[MikeTallParticipant]

Hi Penny, I was diagnosed Feb 2010 and had my SCT Dec 25th 2010. My wife and I also have a blog that you may want to browse through at http://www.lornaandmickyour-loma.blogspot.com Having been through my SCT and also reading the stories of others on this thread, the only points I can make are that you should probably suck lollies as you have the Melphelan (high-dose chemo), as this will protect you from getting too sore a mouth and throat. This works by keeping the blood supply away from the mouth while the chemo works. I felt really well for about 5 days, even commenting to everybody that I didn't know what all the fuss was about. Then…….. I felt AWFUL for about 2 weeks, terrible tummy and feeling sick. I would say that you should prepare for a rough week or two, as most, not all, of the people I have spoken to have had some sort of sickness and runny tummy like I did. I can give you much more detail if you wish, just contact me by e-mail: mike.gormley@hotmail.co.uk.

[MikeTallParticipant]

Hi Eve, Thanks for your reply. People don't realise how easy this would be to do. All that is needed is for people who are registered to give blood, just request to be put on the british bone marrow register. If giving blood is not their thing, at least spread the word to other friends/ family and colleagues who may feel that they can help.
The actual process of donating Stem Cells is very quick and easy and is totally painless, and I am determined to get this message across. 🙂

[MikeTallParticipant]

Hi Ruth, I'm Mike and I was diagnosed Feb2010 and had high paraprotein levels. Mine was found via blood tests at the doctors.
Paraproteins are only part of the picture and up to 8 cycles (the number I had)of Chemotherapy is common. The response that he has had after 4 cycles I think is good progress. My paraprotein levels took longer than most to come down, and only got to 11 by the time they did collection of the stem cells for my SCT. It is better if possible to first consider an Autologus transplant,(one using his own cells)and reading your post, it still sounds infinitely possible that they can do this and just for now a donor won't be necessary.
I had my SCT Christmas day, and although it has taken me a few months to get my strength back, I am doing OK at the moment, so it is not all bad.
I really do think that you should contact either a Clinical Specialist Nurse at your local hospital or contact the number at the top of the page and talk to Ellenwho will give you all the advise and support you need.
If you still have questions I can probably answer from my own experience of treatment.
Mike.

[MikeTallParticipant]

Are you on Dex too?….cause that made me Michelin man

[MikeTallParticipant]

Whoopeee!!!….lol

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