good news David

heres to the next three months my Para have been 8 since last sept all other bloods ok so no panic yet
Keep well
Love Jo

Hi Ann

Re swollen ankles yep I got those, numb toes well let me tell you I have in the past the most sensative toes ever, that bad i could not cut my onwn toe nails so my young bride used to cut them and had to sit on my legs so i didn't pull away Lol, but during CTD toes went numbe (still are) to me it feels like my socks have slipped down and…[Read more]

Hi Cathy
Nice to know Ivan is on the mend,time for you to take a rest before the hard work begins at home.
It is hard for them to eat and drink,there taste buds are non exsistance,takes a long time for the gut and bowels to regain any order even months after Slim is occasionally sick and bowels controlled with powders,its so easy to get blocked…[Read more]

Hi Ann
swollen ankles and numbness are some of the symptoms,both will go with time.
You can buy socks that have more give at the top to make it easier to get them on,he needs to keep his feet elevated when sitting,i use to use coco butter milk from boots and massage Slims feet it does help with the feet being swollen.Helps circulation .
Eve

Hello Pat

I see a kidney consultant every two months the only treatment I can have is a small dose of steriod ad a large dose of sodium bicarb kidneys are at about 20% but fingers crossed hanging on
Love Jo x

Hey Vicki and Colin

Am sure you will find the resolve to get that Moral breakthrough we all need at the time of treatment Clin is going through, I found it and am sure Colin will, As for the head/chins up if thats a wee bit hard at this time I would go with a head down and a good "Shoulder Charge" it works just as good I aslo had to use that…[Read more]

am on that same stage as you Ali letting the two of them knmow i also am thinking about them 🙂

Love that Onwards Man Lol xxxxx

Hi Pia

And a warm welcome to the site, sorry to hear about your Mum am sorry I cant help with the treatment as all I have had was CTD then SCT.

Just wanted to wish your Mum well in her road to remission.

Love
Tom "Onwards and Upwards" xx

your more than Welcome its a hard time for anyone thats told they have MM and worst for those that are on the the sidelines watching Us MM'ers going through what needs to be done to get into Remission 😎 its a dooable but its uphill am afraid, but you now know where we all are 😎
Ask away and if you feel like a rant well tis is the place 8-)…[Read more]

Hi Nicola and Dad

I am fortunate enough to have No bone damage but I was having Zometa infusions every four weeks 😀
As for the exhaustion I suffer that and am not on treatment so I put it down to having MM and change my life style.

Give your Dad a big Hug from me and tell him to rest and not fight the tiredness sleap when his body tells…[Read more]

Hi Alan
And a warm welcome to you, as for the "Twitter" I am on it and as for Face Book am also like a few more on her On it 🙂 so go on Alan you have got this far Ha ha.

I am on No treatment now 🙂 but I got a Rash after My SCT that was soon sorted, but I suffer bad skin prior to MM and used E45 and had to rush up stairs and wash it off as…[Read more]

Hi Nicola and Dad ?

Welcome to you Both, and it will get better I was on CTD in 2009 then SCT dec 09 now am drug free and doing Good, I want be as fit and as well as i was Prior to getting MM but its good enough for the moment (I am now 57 years young) still working and blessed that my company have gave me a light duty job and am still on it…[Read more]

Hi Pat
had a consultant app yesterday wore my purple jeans and a pale lilac fleece
very fetching:-P My bones were not effected but I had renal failure so if its not one thing its another:-(
Love Jo x

Hello Pat

I am 65 and refuse to grow old gracefully I wear purple and bright pink and I dont think a colour rinse comes amiss now and again dont think much differently from when i was 40 only on the days when i had DEX which turned me into a tyrant not on any treatment at the moment things do get a bit better 😉 I had CDT not VCD bit the same…[Read more]

Hi Ian
And a welcome from me, and Lurk and ask anything you feel you need to, pull up the chair and get comfy.

Tom "Onwards and Upwards"

Aww Andy and Steph you two are Nawty telling us all how Hot it is and how cold the bears are 😀 Its been Persistant here in Sunny (thats a laugh) for a few days and no hope of a let up. Why oh Why dint we go with you Lol.

Have a great time and dont worry you will soon be home Lol

One Cold "Onwards and Upwards" Tom xx

Hi Mari

Well av done that stage also he he it aint good ? but trust me you can get a few laughs out of it when Steve is better, Pleased the rash is calmer (thats a bugger) Steve if like me will get to the stage where he wont care if he gets anyone to visit as he (I did) will sleep most of the time.

Tell Steve to try and eat a little bit as…[Read more]

Hi all

Am sure you jave no rush to be using it David Lol but the postcard bit those that cant attend could send a postcard that is stuck on and you can read it at the other sided (pearly Gate End) 😎

Now this rent thing I just might google that tonight 😛

Tom (not ready Yet) "Onwards and Upwards" x

Your More than Welcome Sue, you are the one that knows what they need and i for one hope you find it.

Good Luck with the "Way Up" I hope its good for you, Keep us informed and we are here when you need to chat.

Love Tom xxx

How is the Coffin going David? I was looking at the photo's you posted the other nite.

Well done on the saving Money lark Ha ha, but am sure it will be years before its needed 🙂

Tom "Onwards and Upwards" x