Menthonfan posted an update 9 years, 6 months ago
Hello – well it has been a long journey but I have come through the long tunnel of treatment & SCT. For the first time in a very long time I feel really well & enjoying life! My consultant is recommending that I go on Velcade as my maintenance drug. I received Velcade + Cyclophosmide as drug therapy which was very effective getting my…[Read more]
Menthonfan started the topic Starting again. in the forum Newcomers 11 years, 1 month ago
Hello. Started treatment my CTD treatment 25th March which coincided with my being ill with a virus. Ended up in hospital for 1 week with heavy dose of antibiotics. The good news is that the thalidomide part of the treatment has already reduced my para-protein but have to wait a while to recover before I resume my CTD treatment.
Seeing my…[Read more]
Menthonfan replied to the topic Start of treatment journey in the forum Under 50s 11 years, 1 month ago
Hi and thank you for your message with very inspiring words. Started my CTD treatment and unfortunately really dipped after coming off the steroid dosage – very low blood pressure and generally feeling worse than ever (takes being ill to a new level).
Hopefully a blip and I'll have some tweaks with my drug plan. Weirdly I have very sore,…[Read more]
Menthonfan replied to the topic Start of treatment journey in the forum Under 50s 11 years, 2 months ago
Thanks Alex and very grateful for your words. Just starting my CDT treatment today and working out what I'll be able to do physically (feeling pretty washed out today) and emotional.
Luckily I have had a good winter health wise but now feeling the physical changes due to myeloma. I know it won't be for ever with 5 months treatment then stem…[Read more]
Menthonfan started the topic Start of treatment journey. in the forum Under 50s 11 years, 2 months ago
Hello. I'm a lady of 44 with a brilliant husband, gorgeous 11year old boy and beautiful 9 year girl. February 2013 told I have mm. Emotions have been random, from standing tall and strong to being emotional and sad. I am starting my treatment on Monday and here my journey starts. I yearn to be strong and determined but I'm not in that place…[Read more]