babysitting our two Grandchildren etc. my heart skips a beat… it's ridiculous but I get a warm feeling even when she…[Read more]

I imagine this last year has been very hard indeed… and you still have your husband's cancer to deal with… is he in remission or still on active treatment?

Your Mum did well given her age and not qualifying for a SCT but that is of little comfort when you have to deal with the grief of her passing.

I hope your family manage to pull…[Read more]

Hi Pat
I have a reduced regime because of the kidney failure i cannot have full strength drugs it worked ok for me last time so hears hoping it will now
my lovely husband takes me every where and waits for me took me this afternoon to my friend sons saloon she arranged for me to have a free manicure which was lovely had the hair done felt much…[Read more]

Hi Scott

I am coping ok at the moment with velcade only once a week SubQ and a reduced dose of dex and cyclo because of the kidneys they started me early
as i was producing heavy light chains which damaged my kidneys in the first place they are still hanging on how are yours coping with the new teatment i am nto giving up going to th MM…[Read more]

Hi Mavis
thank you for thinking of me not doing to badly plenty of hospital visits but i try to carry on life as normal dont like to give up just take a bit more care not get colds etc
Love Jo x