Dear Sue and Michael

What a brutal way to give you both news which we all know will come one day but hope against hope that we never will hear.

I was told to take Gordon home, I thought we would have some time together at home to talk and say things we had not yet said. It was not to be Gordon shut us all out and died within 36 hours of…[Read more]

Dear Gill

I can only agree with Mavis Min and Eve. Friends and in many cases family have no idea what we are going through, I think some of them think 15 months on I should be over it whatever it is. I first met Gordon when I was 16 he died when I was 58 how on earth does anyone think those years can be passed over. Gill the ache does improve…[Read more]

Hi
I have come on to comment because I so admire you fight against Myeloma,here you are three people who have gone through all this treatment and are still in there battling.

I know you all have no choice if you want to live,but its the stamina I suppose I admire,any body reading your posting,and not know much about your treatments,must be…[Read more]

Hi Gill
No it is not suppose to be ok,far from it,its learning to cope with the fact that people,do not know what to say to you,and by saying nothing,in vase they upset you,they do not realise this hurts more.
As you know my daughter lost her child Matty,and she has got to the stage she puts people in colours RED AMBER and GREEN
Green are…[Read more]

Hi Tina

I know I felt the same way about Slim,it seemed like you have had it get on with it,but who is in charge.

It hits you after a length of time in hospital,they do realise this,but I think everyone would agree you will make better progress at home.
I would say follow procedure extra cleaning,fresh towels plus being careful about…[Read more]

Hi Everyone
Well I feel less stressed out just reading these posting,so may be that is the answer come on here and talk about it,because the people who reply are all in the same boat,and if they are not,some time in the future they will be.So we help each other.

David I loved the bit about your grandson,same as one of are grandsons,he wants…[Read more]

Hi Marlene

This is just to say hello and welcome.

I cannot help with your questions,but I am sure someone will come on and give you some answers,may I ask how long was your husbands remission and what arm of the trials he was on.?????est of Luck Eve

Hi Sue
You are right it could have been approached in a different way,people say when you have news that shocks you,you only hear what your mind will accept.So may be no matter which way it was put,it would have had the same effect,

I do not think any one can give a person a time limit,yes they can say,the treatment is no longer working,and no…[Read more]

Hi Sarah

I think Dai is right concerning the chest infections,when henry had the SCT he was given lots of tablets to stop different infections,I am not talking about normal antibiotics,in theory if Henry has been treated with antibiotics plus steroids,his chest should clear up,unless he has damage to his lungs.

You must trust your own…[Read more]

Hi Dai
Do not worry I do not take everything to heart,lol!!:-P

You have managed without knowing it explained a few of the things that have been bothering me for some time.If I may explain.

1 Slim was a commando marine for 24 years.
2 Slim also been a diver for for well over thirty years,professionally for
about 6 years when he…[Read more]

Hi Winston

No not much help,I am more interested about the run up,because I am assured,the bloods,will be the first marker,so how did you get in the position of compression on the spine???,as I said they should have discovered you going out of remission,I have my own reasons for asking,can you help.

Hi Dai
With out taking over Stan and Mary,s thread I would slightly disagree with your figures,If they could only find why some people respond well and others do not,I can honestly say I do not know if Slim will get 6 months or 6 years,and i do not think the experts know either:-P

As for stress,mine was because I found people not doing the job…[Read more]

Hi Winston
Welcome to the club,2003 until 2012,that not bad going at all,sad you are of remission but you gave it a good run,what did you first treatment consist of. 7 years which in it.s self gives everyone on here some hope.

I would have thought as they new you were in a situation,that they new it would come back,how did it get to the point…[Read more]

Hi Polly

Well you are getting there,do not mention the pharmacy:-S :'-( >:-(,this is the one thing you will have to look forward to at the start of each cycle,in the hospital we went to they just could not get there act together,I can honestly say the drugs came up to the unit on time only once,and they would not even let me collect them,its…[Read more]

I hope your dad's funeral is a great celebration of his life. Good luck and keep strong for your dad

Love from Gill

Well put Dai

I think you do go through a time when you want to scream at the world,but you do get past that,and just think we will make the best of the time we have.

Mentally over the last 2 years I have mourned and buried Slim,looking back on it,I think it was just a way of preparing myself when he was very ill.We have talked about it and…[Read more]

hi Peggy

Well all I can say is when we went up to Kings and went through the procedure with a doctor,nothing went as he said,different appointments came through some were done before stem cells taken some after!!!! Must admit i felt as confused as you,we had a similar conversation,after what we were told and what did actually take…[Read more]

Hi Cathy

Nice to hear from you,Ivan has had a rough time of it so it might take a bit longer than most to make a recovery,Slim is 5 months past SCT and is only just starting to gain weight,and still is occasionally sick.

What sickness tablets is he on??? Slim had a few different ones,its hard to eat when ever thing taste awful,if you cannot…[Read more]

Hi Jean

Sorry can not help with the low temperature, but Slim had swollen feet,as Tom said you can get socks with loose tops it helps,I use to use Coco Butter Milk on Slims feet,a massage ever night use to help,got the circulation going,swollen feet are painful.Needs to get those feet up high a pillow under his lower legs of a night,but make…[Read more]