[MenthonfanParticipant]

Hi and thank you for your message with very inspiring words. Started my CTD treatment and unfortunately really dipped after coming off the steroid dosage – very low blood pressure and generally feeling worse than ever (takes being ill to a new level).
Hopefully a blip and I'll have some tweaks with my drug plan. Weirdly I have very sore, painful bruised feeling as if my senses are over active and I guess things can only get better. My daughter seems to have blossomed the last few days and went with her Auntie to get some girlie treats – you do see your family in a new light and treasure them more.

[MenthonfanParticipant]

Thanks Alex and very grateful for your words. Just starting my CDT treatment today and working out what I'll be able to do physically (feeling pretty washed out today) and emotional.

Luckily I have had a good winter health wise but now feeling the physical changes due to myeloma. I know it won't be for ever with 5 months treatment then stem cell.
So you probably know that I may have highs and lows (less lows I hope). By the way how did you manage work, family life and time for you?

I'll email the others names and be happy to get involved!

Take care and thanks
joanna

[Author]

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