Hi Sue

My mm husband, Stephen, came out from hospital over 2 weeks ago after receiving his 2nd SCT. He has not been very well since but we are plodding on.

Trying to get him on a Bendamustine clinical trial was mentioned after Stephen relapsed following his first SCT and his consultant was not aware that he had further stem cells…[Read more]

Hi Dai

I cannot imagine what it is like to have your daughter and grandchildren so far away mine two little ones are always here!! I have to go away to not see them almost every day!!! I am so lucky.

Chin up Dai you have a very talented and by the sound of your posts loving family.

sarah xx

Hi All & Sue Min Bridget Dia Eve Joe Mavis Gill and Min

thank you so much for all your posts. to try to answer some of your questions, i dont really know which mm gordon has, but he was dignosed over 9 years ago and after his 1st sct had 6 very good almost pain free years. he does not appear to have any kidney or bone damage and no tumours…[Read more]

Hi Dai

Well we do not need to ask were all that talent comes from:-)you have every right to feel very proud,this is what life is about,doing a good job.
I know the feeling of missing a daughter,one of my daughter,s live in New Zealand only moved out there3 years ago,taking two very young children with her,so journey home is not on the…[Read more]

Hi Sarah,
Just so sorry to here sct failed,i agree with Bridget it is a bstd illness,Slims on a low dose of Dex now and seems to be coping better with it.
I even let him drive now,before every journey was,like a nightmare.
Let us know how you get on. best wishers Eve

Hi Sarah

Sorry to hear that Gordon's second SCT has not done the trick. Stephen is seeing his specialist on Friday to find out if his second SCT has helped.

He is feeling quite unwell at the moment so I am worried that the news will not be good. I hope Gordon's new drugs help and wish you both luck
Gill xx

hi dai

what a lovley voice your daughter has you must be so proud of her,as joe says majorca is not far away. what a lovley talent to share with amy.

sarah xx

well i never knew cucumbers were so healthy! how are yours tom? mine are great never had red wine and cue's together, nice glass of rose will do the trick hopefully.

😀

Hi Tom
I won,t ask what you do with the cucumber ,the mind boggles!!!:-S
PS is it any thing to do with onward and upwards

Hi Gill

Welcome to this site, I think we have 3 Gills now so do you become gill20?
Sounds if they have caught you early with having mgus.
My husband has mm and is on Myeloma X1 trials he got cdt side on 5 cycle having 6 cycle then see consultant.Just had another bone marrow sample taken yesterday.Thing seem to be going in the right…[Read more]

Hi Peggy
My if you have not got enough on your plate and this has happened you must be devastated.What a start to a birthday.It will get better,I know that it does not seem this way right now,but there are people ahead of you with not just myeloma,but extra problems as well so you are not alone on this journey.

Its my husband with mm,I also…[Read more]

Hi Liz

Gordon is 7 months post sct his second, he is very tired and has bone pain he takes no meds, but does take tramadol for pain Hope Kev improves soon it does ge better just takes time.

all the best

sarah xx

Sorry Dai

I got the gist of your post wrong and thought you wanted an exact outcome of the procedure (I shouldn't post so late at night:-/

I hope all is going well Love from Gill xx

Hi Helen
Good to know your mum feels a lot better. Its very worrying at the start,but your mum will soon get into the routine of things,do keep posting,it might help your mum to post as well,there is light at the end of the tunnel.
There will always be people who can help you,with any questions, so good luck and keep in touch eve

Hi Helen

Sorry you have had to join this site,but you are welcome.
this is what the site is for to ask question,get support,and rant and rave if you wish.so welcome again to the big learning curve.

Ask your Questions on the other sites as,Re starting a discussion is not were people on this site look very often,you will be picked up ,on…[Read more]

"I just would have liked someone to have sat down with me and to have explained what might or could happen during the treatment and what, if anything, we could do to either improve the conditions if and/or when they arose… its not to much to ask… surely?"

I think that this b***tard cancer is so unusual and so individual that there is nobody…[Read more]

I too was hoping for posts from Jet. I think she was going through the mill about now. Fingers crossed for her Gill

Hi from one Gill to another. My husband has mm and I learnt very early to read posts and advice on here and not trawl the internet.

Gill xxx

Hi Gill

Welcome to the site,Its either you so shocked or it is a relieve that at least you know have a name to your illness,sorry you have to join us.
Ask any questions you need answers for,or thing you do not understand,look on it as a big learning curve.
I wish you a good journey eve