Well I have seen your Photo's on "Face Book" and I think you are trying to rub it in Lol.

Have a great Time you two, and dont burn 😎

Tom xx

Hi Mari and Steve

Well I for one knows what your Steve is going through and am sure my young bride Elaine knows what you are going through, the struggle to eat was a worry to Elaine but for me I just didn't care if I ate or not 🙁 But in the end I have ate wayyy too much now am up and running and I know that Steve will be getting to that…[Read more]

Hi Ray

And a warm welcome to you, Just wanted to tell you ask Away no Q is too silly for us lot ha ha.

Good Luck with your Road to remission.

Tom "Onwards and Upwards" x

Hi Andy

we have just got back from Majorca I must say some sunshine and a few Sangria,s did me the world of good its funny how well we can get relaxed if we take the chance and have a holiday
Keep well and Hydrated enjoy the rest of your holiday8-)
Love Jo x

Hi Sarah and Henry
It is nice just to have that result from the BMB,so we know how you felt,here is were you start doing all the things that you keep putting off,have those holidays,and days out,and just enjoy your second chance.

Live your life,for all those people who are fighting this disease,enjoy it to the full.Love Eve and Slim.

Hi Sue

All the things you say in your post are so true but trust me Sue you will get through it and the counselling is a good way to start, I had a bit after my SCT didn't think I needed it didn't think I was weak to need it? DID I NEED it ?? too true I did, started to feel better before he stopped for coffee 😀 had a couple and if I felt the…[Read more]

David

this is wonderful news i had every thing crossed for you, you did have to bite very hard this time;-)
love Jo

Your More than welcome try and stay strong Hugs for you xxxx

Morning Mari and Steve

Well lets hope its faster on the way back up for Steve, its a long wait (or seems it) waiting to get ill before you can get better :-S strange as it is, the sooner they work out how to make you better without making you Ill will be a blessing for everybody 😀

Thinking of you on the Road to remission.

Love Tom…[Read more]

Hi Gill,

Keep us updated when you feel strong enough… I think you know that all your friends on this board have one eye looking for your name on a thread… and our hearts set ready to help in any way we can.:-)

Much love and respect.

Dai.

Hi Min

This little one will be for my daughter,her thoughts are never far away,from Matty,she is strong,but at times finds she is over whelmed,It is usually when she does not expect it. Thanks again Eve

Hi Sarah & Henry,

I know I replied to this thread a few days ago but a few of my posts have gone AWOL… but never mind, good news is worth repeating… take it easy and take it slow…. but take it all the same. 😎

Use the first few months for mental and spiritual growth… the body will follow in its own good time… don't push, don't…[Read more]

Hi David,

Just to bump up Eve's inquiry… how the hell are you?:-D 😎 🙂

Dai.

Hi Dai and David

Yes Dai you are right,I am impatient,it just seems to go on for ever.

David this maintenance treatment is part of the Myeloma X1 trials,after SCT you are randomised for revlimid or Zolinza,or not treatment,Slim got no treatment.

How are things going with you???? Love Eve

Hi Eve,

I appreciate your concerns about Slim's progress but he is recovering from something like the equivalent of major brain or heart surgery… the SCT completely destroyed his immune system…his stem cells were given back and have to do two things:

1. Regraft onto his bones/bone marrow and start rebuilding the blocks of his immune…[Read more]

Hi Keith
Good to hear you are feeling better after the large doses of Dex,Slim never had massive doses of Dex,in fact after the pneumonia,they reduced it to 20ml a day on a four day cycle on the trials,so weight loss on heavy steroids still seems iffy.

Slims in remission,and on trials is now receiving no treatment,would love to say he,s…[Read more]

and if this works I copied (am sure its Ok 😀 ) the why the "Way Up" was started.

[b]A brief History of Way Up

In the Spring of 2009, I asked the then Chairman of WAY, Caroline, if there was anything I could do as a WAY volunteer.
Being over 50 myself, it seemed a good idea that I look into doing something for the chronologically…[Read more]

Hi everyone I done the google for you as Min suggested and here is the Link http://www.way-up.co.uk/ just click the link or "Copy and Paste"

I hope it helps for those that need it.

Love Tom

Hi Mari and Steve

Soon be all over Mari,but take it easy that journey alone is a horrible one,I was so tired just going up and down all those steps at the station was awful.

Slim had a driver for meds,could not keep anything down,even now he will not touch stuff he was sick on,cold milk and ice cream seemed to help.I just stocked the fridge…[Read more]

Morning Mari and Stephen

Well done on the SCT its now as you know a waiting game for Steve to get it all put together and start the healing part. Good Luck to you Both and dont forget mari you also need to rest 😀

Love Tom "Onwards and Upwards" xxx