Hi Maureen

Take everything they offer you it will help in the long run,I look back at the first time and thin how an earth did I do it,things also had to be changed at home,a shower instead of a bath,wooden floors in stead of carpet,the list went on and on,and some how I managed it.

This time I will not have all those problems but I am…[Read more]

Hi Leedslass

Sorry but I do not know you name,I see this is the first time on this site,how you ave managed without it,I do not know.
You need some form of help,but only you can decide,as good as family and friends are,they have no idea,what or how they can help unless you tell them.

This illness brings depression with it,not just for the…[Read more]

Hi Babs

1 year it soon passes,enjoy your holidays ,after last year make this year count. I envy you going to Australia ,we always said we will go there and hire a motor home and do the figure of eight.

Best Wishers Eve

Hi Jacquie

Congratulations ,just go with the flow,as every one says it is doable,harvesting stem cells is a bit of a haul,let's hopeitjust takes a day,things just fall into place from then on,all hospitals are different how they deal with SCT.

The only advice I can give you is,do not go out and buy new night clothes,plus take in you own cup…[Read more]

Hi Everyone and Dai

My name is Eve I use to be Slims partner for 31years,no intention of marrying felt we did not need it,how wrong could we be.
We married in ITU on the 26 of April 2011.

In Febuary 2011 my husband was diagnosed with Myeloma.

Slim and I are both retired,and have had a wonderful life are last 15 years have been spent…[Read more]

Sandie

I posted that 19 months ago and yes the second lump was mm. Stephen died. aged 57, on the 11th September 2012. He had mm for 4 years. He got very little remission. and 2 days after he was told he had 2 years left he got very ill and died within 4 weeks

Perhaps you don't read all the posts put on here

Gill

Hi Ali

You would be better you rang the myeloma help line t speak to Ellen or another nurse.!!!,

Every one on here can tell you there story but it will not help you .Go back to y our GP and keep pushing until you find out why your white cells are low,the problem with Myeloma is a GP. Might only come across 1 case in a life time and people…[Read more]

Hi Maureen

Well what can one say,it's one thing after another ,this is we're the family have to help out,even if it is just for an hour to give you a break.

In Ian,s defence he most properly does not realise how everything. Is taking its toll on you,but it does not mean you have to sit back and take it. You do have to find you own way of…[Read more]

Hi

Just something might be of interest to DAi and Jean,if I am correct you both have children on the isle of shep who both wrk in the prison service,Am I correct?????
Small world.Eve

Hi Jean

I did not need to shaves Slims head,but he did look funny with tiffs string out,in the end just cut them down to nothing,then it just went by itself down the plug hole.if you have the nerve you could do it yourself .Slim would not let me near him with a razor for his head or face.
Even in ITU a nurse offered to shave him,but would not…[Read more]

What a lovely post David Love from Gillxx

They should let me in the under fifties,then I could really let rip,and I feel like it after the day we have had,people seem to think because you have grey hair,you should not have an opinion ,and being 5 foot nothing does not help.

Just so angry,have had a few beer,s to relax me,but its not working.will have to try vodka,works for you…[Read more]

Hi Tom

His pubic hair never came back. Lol.Eve

Hi Peter

Since 2003 you have done very well pity about RT but if it solves the immediate problem,then it must be worth it.

10 years to anyone on here is all good news,the fact that you now need more treatment is a bit of a bummer,but that's what we are here for to support each other when times are hard,age does not come in to it.
Slims…[Read more]

Hi Sue

Well Sue the reason they say oh,and walk away,or go in as you come out,is they cannot face it and by looking away they think it will not happen to them,but when something like this happens to them,who do you think they will go to for support and advice,I am sure I do not have to tell you the answer.

I had a conversation with a…[Read more]

Hi Tom

We only live 20 miles from France,and they are so moterhome friendly,believe it or not its cheaper to spend a month in France,than a week in this in UK.So if we manage to go away it will be France.

Now Slim looks well,if anyone ask how he is I say fine,because if truth be known they do not want to know!!! And they don't want to know…[Read more]

Dear Ann

Like you and Eddie Stephen and I were soul mates, best friends, joined at the hip as the kids used to say. Stephen had had to stop work quite a while before he died. He was a carpenter and builder but of course the mm took its toll and he could not do the physical work that it entailed. I retired a year early so I could stay at home…[Read more]

Hi Min

I suppose the difference is you have been there I have not,I do not know how I will feel,that is yet to come,mt daughters think I will go off in the motor home,but you cannot say until it happens,at times I do wish I had my life back instead of being in this bubble,but I do know people who are no longer in the bubble but life has not…[Read more]

Well I can only speak as as Slims Wife,I dread it all coming back,and I do have my blue moments.

Slim is just the opposite he does not worry at all,but he does not sleep a lot ,when I ask him is he is worried it will come back the answer is no.
His attertude is ( I never expected to live until I was 28 so everything. Else is a…[Read more]