Hi Mike
Yes mike it is like someone has switched on a light bulb,and you can see a way forward.8-)

I think at the moment we will settle for this time we have, and try not to look to far back or ahead,as both are not a nice place to be,I see the Myeloma Trials helping generations ahead,in a cure,for people who are here now I only see it buying…[Read more]

Hi Tom and the family of Lappins

Will be lovely when it is 3 months appointments,already been told if we want to go away for any length of time,it can be arranged around Zomita.

It is a good feeling,just to know we are in this position,we will just be doing everything a bit slower as Slims body has taken a battering,and is still on pain…[Read more]

Hey Tina Good Luck with it all and if I remember well Nightie is faster for lifting than jim jams are for lowering and I prefer the fastest way (not that I wear Nightie's though)
As Eve says During SCT its a throw away Culture you need to have, dont bother with Posh (bless)

Love Tom "Onwards and Upwards " xxx

Hey you two

Aint you BOTH done well you and your team have and are working wonders 😎

Great Post for the Newbie's and those that are having a rough ride, now all can see it CAN and WILL be sorted just takes longer for some ?
Onwards and Upwards now you two Great Post

Love and Hugs from Us Lappin's in Scunny "Onwards and upwards"…

Hi Mavis Megan Joanne and Jean

Yes it is all good,I realised how I felt right through Slims treatment and how many people helped me through the many months with all Slims problems,We seemed to live in the hospital at one stage,and it is so nice to have this extra time to enjoy.

Jean I think Slim would be the same about going,I think they…[Read more]

Hi Tina
Well I have to say Slim never found the energy to get dressed until near the end,and lots of clothes just got thrown away,you will not expect them to be taken home.

Take things in that are around you at home,like your favourite mug,I would also take anything,that you like to drink in,as this is so important,as food and drink do not…[Read more]

Hi Joanne
Sorry you Dad is having a rough time of it,at least they found out what it was,and he is on his way to improving,just forget about the Velcade for a few weeks,just work on getting your dad in better shape and in the frame of mind to start Velcade,because that will be the last thing he wants to do.

Slim had pneumonia and was 21 days…[Read more]

Hi Jean
Yes Scrabble still on,I have 5 games on the go at the moment,I was doing so well against you,then you snuck up on me. lol

How are things with you,,4,5,6.Cycle is hard,just keep an eye out on blood pressure if it goes down,there is something amiss,so easy to miss an infection with steroids.

Will not be long before remission and then…[Read more]

Hi Gill

May I say you should be very proud of your self,because you not only gave Stephen a good send off,but you did it in style,

I have enjoyed reading your post,I did not cry but smiled and laughed,I can only say,it was like hearing you talking about Slim,even to Rod Stewart. If there is another life,you can bet he will be looking down on…[Read more]

Hi Joanne

Sorry your Dad was poorly but am pleased he is getting better and in his own home (you cant beat it) its all about rest and recuperation now for you and your dad (yep I bet you forgot about your self??)

Hope Velcade is started soon, and please no need to apologize for not being on for some time as this site is for when you have…[Read more]

Thats great news David and a well done to you and your team 😀

I hope after your X Ray you get the byeeeeeeeee. from them and go out and enjoy the three months respite.

Am sure am due this month some time?? but hey ho am sure My Doc will be smiling 😀

And Gill am sure you dont sweat am sure if anything you would perspire Lol.
Week…[Read more]

Hi Mary and Charlie

Where do I get my positivity from?? well I get it from this forum yep this forum every one drops a bit of it when the post good news and I just go along and pick that little bit up and my Young Bride (Elaine) knits it all together for me and that way I have loads and if you look I have dropped a little bit for you all…[Read more]

Hi Mary and Charlie

I am sorry to see you are both having a rough time, and I hope nay am sure they will soon have it all sorted, trouble with this darned MM not one treatment fits all, so once they find what Chrlie fits it will all fall into place.

Now as for the roof lark oh gi ower Charlie save your strenth and energy for fighting the MM…[Read more]

Hey Tina

Well Girl now is the time 😀 and am sure you will look great wig or no wig (I never used one lol)

Wishing you a fast and trouble free Transplant.

Dont forget Tina The mouth wash please use it every time you pass or go to the loo and even when you think you might want to go to the loo, the more often you use it it am sure the…[Read more]

Hi Tina
Well that is good news,it means by Christmas you will be home and recovering,have to get your christmas presents before you go in.

Slim was sorry he did not take a mug for tea in with him,so if you have a favourite,I would take it in.It will be over in no time,ask any questions you want about the SCT more advice you get helps you to…[Read more]

Hi Mary

Well everyone is saying the same you will get over this hurdle,as for felting the garden shedddddddddddd,he is going to have to slow down a bit.:-P

Mary I never take pills,but at one stage I found my self tearing a piece of a complete stranger,so that little white pill keeps my emotions under control,nothing worst than crying or…[Read more]

Hi David
IF you can get a PET scan out of them,it will show any form of Cancer outside of the bones,but they cost a lot of money.
I do not know how they will decide if Slims is coming back as they have told us only way is BMB.
Have another holiday ,then you might forget about the 3 months again.Eve.
Dai is very quiet anybody know if he is OK?????

Hi Mary

Sorry to hear about Stan,Slim was about 4 cycles on CDT,when he was rushed into hospital with septic pneumonia ,9days ITU 22 all together in hospital a weeks rest then back to next cycle tough but doable.Lot of damage to lungs holes and mass blood clots,only to be told at end of 6 cycle it had not worked and his condition was worse,then…[Read more]

hello Ann

I had swollen ankles and got really numb toes while havig CDT I think it goes with the territory toes are better now but still a bit numb on the two outer toes on each foot hope all goes well for his SCT
love Jo