Hi Ellen, was with you all this time last year, but lost mum in November and finding it hard but mum would want us to carry on and be strong. We wont be coming this year but would recommend it to anyone else,it was a brilliant informative day and we met lots of lovely people that were going through the same, be them,patient,carer etc.
I hope…[Read more]

And may I say a well said that Dai 😀 I for one have (nearly) always said throw it at me and stand back and let me Fight it head on. and if that fails find me something that will work I honestly think its head working that HELPS make you better with the pills.

Now you all stay strong and well and face it for all it is 😎

Love to you all…[Read more]

Hi Sarah Jane

A Warm welcome to the site I dont think I have ever "Smoldered" he he but am sure members like Ted will give you the info that you need.

Take Care and stay strong 🙂

Love Tom "Onwards and Upwards" xxx

Dear Gail

I am sorry to read that your Beloved Howards has Lost the Battle with MM, I am sending you My Condolences and a Lot of love and Hugs for you at this sad time.

I hope you have Family and Friends around you to help at this sad time.

Lots of Love. Tom xxxx

HI Gill,

I am a Quaker by conviction… not by faith or upbringing but because I found them during a year on strike as a miner during the 1984-85 dispute, where the Quakers opened their Meeting Houses as relief centres… not because they believed in the rights or wrongs of the dispute but because there was human suffering involved and they…[Read more]

HI Gail,

I am so very sorry that you have lost the love of your life so quickly to this damed disease. While we are all made very aware that MM is a terminal disease most sufferers get some sort of relief and remissions from treatment… but very occasionally there are cases where treatments fail to stop the disease.

Howard sounds like a…[Read more]

I am so sorry for your loss, its such a hard thing to lose a loved one to this awful disease.
I am thinking of you and your family at this sad time xx

😉 😎 😀 🙂
With knobs on.

Dai.

Hi Vicki & Colin.

Right… time to get real. It is hard to remain positive… bloody hard work… it is moral sapping to take on board the idea and then the reality of another dose of Cyclo, followed by the GCSF injections, the first day of harvest, the necessity of Plerixafor (if needed) and the stress of waiting for the results. But think…[Read more]

Hi Eve,

The reason I questioned Slim's use of a maintenance regime at this time is two-fold.

1. He is still finding his feet after the sct, so it is very early days yet. Your consultant will look at Slim's progress (taking into consideration his case history and the mammoth effort from Slim to get where he is) and he may decide that a…[Read more]

Hi Sarah

This is just to say hello,sorry I cannot be much use to you,Slim never did smouldering,went straight in with AKF plus hypo-calcaemia,.

Lots of people at all different ages with SMM ,so I am sure you will get some reply,s you could try the under fifty,s lot,you have to ask to join.

Hope you stay smouldering for years and years. Eve

Eve and You Slim, time is what it takes am afraid no fast fix for us poor beggars :-S
The Chest is where Most of us suffer mine is bad every now and then and I stopped smoking in 09 😀

Tell Slim not to get Jel just get even, and even Better than I 😎

My Stems will be 3 years young this up and coming December 😎 not telling everyone to…[Read more]

Thanks Tom

Time will tell,Slims got a chest infection at the moment,and being sick a lot,every time I think he is picking up,down he goes.At least he is holding his own at the moment

I keep telling him about you,how good you are doing,all that vodka you drink,2 years on and going strong,he,s jealous Tom lol.love Eve

Only the one Eve Lol

I have a few good friends that came from the Pool 😎 But Jay when he is in drink I cant understand him Nor can his wife of some 40 years Lol.

And Yes it is a Good Job we can and do laugh it keeps chapped lips at bay Lol he he xxxx
You all have a great week end xxx

Hi Eve and Slim

I have got everything crossed that Slim has a long and healthy Remission and am sure he will do it

Love iccle ole me that "Onwards and Upwards Chap 😉 xxxxxx

Now thats the way to "Rock" Well done Chris and your Team 😎 and am sure your Story will be a great help for those struggling to Drag the Iccle Stems Out (Colin)

SDo Once again My Friend a very well done and Good Luck for the next round 😎

From one "Onwards and Upwards to another "Onwards and Upwards" 😎
Tom x

Hi Eva

Thank you for the information,it all helps,we are not private,if we were I think I could argue a good case for having some form of maintenance,When Slim was going through his treatment with CDT,everyone thought he was on his way to remission,as his blood results have always been good,and his kappa light chains were well on there way…[Read more]

Hi Gill

Matty had a long service,but I do remember some were in the middle,she said anyone who had there own believes and thoughts,were welcome to say a pray or have a few minutes silent to pray in what ever they believed in.!!!!

It is very sad,that people cannot gather to say good bye to a person ,in there own way,Gill you do not even have…[Read more]

Hi Benz

Just to say welcome.

Min you should know Tom by now give him a Vodka and ask him to do any impersonation ,he could even sound like me,Ore rite there kid,us scoucers never went to school.

Good job we can laugh,in the position we find ourselves in.Eve

And you Min gave me something to think about and that is
:::http://www.direct.gov.uk/en/MoneyTaxAndBenefits/BenefitsTaxCreditsAndOtherSupport/Bereaved/DG_10018703

I hope this helps Others am sure Gonna show My Young Bride it 🙂

Love Tom xxx