Vicky and Colin

This is we're you say to your self yes it was worth it,you just have to wait until his hair comes back curly.Eve

Hi Nicki

So sorry to hear the news,I suppose everyone waits for it all to come back,I have tried to define my f
Feelings from the very start,there is th Myeloma to get it under control,then the feeling of being in a waiting period kicks in,health wise my general health took a battering as Slims got better,we both feel the myeloma will catch…[Read more]

Hi Jean

All good news,it,s amazing the way time fly,s,will you have far to travel??.
I would take things in as needed if the room is small,found Slim would drink more out of his own mug.

Sorry have not Ben playing scrabble with you,using I pad as computer. Needs new battery,also have a frozen shoulder plus back problems so waiting on MRI…[Read more]

Hi Sue

My heart goes out to you,it must be hard on all the family Michael must be a very strong man,when this is all over you will look back and be glad Michael was at home,it must be the hardest thing you have ever done,try to rest .

I will be thinking about you and hoping,that Michael is at peace and you find your way through this…[Read more]

Hi Gina

The choice of drugs after relapse can vary on the trials after CTD comes Velcade has your mum had it,you might be able to ask if this is available for your mum,it is having good results,but only seems available on trials.

Melphalan is given to kill the cells,people have it as part of SCT,, Chris are you on any other treatment…[Read more]

Hi Vicky and Colin

Slim was randermised for no treatment ,before he was unsure of taking it but we decided t wait and see what the computer came up with,no maintenance came up,ad at first we felt he was missing out,but it has worked out ok,we go every 2 months to see consultant mainly because the Myeoma no longer shows u n bloods or…[Read more]

Hi Maureen and Ian
The hospital should be taking bloods on a daily bases if there is an infection,they do tend to give more tablets as a precaution,and this can cause Ian to be confused.when you go in check if his general ops are ok plus bloods,if you are not happy ask to see doctor who looks after him on a daily bases as consultants come every…[Read more]

Hi Tom;-)

All good news,but I swear you have more vodka than blood in your veins.8-) Slims just had another BMB as only way to tell what is going on,at the stage were you feel it might just give you a tap on the shoulder.

Lovely to hear,you have the all clear ,no wonder you went to Asda to buy more vodka Love Eve

Hi Tina

You are just behind Slim,he was randermised for no treatment ,but we are ok with that,we go to hospital every 2 months ,just to check every thing is ok.

slims just had another BMB as his. Does not show in bloods or urine,so 6 months BMB just to check it,s ok, will have results in March. Eve

Hi Robin

Myeloma is a cancer with no cure,but saying that your dad can have a lot of time in remission ,so all though it sounds bad,the more you learn the better you will understand it.Myeloma is such an individual cancer,and people react differently to treatment,one thing you will find on here is people who have travelled this path before…[Read more]

Hi Wendy

How are things going,glad to see India is still on the cards,but I would recommend you go Vedge for your stay,they have some lovely dishes,if you Like vedge they have some lovely food.

Have you started Velcade yet,hard to keep in touch now as I try only to look in these days,looked in today and saw lots of blank spaces,wrong that…[Read more]

Hi Ozzy
Slim use to get grumpy on the dex,I would have given anything for him to shut up,so I can understand how Gayle feels. LOL

Soon be over,apart from that is the Velcade working for you hiccups were the worst thing,still is very loud and we can be any were,its 8 months since any chemo treatment and the last lot was for SCT,but those…[Read more]

Hi Maureen

So glad things are looking up for Ian,lets hope it will not be to long before he can forget the wheelchair.
When Slim used a wheelchair it was hard to see how he would start walking normal again,but he did,it was the summer so it made it easier,I use to take him out very early to begin with,had extra weight because the dog wanted to…[Read more]

Hi Vanessa

Once you have had SCT you are again randomised for maintenance or not. My husband got no treatment,at first I felt he had lost out,but it does give you more time away from the hospitals.

He now goes for Zometa every 2 months boods and urint taken for trials plus we try to get appointment with consultant the same week,so that…[Read more]

Hi Vanessa

Sorry you have Had to join us.

I can only tell you the chemo keeps on working after the cycle is finished.

My husband finished chemo a year ago around Christmas and he had gone down to 6 he did not have his SCT until May I between all this he had another blood test taken and it was 2. I was worried at the time they were taking…[Read more]

Dear Grayham

This is not a club that anybody wants to join but if you have mm it is the best place in the world to get support and friendship.

The treatment for mm and the drugs that are coming on line are getting better and better and I cannot wait to see mm getting kicked into touch once and for all. Too late for my husband who died aged…[Read more]

Hi Grayham

Yes it is very scary,I think we all felt like that even careers,specially when they tell you there is no cure.we have all been there got over the shock asked the same questions ,my husband was like you,never took a pill or had a headache,well he has made up for it in the last 2years,our home has seemed like a chemist at times.

It…[Read more]

Hi Tom and Helen

I have always thought that soft tissue myeloma is very very rare ,there have been a few people on here with it usually discovered because of another reason,not looking for Myeloma.
Tom are you saying you have no Myeloma showing in bloods or urine?????
So are you looking for answers????
A Pet scan will show any Myeloma in…[Read more]

Thank you helen for doing a better job of explaining it than me,although I understand why Tom is thinking along these lines,I just felt it would give the wrong impression to any one who read it.

I would like to say,Slim has a lot of damage,tumour plus lesions on shoulders and skull plus all spine damaged but no compression ,plus Pnuemonia…[Read more]

Hi Keith

You must be so disappointed ,but they are prepared to still top you up with bloods and platelets,so that must count for something,When do you see the top man again???
They are trying to give you the best chance of this working,if they are prepared to do it,you have to go with the flow.
Anyway who wants to go on holiday with all this…[Read more]