Hi Maijic 30

Reading your husbands history,he has had thalidomide ,then Velcade then pomilidomyde has had his STem cells harvested,then Polidimide and because he has an agressive Cancer they are recommending he has DT pace,and in between this he has had pneumonia!!!!! Plus he has had compression on his spine,hence radiotherapy.

He has age on…[Read more]

Hi Newbies

As a very oldie on here may I suggest instead of joining on some ones post,you start your own post,telling people who you are,what hospital you go to and what treatment you are having,plus of course any problems. This will help people to help you in person!!!!

When I first came on here,some one posted. WHO THE HELL ARE YOU!!!!,I…[Read more]

Jan

That’s the way to go!!! No regrets enjoy what you have and never give up hope.

The fact is no one knows what lies in the future,just enjoy and never give up hope,it will take people a long way,and every day is a bonus. Love to you all.

Hi Kaye

It was my husband who died,and it was a long slow death,so when you are not expecting it,it’s harder,grieve hits you very quickly and brings out all sought of emotions.

It is very hard for anyone to speculate what went wrong concerning your mum,if you write or ask to see her consultant I am sure he would explain why it was not picked up…[Read more]

Hi Kaye

I am so sorry for your families loss and for the way the Myeloma progressed without being spotted,I personally think people should learn all they can,and not have this blind faith in doctors,at the end of the day,they are just trained people,and family should ask questions,even if it’s only for your peace of mind.

When people are…[Read more]

Occupations have been talked about concerning Myeloma,

If you think about it chemicals exist in basic materials for every day use,for example wrapping on food,which is put into a microwave !!,

Jobs that you have done in your life ,Farmers service Men,anyone who came into contact with Chemicals,I think why there is no direct research into this is…[Read more]

Hi Jan

How are things,!!! I do not post so much now but look in to see how everyone is doing,and looking at your post I thought you needed some surpport at this stage you are at!!!!

The doctors are telling you to prepare yourselfs, and it’s not a bad way to go,because if this does happen at least it will not be such a shock as last time,and…[Read more]

I hope Slim’s funeral went really well, and was a real celebration of his life. Gil xx

Hello Everyone,well it’s 6am,and today I am coming to the end of a journey!

Last day to make sure every thing goes right,visited Slim yesterday,and took masses of Sunflowers to line his coffin,if you have followed this journey you will know how much we enjoyed France and the fields of sunflowers,they represent a big part of our lives together,all…[Read more]

I will be with you both tomorrow and I hope it is a wonderful celebration of Slim’s life. Don’t forget a straight back, determination and a pocket full of tissues.

When Stephen died my daughter flew over from the States. She was devastated that she did not arrive before Stephen died, but she said she was there to support me. Bless her she sorted…[Read more]

Hi Gill

Reading your posting,you could have been talking about Slim, Stephen and Slim must have come out of the same mould. Lol

One of the people from the past described Slim as a gently giant,that was her memory as a little girl.
I had to stop and think about the way she saw him. The last four years took there toll as he fought to stay alive,…[Read more]

Dear Eve

I am truly sorry to hear of Slim’s death. Stephen died nearly 2 years ago. Sometimes it seems like a lifetime away and sometimes it feels as though it was yesterday.

Like you and Slim there was nothing left unsaid between us, and as for regrets? I have none. (as long as you don’t count the fact that he got this bastard disease).

For a…[Read more]

Hi Mary

We have lovely nurses on this site Ellen and Maggie,the number is at the top of the page plus it’s free,talk to them,they can send you booklet plus give you lots of information.

When someone is first diagnosed,it’s very hard to take in all the information,I had never heard of Myeloma,try not to go looking on the net until you can have…[Read more]

Thank you all for your condolences

Although expected it still seems so unreal.at the moment I am ok as I have said earlier I have no regrets,it’s a comfort to me that Slim lived and died just the way he wanted to,many people specially in death,do not get the death they wanted,plus many things are left unsaid.

Slim wanted a non religious…[Read more]

Hello Martin

With the amount of damage to your back,I would expect you to have been in sever pain and needing medication for it!!!

The consultants must have done a Skelton ex ray plus MRI,scan which show the damage,if it’s pain from that area ,there should be some relief as chemo does the job of removing cells,but if it’s the bones crumbling as…[Read more]

My husband had 2 SCTs in 2010/2011 we were told that the cost of each was £30,000 We were fortunate enough to have private health care and the bills we received were for food etc in the hospital.

I am still not sure who paid the cost of the SCTs but I think they were on the NHS.

If they have stopped funding transplants on the NHS I would sign…[Read more]

Hi Angeline

I have to ask how long is a piece of string!!!instead of thinking how long will it last,think how long you are going to have your Dad.

People choose there own time and own way to die,embrace it and do all you can,it might sound a bit old fashioned ,these days we hide it away,in hospitals homes or hospice,I am not knocking it,it…[Read more]

Hi John

You do not give much info on your dad age treatment and so forth!!!!!
So it’s a bit hard to reply????

I can say when you have Myeloma you just want to get on with treatment,people react different to treatment even to the point of treatment being changed!!

Your dad asking for a month off means he is having problems find out what the…[Read more]

Dear Helen

What’s ironing lol!!!