Ha ha Min Lol am sure My Accent Must have come through on my posts ?? would have done if I came from the Emerald Isle as I would be telling myself to "Feck Off" lol.

I have to admit that My Young Bride Elaine the farthest North she has been is the Love Capital of the North "Gretna Green" to have our Marriage Vows Reaffirmed on the day of our…[Read more]

Hi all

Yes Dai I have lost in cyberspace some posts that I thought had gone BUT ??? I put the lost posts down to my Vodka drinking and thats why I lost them :-S

Tom (Not sure if it was him that lost the posts) "Onwards and Upwards"

Hi Benze
As for me I am/was treated in Scuntorpe and Hull but am a Scot from Holytown near Motherwell, but good luck 😎

Tom "Onwards and Upwards"

Hi Helen
Thank you for more information,it all helps,I agree with you,we know it,s a trial,but cannot see it being with drawn if its working.

As you know Slim has already used Thalidomide and Velcade,and in general Is not in the best of health,with lungs and kidneys.So my way of thinking if any drug keeps Myeloma away it must be a good…[Read more]

Hurrah… got one through.

Dai.:-)

Hi Dai
I see were you are coming from Dai,and yes randomisation is the last part of the trial,which has been going on for some time,that is one of the reasons they have now introduced Zolinza which has been used for main stream chemo.

As you know information from America is saying a little and often to kill Protein,this is what Zolinza…[Read more]

I don't quite understand Eve.

From what I do understand, Slim has had his SCT and is now in the slow process of recovery. Did you or do you expect him to receive a maintenance procedure by way of Revlimid, Thalidomide or some such other? Did your consultant indicate that there would be a maintenance regime?

Has there been some sort of…[Read more]

Hi Everyone
Well Slim has been randomised for no treatment,which in some ways leaves me wanting to ask questions.???????

As Revlimid is now been accepted by the powers that be as a treatment.If Slim came off the trials could he have it as a maintenance treatment????

Is any one on here not on Trials but on Maintenance…[Read more]

Hi Gill

Well you are on the start of another journey,this is the time to be a bit selfish,this is your husband you do exactly what you want,and arrange a funeral that will please you.

my daughter had a humanist funeral for Matty,at Bobbins,I have to say the woman who did the celebration of Matty,s life was excellent,she had phone calls after…[Read more]

Now Look what you did Gill I went on You Tube to listen to "unforgettable" and I admite I have tears.

Gill I admire you Both (yep Stephen) am sure it was hard near the end but you have both faced it with immense strenth/courage and Love, and for that I and many more folk on here and that know you both will be eternally Grateful.

I also am…[Read more]

Hi Vicki and colin

Well done on getting the funding but its a shame it has to be fought for >:-(

The other dose of cyclophosmahide if it is needed then its a case of OK throw it at me I and everyone else that gets near me will suffer for a few days :-S so let them all Be warned 😎

Tell Colin to stay Posative as its the only way to…[Read more]

Hi Tina

Wow you have got it all down to a T and am sure it will all work out keep strong and fit(ish)

Love and Hugs

Tom "Onwards and Upwards" xx

Hi Les

Thats the way to rock 😎 wishing you luck for getting off the velcade and kidneys up and running smooth.

Tom "Onwards and upwards"

Hi Mavis

I do not think you can be to relaxed about constipation,as it will create all sought of problems.
Slim got to the position needing ,Movicol Laculose plus Senna tablets,even now I nag him about his bowels,Movicol Twice a day will help your bowels to work at moving the contents,rather than just getting rid of it,so the bowel will work…[Read more]

hi Cathy
Have you found some peace of mind with the knowledge you have gained????
It is hard Cathy,and upsetting to watch some one you care about going through this,but at the end of the day,is there much choice,you just have to not look to far ahead and think we will get through this,you keep asking questions.

I know there are people on here…[Read more]

Hi Mavis,

I have no qualms about calling myself an expert when it comes to the dreaded constipation. I have had some really bad times which included a lot of pain, stress and absolute exhaustion.

If you are prone to being constipated then take at least one Movicol – Laxido powders once a day. If you feel it is taking hold then take three a…[Read more]

Hi Andy
It is madding when you travel a long way,only to find it is a waste of time, lets hope it improves.
Andy since there is a chance Slim might go on maintenance for Zamiza,i started to read up on it with the Myeloma Beacon some interesting trials,one being Velcade and Zamiza,might be worth looking at as Zamiza is a prohibiter, that breaks…[Read more]

Gill i am so sorry on your loss of Stephen, i havent been on for a while but do check on you all. It always saddens me when we lose another. Mum was agitated the day before she passed, they say it does happen, mum was also given something in her drip they did say it wouldnt help her on her way but it would just help her sleep so that she would…[Read more]

Hi Gill,

My thoughts have been bent towards the two of you for weeks and especially for the past few days. It was yours and Stephen's 'voices' that were the first to speak to me when I discovered Myeloma UK… brave voices, bright voices and you strengthened me more that you will ever know.

Now Stephen has slipped off the radar, peacefully,…[Read more]