Hi Gill and Dave

A warm welcome to the forum, sorry you had to.

Well If I remember correctly those first weeks/months were a whirlwind, plzd ur getting down and on with it as its the only way am afraid.

I was on CTD then had SCT all in December 2009 and doing well now so its worth it 😀
Heavy feet? well Gill ate Daves feet/ankles…[Read more]

Hi All.

I have had friends and acquaintances who have come along behind me since my diagnosis and they have died without ever having the chance to acclimatise to the fact that they had a life threatening illness . One particular friend found out that she had advanced cancer and died within three weeks… and another who had a heart attack and…[Read more]

You aint done it too easy have you? well its started now its just a sit and wait. Good Luck with it all

Onwards and upwards Tom xxx

All crossed for you all its gonna be spot on, keep well you both and keep us posted 🙂

Love and Hugs Tom "Onwards and Upwards" xxxx

Hi Mary
Your more than welcome 😀 , its a hard place to be this MM malarky and all its treatments :-S but it will be worth it in the end am near 3 years post SCT and drug free 😎 it was an uphill struggle some times but the end result is Tom back to (near) Normal, but after us all going through MM we forget what normal is am afraid.

Stay…[Read more]

hi Peggy

Well all I can say is when we went up to Kings and went through the procedure with a doctor,nothing went as he said,different appointments came through some were done before stem cells taken some after!!!! Must admit i felt as confused as you,we had a similar conversation,after what we were told and what did actually take…[Read more]

Hi Polly

Well I had my first BMB with no notice and to be honest it was a lot better than the weeks worry if I had to come back later Lol.
As for keeping the clots at bay I took an asprin every day (worked for me)
You will be fine Polly I worked up till my fourth cycle and had to go on sick for a year, that year took me through My SCT so its…[Read more]

Hi Lisa

Sorry to welcome you here but as you are a warm welcome.

Pain with it?? I have to say I had None except when I was having Bone marrow Biopsy :-/
Was on CTD then onto a SCT and that was 2009 now am drug free and doing well 😀
Its normal to be scared and worried but now your dad has got MM its a road he has to travel am afraid :-(…[Read more]

Hi David
I cant add to it either am afraid, Just wanted to wish you better soon.
Take Care my Friend.

Tom "Onwards and Upwards" x

Hi Cathy

Nice to hear from you,Ivan has had a rough time of it so it might take a bit longer than most to make a recovery,Slim is 5 months past SCT and is only just starting to gain weight,and still is occasionally sick.

What sickness tablets is he on??? Slim had a few different ones,its hard to eat when ever thing taste awful,if you cannot…[Read more]

Wishing Colin the very best of luck in getting a smooth a ride as possible through his SCT. There's not a lot you can do from this point now Vicki, apart from keeping him company (there will be lots of silent watching, reading, dozing etcetera from the both of you) and making him as comfortable as possible. From about four days in until he…[Read more]

Hi Vicki

I was always told "If you have it Flaunt It" so here I am near three years on and waiting for you all to be the same as i then we can "Flaunt it" to all the newbie's.

Love One "Three year on (near) Tom "Onwards and upwards" good Luck for Monday, I was out on Day 16 lets see if Colin can match it :-)…

Hi Jean

Sorry can not help with the low temperature, but Slim had swollen feet,as Tom said you can get socks with loose tops it helps,I use to use Coco Butter Milk on Slims feet,a massage ever night use to help,got the circulation going,swollen feet are painful.Needs to get those feet up high a pillow under his lower legs of a night,but make…[Read more]

Hi Vikki and Colin

Just popped in to wish you the best,you do not need it though,you both seem to have the right attitude,will all be over in a months time,and although it will seem a long time to get back to good health,you do get there.Eve

Na then Mary and Charlie

Yep we all get it more than we care to let on to be fair 🙁 yep I went to have a bit of counceling 😀 wouls i advise people to go ?? too true i would, I didnt think I (a big hairy ass docker) but yep it was just one of the things i needed and if I felt the need i would go again 😎

Now let me see Scream hell yes…[Read more]

Hi Marian

Sorry for the Late reply.
Sory I cant help you with this as i have never done a trial nor been asked to do any research, Just wanted to welcome you to our little group and wish you well on your road to remission.

Tom "Onwards and upwards" xx

Hi Chris
Looking Great My Friend 😀 its not started yet I dont think as and when you cant drink ask for the drip to be put back (I did) its bloomin hard to drink as much as you need and i found it better to use the line for mine for a day or two 😀 Just dont forget to unplug it before you get that need to dash to the loo ha ha I did many a…[Read more]

Hi Jean and Frank
The CTD was not good for me it forced me on to the sick 🙁
Yes I had swollen feet and legs, Kids used to laugh when I showed them the ring around my sock top lol, Elaine got me new socks with no elastic in them real loos at top and that helped :-), the feet/legs will go down but my feet and fingers aint too good lol I still…[Read more]

Hi Andy
You will get there,it sounds like a good idea to me,crack on up wards,might be worth talking to Shirley on hear,I know she has had one.
Look at Myeloma Beacon Survives people on there have been going for many years,they say it,s the nearest thing to a cure.Eve

Hi Chris,

Once the Stem Cells are back in it is only a matter of waiting to zero out and watch the daily bloods for that magic number of 0.1. In between times it may get a little rough but it is worth bearing for what it brings.8-)

I wouldn't worry about the eating side of things, get down what you can but drinking is important……[Read more]