First chance to reply
Ward went in lock down today no new admissions place swarming with cleaners. Slims septic pneumonia is back, had 24 hour bug,on the whole much better,Test to see if there is an under lying infection.Doctor does not think it is directly related to mm,except concerning the body being at low ebb,to pick up infections.all the…[Read more]

HI Bridget,

You are all ways there to support people,in time of need,I wish you well and will try to follow your post to support you as much as I can.best wishers eve

Hi Angelina

gordon had 6 cycles of velcaide prior to his 2nd sct and apart from the dreaded dex seemed to sail through the treatment with few side effects, though nutrafils dropped and at times could not have velcaide. I am sorry that john is so poorly,and sorry i cannot help more, at least he is in the best place and being cared for.

best…[Read more]

HI Min
I also have just bought adele 21 i just love her voice and songs.

all the best sarah

Dear Bridget

Have just read your post, b….. housework should be banned, as should dust!
I am so sorry to read about the pain in your back and can only agree with everything the others say. We here in eastbourne have a great nurse specalist who i contact when i feel i need to, i am sure you have one too. Hope all she/he can put your mind at…[Read more]

just got in
THere is now a bug on ward number of patients infected Slim being one,was talking about shut down,doing all personal care ,picked up on antibiotics and fluids,plus potassium low.
exray not looking good patchy lungs,I cannot tell you how many people I have spoken too.Even Slim in one of his lucid moments,had a slanging match with a…[Read more]

Hi Min
The news is not great I am going to try to keep this reply short

After being discharged from A&e,then readmitted 2 days later on easter monday Slim spent 9 days in itu with septic pneumonia in both lungs,care excellent,
sent to general ward,as cancer ward would not accept him,hdu was not given as alternative.
First complaint wrong…[Read more]

Dear Eve

Congrats on becoming a wedded/honest lady:-) . So sorry to read of your very difficult time, men who would have them? I try to go with my gut feeling now, I think us 'other halfs' really get to know when something is not right I have ignorged gordon more than once and i am usually right, gordon now trusts me, i hope slim will do the…[Read more]

Thank you every one for all your Help

Had a tough week and a big learning curve,we got married on 26th of April instead of 28.th The hospital did us proud,cannot thank them enough,good job we did it then as Slim was a bit off his head the next day,and I am sure the Registrar would have said he was not of a sound mind.
Only managed one daughter…[Read more]

sheff
This is to you personally ,I need to Know more,I do not know if we can post are email address on here, but I do need some facts on this.
My husband was diagnosed in January on myeloma x1 trials ctd side.

He is in hospital at this moment in itu.getting better slowly from infection but what concerns me,is the mental state,I do not know if…[Read more]

Oh Kay I wish you had scrolled a little lower and read "from devastation to elation". Thank you for your kind thoughts and wishes but they checked again and Stephen [b]has[/b] got more frozen cells and they are viable He will be going in for a second SCT after all.

Hope you are well love from Gill xxx

So pleased that they seem to have got Slim's problem into touch. Let us know how it goes Gill xxx

Dear Mary

I am so sorry for your loss. Painfree and comfy is all any one of us asks for at the end, and the fact that he was able to tell you that he had enjoyed his life is really nice to know.

Love from Gill xxx

Hi Bridget

Why didn't they think to ask your friends on here? We could have told them about you (and the rest of us) being weird:-)

Stephen seems to be similar to you with mm. PP not too bad but boney damage very bad.

Stephen's consultant is not sure which way to go. He meets with a group of specialists regularly (TBM tumour board…[Read more]

Hi
thought you all might like to know,low blood pressure,indication of infection,it was not picked up on at a&e on Saturday,as dexi managed to hide the infection.Sent home what happened to this extra care for taking part in trials !!!!IF I had not phoned for ambulance Slim I dread to think what position we would be in,I would never have forgiven…[Read more]

Thanks Min
Will try 7up,,does not like flavoured water,a little bit better today although still not eating drinking small amounts.

Hospital tomorrow for bloods,the unit will open tomorrow,so I am going to ring first thing,see if doctor will see him,needs fluids inside him.
not so confused today,energy levels zero.
The problem with him,is he…[Read more]

How many ciders?,you enjoy them and have one for me

thanks Jo
Have managed to get rehydration powders and some energy drinks which I am mixing with drinks,that he likes.Also find straw is helping ,every 10 min I make him have a few sips,seems to be working,plus the threat of hospital,
First time Slim has not got out of bed,

Thanks again jo,it brings it home how this mm reacts so different on people

Thanks for reply
Hard to get fluid in Slim,has been so good about it for last 6weeks,has a sore throat,as drugs attack soft tissue,I know this is going to be a hard time,but the low bp is it normal ,
My daughter has found a chemist open and managed to get rehydration powder,plus energy drinks,having to put them in other mixers to make them…[Read more]