Thank you all so much for your kind thoughts and wishes

We are changing [b]nothing[/b]! We are ignorinig the fact that Stephen cannot get out of a chair without crutches and me heaving him up and almost falling over (we laugh! What a pair we have become)

We are trying the best we can to keep life as it was and is and will be for as long as…[Read more]

Hi Bill

Just been catching up on site and noticed your posting.

I do not know about infections with Revlamid but I do in general once you start chemo,you do have more chance of infection as your body is at low ebb so more prone to infections.

My husband contacted Septic Pneumonia,that put him in hospital for 22 days 9 in ITU ans left him…[Read more]

Hi Jo
I was so fed up with not having a break,and waiting on the results,I thought good or bad we will do something.So we went to France in the Motor Home only down to Le Treport,came home Thursday,saw consultant Friday,had booked a last minute cruise last week to the Fjords in Norway,leaves Dover Sunday just 7 days,So happy days.:-D 8-)…[Read more]

Hi Amanda
Welcome to the site,this site can help in lots of ways,at the moment both of you must be in shock and information coming out of your ears.
As your husband starts this journey,my husband has just finished the first part after having a SCT and is in full remission.which we hope to enjoy for as long as possible.8-)

My husband is on…[Read more]

Hi Mari
I have not been on for a while and you soon loose touch with present day situations,so I did not know how things were going.its a pitty it was not done during the school term as this would have been far better for you,but who gives a s–t about the patients not the men in the grey suits,they do not even give a s–t about there staff,It…[Read more]

Hi Andy
I would love you to come on here and say my pp are down I can look forward to SCT,and I can understand your frustration,Slim has taken a long time to get were he is now.We have the added problem,that month by month we could not tell if it was working,only the BMB were giving us a true reading,with the experts telling us this is very…[Read more]

Dear Gill
What can I say,drinking champagne last night,with are good news,that no Myeloma cells have been found in Slims bone marrow,and reading your news on Stephen,we are not so many worlds apart,I know you are my future,which I intend to leave behind as long as possible,and Min is your future,a year down the line.So this is are Myeloma World…[Read more]

Thank you everyone for your good wishers,we are so looking forward to going to NZ and going off in are motor home,and of course the cruise which will be a first.

When this Myeloma struck it took so much away from us,but I still felt lucky that we had done so much with are lives before Myeloma Land.
I always feel that some good must come out…[Read more]

We are now on the "home run". Stephen's oncologist was shocked at how quickly Stephen has deteriorated. Long consultation tonight meant that Stephen quietly put his foot down with a firm hand (just one of our family's silly sayings)

He had been offered E-hap/Dee hap (I am sure I have spelt them wrongly and/or a very high dose of Bendomustine.…[Read more]

Hi David
What a bummer,I have thought for a long time,you were preparing yourself for something,but I did not think this!!!!,do you think there might be someone sitting up there looking down,saying well you are having things to easy,I,ll give you some thing to think about?????

Well you show them David,if you can get through the Myeloma,the…[Read more]

Hi Cathy

7 days into SCT,sickness is what you can expect,have they not given you books to read about the procedure????.
It is not very nice to watch,but your husband will come out of this ok.
The reason the nurses have little contact is they try to keep him and other patients germ free,going from one isolation room to another,brings its own…[Read more]

Hi David

I have not logged on here much lately as Stephen is so poorly and needing a lot of care.

I am so sorry to hear your news.

What a bitch this life can be.

Love and kind thoughts to you Gillxxx

Hi
Found it.Eve

Hi Sue

Nice to hear from you,glad you have settled down and are coping with your diagnoses,many people on here are still at this stage for many many years,so lets hope as time goes by,your check ups will seem a bit easier.Although i know you must worry when the time comes round to be checked.

I do not think this worry leaves any one even…[Read more]

Hi Tom

Thought you were kidding when you said you needed character references,lol:-) fancy that if I had known you were serious I would have given you a glowing reference.

Any way good luck Tom although you do not need it,I hope you have ordered your mm tea shirts,if I am correct the show is based in Bristol lots of mm members around there…[Read more]

I know my spelling will not be good but sore mouth = corsodyl tooth paste and mouthwash

2 Stem cell transplants and Stephen got one very small mouth ulcer. Helped by Rinstead pastilles.

The old remedies are sometimest the best.

Good luck and good health to all Gill xx

Stephen has had mm since 2008 he was diagnosed at 53 Recently he had symtptoms of brain cancer and his team looked and looked again (I love the team that work on his behalf)

What they have found are 2 little blighters in the base of his skull. Not good but nott quite as bad as in the brain

Now your mum has been diagnosed she will get the…[Read more]