December 21st? Well… knowing you it won't ruin your Christmas.

If the PP's have decided to rise above the accepted parameters I imagine your consultant will put you on a 'watch and wait' brief for four weeks anyway but if your instincts are right about the muscle via bone pain in your side then what a wonderful Christmas present a…[Read more]

As far as I understand it the medics look at the ratios for overall guidance and if the PPs or Kappa Light Chains are acceptable they will press ahead with the SCT process . 🙂

There are parameters of which 0, Nil, Zilch, Zero, nothing… are the ultimate base camp aim…. with an upward level which has been set as the acceptable level of…[Read more]

Hi Dai
Do not worry I do not take everything to heart,lol!!:-P

You have managed without knowing it explained a few of the things that have been bothering me for some time.If I may explain.

1 Slim was a commando marine for 24 years.
2 Slim also been a diver for for well over thirty years,professionally for
about 6 years when he…[Read more]

Hi Eve,

In a previous lifetime, while doing my stint as a full-time union official for the NUM, I was put in touch with a TV producer who 'collected' people who could provide resources in the way of interesting human beings for TV programmes. I considered myself 'interesting' (especially when the daily rate plus expenses for travel and…[Read more]

Hi Winston

No not much help,I am more interested about the run up,because I am assured,the bloods,will be the first marker,so how did you get in the position of compression on the spine???,as I said they should have discovered you going out of remission,I have my own reasons for asking,can you help.

Hi Dai
With out taking over Stan and Mary,s thread I would slightly disagree with your figures,If they could only find why some people respond well and others do not,I can honestly say I do not know if Slim will get 6 months or 6 years,and i do not think the experts know either:-P

As for stress,mine was because I found people not doing the job…[Read more]

Hi Winston
Welcome to the club,2003 until 2012,that not bad going at all,sad you are of remission but you gave it a good run,what did you first treatment consist of. 7 years which in it.s self gives everyone on here some hope.

I would have thought as they new you were in a situation,that they new it would come back,how did it get to the point…[Read more]

Hi Polly

Well you are getting there,do not mention the pharmacy:-S :'-( >:-(,this is the one thing you will have to look forward to at the start of each cycle,in the hospital we went to they just could not get there act together,I can honestly say the drugs came up to the unit on time only once,and they would not even let me collect them,its…[Read more]

Thanks Scott…

As I see it you are leading the pack… with me and Keith treading on your heels.;-)

The problem is that Rev & Dex might settle down and give me 18 months to 2 years… perhaps more if Kyprolis (Carfilzomib) is licensed while Rev & Dex are still working… my consultant was quite bullish about the efficacy of Kyprolis…[Read more]

Hi Peggy,

I suppose you have got your answers now but just a note to say that I have never heard of a harvest process that didn't include chemo-priming and GCSF injections… if I am wrong on this I would like to know what process was followed.:-|

Best of luck any which way (Look… me using an Americanisation… whatever next???):-D :-0…[Read more]

Hi Pat,
Sorry I haven't been on here for sometime I'm just catching up on posts, my Dad was diagnosed with AL amyloid and MM a year and a half ago and you are correct both are treated the same way. My dad had a course of CTD which gave him a complete response. He will be starting velcade in the next few weeks after AL levels have reared there…[Read more]

Hi Polly

Am sure with a handfull of Onwards and Upwards and a sprinkle of one day at a time, and everyone crossing everything we have all it made am sure, hope all went well yesterday

Love Tom "Onwards and Upwards" xx

Hi David
Well we know you cant beat that Bombing about malarky 😀 , lets hope its for many a year 😎

Tom "Onwards and Upwards" x

Hi Kay

Am sorry to see you joined the site on behalf of your Mum.
I cant add anything to your Q as to what does or might not happen at the end stage of MM.
Am sure if you talk to the Dr who is treating your Mum he/she will tell you the best way to go re treatment for your Mum at this stage.

I just wanted to send my thoughts to you your…[Read more]

Hi Eve,

Thanks for replying… 🙂 I thought I had frightened people into submission… :-0 which was not my intent. 🙁

[i][b]I am writing this through you, not necessarily for you E[/i]ve.[/b]8-)

What I had noted was that the majority of the angry, stressed and disturbed contributors were nearly all in the early stages of the MM…[Read more]

Well put Dai

I think you do go through a time when you want to scream at the world,but you do get past that,and just think we will make the best of the time we have.

Mentally over the last 2 years I have mourned and buried Slim,looking back on it,I think it was just a way of preparing myself when he was very ill.We have talked about it and…[Read more]

Hi Jean,

Keep an eye on Frank's legs, it could be down to several things and a DVT (Deep Vein Thrombosis) is one not mentioned in your posts.:-0

Last year (the summer of 2011) I had a badly swollen leg and wondered if it could possibly be a DVT. (I reported all on here and in a nutshell it turned out to be a DVT after several weeks of…[Read more]

Come on in Dai its nice and warm in here 😀 pleased the wedding went well and i cant wait to see more photo's.

Tom

Hi All,

I'm still around…. popping in 2 or 3 times a day to see what's occurring. 🙂

The wedding day was as sweet as a nut… everything went absolutely fine, with excellent weather, excellent service and a truly lovely reception. I manage to walk Becky down (up?) the aisle and, after saying that I was glad to give her away, I was…[Read more]

Not heard anything yet and I know he did the walk and done it in a great fashion 😀
If I hear anything from our dai I will let you all know.

Tom "Onwards and upwards" xxx