Hi Gina

Consultants often have brains but no common sense,sad but true.:-P

Glad to here your mums on the mend,and I hope the treatment goes well.
Been to doctors this morning,looks if Slim has infection,just waiting on results.should know by 5 this evening.
best wishes eve

So sorry Bridget

It might not have been his choice,but at least he did not die,without any body being able to say good bye,and you must draw comfort from that.
It is not very nice to know the powers that be can decide where your last days are spent!!!
Thinking of you in this sad time eve

Dear Bridget

I am so sorry to read of the passing of you much loved fil, I am saddened that he was unable to go home, i thought terminal patients had a choice as to where they wish to be at the end of life, silly silly me!! I did believe the hype no more!

My best wishes to you and your family at this sad time

with love sarah xx

Hi Everybody

Just had to tell you,my husband say,s the amount of tablets are a meal in it,s self:-P eve

Hi Bridget
Sorry to hear your news,It is sad,Usually when no more can be done,you see the Mac Milan nurse and talk about were you,would like to go.If he cannot come home,try for hospice they are wonderful places,so under rated.

I am a great believer in people do not die until they are ready,you still might have time to arrange it all .My…[Read more]

Hello Eve,

Thank you for your encouraging reply. It is so hard to see a loved one visibly shrinking before your eyes. David too was very fit, keen DIY'er, did all the jobs about the house and garden. To be reduced to the state he is in now is distressing him – he cannot even shave/shower/dress himself without my help, but he remains positive…[Read more]

Hello Bridget,
Thank you for taking the time to contact me. The reason the treatment is being changed is because they are not happy with the amount of improvement there has been, they feel the light chain count should have come down a lot more than it has. Having said that, at least there has been some improvement which is encouraging for…[Read more]

Hi Jollyroger and Chrissie

If its any help to you,I will tell you,I will tell you about my husband,
66 years of age fit and young looking,6ft 1 and 14 stone,4 cycle of ctd.now 5ft 8 and weights 9st 8lb.looks 20 years older.Had septic pnuemonia not pretty,but he is alive and improving every day although slowly.

It hard to cope with,I thought…[Read more]

Hi, I am too am new to the forum and a carer. My son gave his dad a big hug last July. It fractured a rib and crushed a vertebra and that is how our journey began. It took from July to February to come up with the diagnosis. What distresses me most is that my husband seems so much worse since he started the treatment. He has lost so much…[Read more]

I too am in some distress. My husband was diagnosed in February and what I find so difficult to come to terms with is the fact that he seems 100 times worse now than before he began his treatment. I am plagued with doubts. What would he have been like if he had never started the treatment?
He seems to have aged 10 years since diagnosis (he's…[Read more]

Hi y Min

So glad Peter is feelimg better. Very interresting to read about the novel potential way of collecting those little darlings, stem cells

From what I read there is a whole new medical word which will revolve round stem cells and the healing they may be capable, of for many nasty disieses (spelling)!

love to you both sarah xx

I have managed to register OK but I am very frustrated because I cannot work out how to start a discussion! Help.

hi Jollyroger

Yep, your in shock mode,We have all been there.One minute they are fit next minute seriously ill.I kept telling people he,s so fit!!!!!thats my husband by the way,lovely man than he is:-)

Sorry about your mum,it is very early days,t would be stupid of me to tell you not to worry,one bit of advice I can give you is,start…[Read more]

Hi Min

Hope things are working out for you,
Thinking about Peter and you wishing every thing goes well' eve

Hi Gina

Sorry to hear about your mum,you must be so worried,Low BP is a sign of infection,read my bit on bp.Slims infection was left to long,it seems if they have caught your mums in good time,you must have a good doctor.
I know you are worried,but fluids and antibiotics is the answer,through a drip because it works faster.do not worry if your…[Read more]

Hi Gill

Gordon had his 2nd sct at kings in december he found 2nd time round very difficult mentally and physically. He is in remission para protien 2 so feeling fairley well. cant help with the spelling i am a dreadful speller, we need spell check!!!!

hope all goes well with stephen

sarah xx

Hi Gill

I was thinking about you the other day,Its amazing the way you begin to worry when people do not post.Glad to here things are going well for you,

You never know France might be on the cards yet
wishing you well eve

Thanks Bridget and Dai!! 9 month waiting list for new hip gordon delighted!!! Men 🙁

With love sarah xx

Hi Vicki

What good advice you have just received,could not give you any more. Dai has a way with words,Bridget is always a comfort,and Tom a never ending soughs of laughter.Just what you need at this moment.:-)

Welcome to the journey,We are all ahead of you on this journey,I am a carer to my husband.Some times I loose the plot,I will not say…[Read more]