hi Vicki
glad you laughed at the legging or as my husband says "that is just not a good look" went to see Henrey Blofelt the cricket commentator the other night he had us rolling with laughter it certainly does you good
Love Jo x

Hello Pat
sorry you have not been well bit of a b+++gger glad you are feeling a bit better now co codamol are good but they may make you constipated so back on the syrup of figs!!!! if its not one end its the other I have know people to defer treatment to go on holiday so i bet its possible I dont think you are a wimp all these treatment are…[Read more]

Hello Jean
like the new photo of you and Frank how is he doing at the moment any news about his SCT is it soon will mail you soon
love Jo x

Hello Emma

what a terrible shock for you all I dont think anyone really gets over it we just learn to live with it the trearments now are so much better than even 10 years ago with new ones coming on every couple of years you will get some really good advice here and the myeloma help line is a god send they seem to be able to answer most…[Read more]

Dear Rachel

am sure you know how sorry and sad I am to read your Post about Paul, I was sure he was going to have a long remission and be fit and well for many a year.

I hope you can take comfort in that in the short time he was with us in the group he helped mamy a member with his strenth and determination.

Love and Hugs for you and…[Read more]

Hi Kerry

Hope your Mum is doing Ok. I was told Zometa only for two years and that is now complete so far Jaw intact and teeth still good (check out my smile Ha ha)

I do hope they can control the pain for your Mum.

Love Tom "Onwards and Upwards" xxx

HI tom.

Thanks for being well informed… Sian is lovely and she also has a country pub with accommodation between Hereford and Hay-On-Wye 😎 .

The news about Paul was posted in the Under 50's… you will find a post from his wife there.:-(

Dai.

Aww RIP John, and thanks for letting us Know Mavis.

Thoughts and Prayers to his Wife Su

Love Tom xxxx

Hi Everyone

Well am back and had a great time with Elaine(the young bride) and two Grandsons (Alex 9Years and Liam 7 Years, Lord knows i wasnt ready for a zimmer frame before I went to Thorpe Park" but I tell you I could use one today Ha ha.

Dai Am pleased to see your getting better 😀 am my you have been through the wars, The NHS is…[Read more]

Thank you all, truly and deeply…

It wasn't just the illness, though that was real and bad enough to be going on with, it was also a feeling that I had hit a brick wall in my progress and general well being.

I am still hanging on where many of my contemporaries have slipped away. We had similar problems, similar prognosis and no reason…[Read more]

Hi Pat

Take this trip to hospital as a big learning curve,it is such a worry to a carer when temp goes up and BP goes down,steroids mask infections,so are very hard to spot,I now go on Slims BP,when he had pneumonia his BP went right down had him in A&E,and even they failed to spot it,although I pointed out his BP which was 60 over 45,Pat next…[Read more]

Hi Dawn
Not been on site for a long time, so thank you for bringing me back. Life goes on Im pleased to say. My PP fluctuate between 18 and 22. I went back to Barts on Monday and had what I hope now is my yearly visit. I have blood tests once a month at my local hospital and hope that it will go to two months now. My consultant said she will not…[Read more]

Hi Anne
So sorry to hear your rotten news – I do understand how very distressed you must be feeling – especially in view of your young family.

I was diagnosed in 2005 and didn´t neet treatment for five years during which time they monitored me and helped with the anemia. I have had chemo and stem cell transplant during the last two years and…[Read more]

Hi Colin and you too Chris,

Wishing you both a smooth procedure with as few side-effects and setbacks as possible.:-)

You have done very well to get Colin to this stage Vicki, just one more push and you will soon have him home and on the road to recovery and hopefully a long remission.:-D

Good luck and best wishes for all on the…[Read more]

Hi Dai
Well as you know we have all been worried about you,this forum just did not seem the same with out you,Tom in his wisdom managed to get info on you,clever block that he is,when someone goes missing who usually post,it becomes a puzzle why they have not posted,do they need a break!!! are they ill!!! or worst still pushing up the…[Read more]

Hi Gill,

Your waffles always hit the spot… unerringly.8-)

Thank you for always being just you, please keep in touch… here and especially with Min, Sarah, Tina etc.,

You are in my thoughts constantly… I admired Stephen greatly, he was my role model… and you were and remain my friend.8-) 🙂

Warmest regards:-)

Dai.

My Dear Rachel.

Such devastating news… I was certain that Paul, of all people would be strong enough to get into a full and long remission… you must feel terribly cheated… but this is the nature of MM. IMHO the most important reading in the bloods report is your Neutrophils… the governor of your immune system and if they fall too low…[Read more]

Hi Everyone?

Still alive and kicking, with a little care from my right leg, which is currently carrying a slightly complicated DVT.:-P

This last month has been a bit of a nightmare… with my C: Diff back and winning the fight for a short while. In short my consultants plan (after finding out that 6 weeks on my referral to the…[Read more]

Hi Mike and Girlfriend

Another welcome to this exclusive site,were everybody is a patient,carer or friend,and we try to help each other out as much as possible,were here for you when you want to rant or need support.We have all been there before you and some are still here now.

Everything is do able,you must learn as much as you can,we are 2…[Read more]

Hi Etta

Treatments Zolinza or Lenalidomide or no treatment randomised,Slim go t no treatment.They are testing the new drugs as a maintenance treatment. Zolinza has been doing well treating other cancers and it is a prohibiter,no results are available as a maintenance drug as this is first time,Lenalidomide has been in use for some time and…[Read more]