Gill replied to the topic Jose Cuervo Christmas Cookies in the forum Off topic 11 years, 11 months ago
Shanks fer dat. I followed all instructions please wake me when overhang? hang something? recedes into just a thumping head and an unquenchable thirst. Oh thats better more cuervo to quench my thirst xxxxxxxxxxx
Gill replied to the topic Best Wishes to you all in the forum End of Life and Grief 11 years, 11 months ago
PS I think the quote is "Here's Looking at You Kid" Come on film buffs Casablanca?????? Gill xxx
Gill replied to the topic Best Wishes to you all in the forum End of Life and Grief 11 years, 11 months ago
My house is at 36 Bridge Road BR5 2BH Telephone 01689 821467 Any body is welcome unless they have evil ideas In which case my Guard Dogs will see you off 2 soppy little Westies (but don't tell anyone. Let's pretend they are killer huge dogs rather than both under 12 inches high and want you to love them to death
Stephen MADE me promise…[Read more]
Gill started the topic Best Wishes to you all. in the forum End of Life and Grief 11 years, 11 months ago
It is such a hard time of year for all of us who have lost a loved one. I know that I am still trying to come to terms with the fact that my darling Stephen (died suddenly September 2012 aged 57) will never come back to me.
One of the things that Stephen left me I class as a pain in the? Rear end is polite 2 naughtie little West Highland…[Read more]
zasrs replied to the topic So Alone in the forum End of Life and Grief 11 years, 11 months ago
Hi sue
Have just read your first post I am so sorry that you are and Michael are are in this difficult place as I retired district nurse I urge you to contact them in many ways they are better at pain control than the gp we use to tell the drs what we wanted. Disttrict nurses also work 7 days a week. When Gordon came home for the last time I…[Read more]
zasrs replied to the topic Bereavement Counselling in the forum End of Life and Grief 11 years, 11 months ago
Dear gill
I too had counselling 6 months after Gordon died I was quite looking forward to talking to someone to try to understand how I was feeling and maybe give me some coping strategies. How stupid of me! I had 3 phones calls approx 30 mins each with someone who sounded as though they should have still been at school! What a waste of money,…[Read more]
eve replied to the topic Lowest Platelets On Record? in the forum General 11 years, 11 months ago
Hi Keith
Alarm bells start ringing at under 20,Slims went to 17, need platelets below 20' your blood is low to,so I see a transfusion coming,give you some strength for Christmas ,it,s worth it Keith,try to have a good Christmas .love eve
eve replied to the topic Happy Christmas and a HEALTHY New Year to you all in the forum Off topic 11 years, 11 months ago
Wishing you all a happy Christmas ,and for those who are going through a bad time,I hope things improve,my thoughts are also with the people who have lost loved ones,and people who are near the end of there journey .
New Year. Will for me a journey going back home,leaving NZ at 23.59pm so we will pass many countries welcoming in the new year…[Read more]
Gill replied to the topic Second anniversary visit to haematology in the forum General 11 years, 11 months ago
Dear Helen
Don't ever feel "mean" posting good news. My Darling Stephen died in September. He was one of the unlucky ones.
It is great to hear of people doing well, and makes the possibility of seeing this horrid illness kicked into touch for everybody seem a little closer.
Good luck and good health Love from Gill xx
eve replied to the topic At a low point in the forum Carers 11 years, 11 months ago
Hi Sue
Well I think this is worst it can get the only way is up now,surgery done,see how his mobility goes,do not be afraid to use a wheel chair until he feels a lot better, then start on the chemo again,he is not the first and will not be the last.
As for him feeling low,it is understandable,try to do something every day,even if its just…[Read more]
Gill replied to the topic HOW DO YOU REPORT ABUSE OF THIS SITE? in the forum Off topic 11 years, 11 months ago
Thank you
This site is a life line to so many and a place to grieve. Thanks to all the team
Gill
Gill replied to the topic Peripheral Neuropathy in the forum Side-effects 11 years, 11 months ago
No magic wand from here I am afraid. What did help Stephen a little was keeping extremities extremely warm (excuse silly choice of words)
Feet soed in warm water,loose bedsocks etc.
I wish you both well Gill xx
Gill replied to the topic HOW DO YOU REPORT ABUSE OF THIS SITE? in the forum Off topic 11 years, 11 months ago
I have calmed down now but just wondering how they got on here Will we have a cure next? Snake oil methinks;-)
Gill xx
PS to Tom go into general and look for the post headed passports
Gill replied to the topic HOW DO YOU REPORT ABUSE OF THIS SITE? in the forum Off topic 11 years, 11 months ago
Thanks for your thoughts Jean.
David I forgot that the site has moderators. I know that when I first joined I read that we are pretty much left to monitor ourselves and people generally only use "indoor language" with an occasional asterisk thown in.
But I was fuming when I saw this advert this morning
Love from Gill xx
Gill started the topic HOW DO YOU REPORT ABUSE OF THIS SITE?. in the forum Off topic 11 years, 11 months ago
Are the adverts being posted on so many of the topics being monitored? If not how do we report abuse
eve replied to the topic So Alone in the forum End of Life and Grief 11 years, 11 months ago
Hi Sue
It must be very hard for you at the moment ,people do not know what to say,must find it very hard to send a card,wishing you a happy Christmas,but as Gill said we do understand what you are going through. At least you have your daughters around,I would suggest if you have a good friend reach out to her,no one wants to upset you,but if…[Read more]
Gill replied to the topic So Alone in the forum End of Life and Grief 11 years, 11 months ago
Hi Sue
The first thing Stephen was told when he became ill was that pain management is the highest priority. Do get on to Michael's medical team and ask them to re-assess his pain control drugs.
It cannot change much for you or Michael but I am sure that you know everybody on here is routing for you both.
Love from Gill xx
Gill replied to the topic Sore tongue advice in the forum Side-effects 11 years, 11 months ago
Do check with the doctor but Stephen used Corsodyl toothpaste and mouthwash during treatment (not good to use it on a long term basis but it really helps)
He managed to get through all treatment with not one ulcer or mouth problem.
Good luck from Gill xx
Gill started the topic Bereavement Counselling. in the forum End of Life and Grief 11 years, 11 months ago
I do realise that this may not be for everyone that has lost a loved one, but I thought I would tell you of my experience.
We have a local Hospice Care facility (just 10 minutes away from me). They do not take inpatients but run day clubs, coffee bars, quiet lounges, a library, cafeteria etc.
They have a small medical team led by by highly…[Read more]
Gill replied to the topic Second Stem Cell Transplant in the forum Treatment 12 years ago
All I can do is wish you tremendous luck with whatever you decide. As Nettie said this is such an individual illness, and with that comes very individual decisions
My husband only got 16 months remission with his SCT and the second did not take. He regretted that he went for the second but said that hindsight is a wonderful science and we both…[Read more]