Hi Joanne

Sorry to hear your dad is still not getting better, but am sure when they find one that Fits your Dad he will be doing good then its just trial and error for most of the time.
Cant help with the velcade But wanted to wish you and dad Well

Love Tom "Onwards and Upwards" xx

Hi Tina

Well done on that Collection Girl 😀 am proud of you 😎

As for the RT I haven't had any but my young bride (Elaine) had 25 sessions of it due to breast cancer 🙁 and yep she was tired but it went well skin started to burn a little near the end of the treatment but they gave her cream to use. Elaine is doing great now and is…[Read more]

Hi Balders

A welcome to the site I hope your Mum is soon sorted, am sure some one will pop in and say a few things about the treatment and side effects your Mum is having.

Good Luck on your Mum's road to remission.

Tom "Onwards and Upwards" xx

Hi Sarah and Henry

Wished you well on "Twitter" and am gonna do same here 😎

Well done you two you are now "Onwards and Upwards" enoy the remission I am 😎

Long may your remission last 🙂

Love
Tom "Onwards and upwards" xxxx

HI tina,

At the very start of my MM journey I was diagnosed with secondary bone cancer, primary unknown… with another 14 months before the correct diagnosis of MM. THE CT Scan carried out at my small, local hospital showed a reasonably large tumour that had crushed a couple of vertebrae and was in imminent danger of cutting into my spinal…[Read more]

I too am mainly bald (evidence to your left) and when my hair started to fall out Janet gave me a No.1 which, on a man,, looks quite neat and tidy. I stayed like that until my post SCT recovery and when it grew back it was the same as my teenage years, thick curls up and out a la Art Garfunkel… at one point I thought MM had found a cure for…[Read more]

Hey Girls as a mere "male" I can only add I was nearly bald before SCT and went Bald then Back to Nearly Bald was my hair brittle/dry ?? I aint a clue (am a male) but Hope you get it sorted and some better answers than I have gave 🙂

Lots of love Girls xxxx

Hi Mari

I f I am correct that is a few floors up,turn left out of lift and walk down and it is on your left 2 wards through one door.!!!not very good views from windows,but bigger rooms,and from what I remember they would even do cheese on toast,bigger kitchen.It is roughly half a mile all together from Denmark Hill station.Slim was in there…[Read more]

And am Sure it will help others Thans For sharing.

Love Tom xxx:-D

Hi Pat
AL is similar,it is rarer,I think 600 cases a year,last time I looked and only one hospital Royal Free,there are a few people on here with both Amyloyds plus MM,they usually pop up in related conditions.

It is not knowing that causes sleepless nights,so once you do know you feel you have something to fight,Velcade works for MM.

Its…[Read more]

Hi Vicki and Colin

When Colin's Back is not too good then that calls for a lean over and a shoulder charge 🙂 and am sure that will work just as well but it needs plenty of screaming to go with it ha ha.

You two enjoy the week 😎 it aint gonna be warm but it will soon be christmas ha ha

Love Tom "Onwards and upwards" xxx

Hi Mari and Steve

Am wishing all good things for the SCT I hope its a fast recovery and soon out and getting fit.So head up and straight in 😎

Love Tom "Onwards and Upwards" xxx

Hi Cathy,

This is great news… especially the report from the Doctor re: the kidneys regenerating their function on their own, that really would be the icing on the cake… but I have known a couple of people where this has been the case.8-)

I look forward to hearing about you getting Ivan home for the road to recovery… hopefully with…[Read more]

Hi Etta and Craig

Its No problem Etta and you are Both more than welcome 😀

Etta am plesed you are starting to feel better, when I was getting better (and I could tell) I used to count the days then the months and each day was getting better (still had the odd off day :-/ but then dont we all 🙂 ) stopped counting the "Good Days" after 6…[Read more]

Hey Mari & Steve

Just a note to wish you all the best for the SCT process… I hope it is as smooth as possible with few side-effects… and that you will both be home within 10 to 12 days and ready for the road to recovery.:-)

You have both been here before so you know what to expect… and I hope your expectations are high.8-)…[Read more]

Hi Cathy,
Well Ivan is on his way,it amazing how quickly they recover from what seemed at the time,as will he recover.

Give it time Cathy he will get there,you just make sure you get some rest,when he comes out,it will get harder for you,as cleanliness,washing and cooking will take up you day,so try to have a rest now,if anyone offers help…[Read more]

Hi Judy
It is not unusual to feel this way,after a few months any one will tell you it is part of the grieving process.You want answers and are entitled to ask questions.

I have always made a point of keeping records of blood results as they can tell you a lot about a persons condition.

When you saw the consultant on the Tuesday who told…[Read more]

Hi Mari

How are things going???? You must be back at school now.Eve

Hi
I just wish they would do one south of London,just to far to travel, bad enough having to go to Kings,every few months.So unless it comes my way will not be going to info day. Love Eve

Hi Everyone

If it is any help to anyone, I tend to look at peoples profiles before I reply:-P

If some one is not prepared to identify themselves,it is questionable,some of the posting is more than questionable Dai,its sick.Eve