Gill replied to the topic Another Newbie!! in the forum Newcomers 15 years, 4 months ago
Hi Donna
I do hope that your dad get's more help from now on. Let us all know how it goes
Gill
Gill replied to the topic He has broken his hand in the forum Side-effects 15 years, 4 months ago
Hi Min
I am sorry that Peter has broken a bone and hope he mends quickly. Please write "all the best from Gill on the discussion group xx" from me
love from Gill
Gill replied to the topic Musings from Ward 9 in the forum Treatment 15 years, 4 months ago
To settle your cells and get then get them working try playing them pachelbel's canon. I cannot think of a more soothing and uplifting piece of music. It is easily found on you tube.
love from Gill
PS you are not aloud to like Elvis [b]AND[/b] Cliff it was a rule from the 50s/60s it is either or. You have to make your mind up 🙂
I was…[Read more]
Gill started the topic Food glorious Food. in the forum Off topic 15 years, 4 months ago
Hi All
I thought I would mention a frozen food company that might be useful for people who are dashing up to the hospital every five minutes and have no time to prepare a meal.(I have no interest in the business but realise this may be classed as an advert and removed)
Stephen and I both love to cook and do almost everything from scratch but…[Read more]
Gill replied to the topic Musings from Ward 9 in the forum Treatment 15 years, 4 months ago
Hi David
I am glad that all is going well for you and hope it continues. I got very frustrated trying to read your updates as I could not find them, then realised that you were attaching them to your original post which is a very good idea as it makes them easier to follow for everybody (except a moron like me!!)
Do post when you can…[Read more]
Gill replied to the topic Hope to speak to someone about Michael in the forum General 15 years, 4 months ago
Dear Roz
I am sorry I have not posted on your thread before but we have been away.
I just wanted you to know that I am thinking of you and Michael and hoping that he improves enough to come home. It must be hard not to have him at home but his medical team will only be advising what is best.
Love from Gill
Gill replied to the topic Another one in the forum Newcomers 15 years, 4 months ago
Hi Susan
My husband was diagnosed about 2 years ago. His spine was damaged by the mm and he could not walk without the aid of crutches. To get out of a chair or up from bed made him shout out in pain and I thought it would just get worse and worse.
After radiotherapy, chemo, steroids and an SCT Stephen's mobility has improved no end. He now…[Read more]
zasrs replied to the topic Finally joined new site! in the forum General 15 years, 4 months ago
Hi Nickie
I think you and i are almost at the same point in time with our ( understanably) grumby men!! sore bums and mouths!!
After gordons 1st transplant he could not tolerate milk except a very little in tea/coffee, from today he is eating rice pudding, breakfast cearals and milk as though he is catching up after the last 8…[Read more]
zasrs replied to the topic SCT in the forum General 15 years, 4 months ago
Hi Judy
Best of luck to you both, gordon had his 1st sct when he was just 50 and it gave him 6 good years of life,dayghter up theaisle the birth of 2 grandkids, after two years of other treatment now in KCH having his 2nd sct.
Such a b*** awful disease.
with love sarah
zasrs replied to the topic Seen surgeon but things didn't go his way in the forum General 15 years, 4 months ago
Hi Roz
I am so sorry to hear about all the terrible time you and michael are having thinking of you both and many cyber hugs to you both.
love sarah
zasrs replied to the topic Sugery????? in the forum Treatment 15 years, 4 months ago
Hi Bridget
Good luck with the surgery,and i hope you manage to get a lovley picture of you spine:-D
love sarah
zasrs started the topic treatments. in the forum Treatment 15 years, 4 months ago
HiAll
Gordon is now in his 2nd week at KCH he was here 8 years ago, the staff are 100 times better than last time. he is now beginning GCSF so hopefully this will kick start those lovley stem cells.
I hate to say this but i have been having a great time catching up on loads of great culture and christmas shopping i wonder if this is really…[Read more]
Gill replied to the topic Welcome! in the forum General 15 years, 5 months ago
Why is everything underlined ??
Gill replied to the topic Welcome! in the forum General 15 years, 5 months ago
Gavin I picked up your post on the old site and replied there hope you can get it
Gill
Gill replied to the topic Finally joined new site! in the forum General 15 years, 5 months ago
Hi Nicki
Stephen had his SCT in the summer of 2009. He was quite well through it all apart from the constant loo visits but very tired.
He managed to avoid the sore mouth bit by frequent teath cleaning with corsodyl toothepaste as well as using the corsodyl mouth wash supplied by the hospital.
A member on here has warned that yous…[Read more]
Gill started the topic I got here at last. in the forum General 15 years, 5 months ago
Hi everybody
Thanks to all of you for posting encouragment to get me here from the other site, and special thanks to Andy at the Webteam for getting me on.
It is bed time for me but I will catch up with all soon and get a photo on.
So nice to be here
Love from Gill xxx
zasrs replied to the topic Discussion forum categories… in the forum General 15 years, 5 months ago
Hi Min
I do agree but i am afraid like you i never remmber jokes the punch line:-( never!!
i have many friends who phone and offer support but i somehow get a lot of suppourt on this site cause we all know what it is like to live with mm.
I hope all the contributors on the original site make it over, we all need each other!!
best wishes
sarah
zasrs replied to the topic Welcome! in the forum General 15 years, 5 months ago
Hi Donalb
My friend debbie's hand is on my shoulder!! It is the only photo that i have that looks vagually reasonable hate having my phto taken, it was was at the end of a very long boozy wedding, i was not driving!8-)
Sarah
zasrs replied to the topic Welcome! in the forum General 15 years, 5 months ago
thanks web team i have managed a photo!! Hope all the other members of the discussion group make it over to the new site!!
sarah
zasrs replied to the topic KCH here we come in the forum Treatment 15 years, 5 months ago
Hi Mari gaye and elizellen
thank you all, and yes gordon is under steven schey great consultant, great suits!
all the best
sarah