Gill replied to the topic Holiday Insurance in the forum Off topic 13 years, 9 months ago
As David said things get lost so I will put in my tuppance worth again. We used MIA the first time we went away after Stephen was diagnosed. Then we discovered we were covered for travel on our health insurance policy. So we had paid twice for the first trip >:-(
Do check your existing policies before you pay out.
Bon Voyage Gill x
Gill replied to the topic advice on when to go back to work after SCT in the forum Newcomers 13 years, 9 months ago
Tina my advice would be [b]Don't[/b]. If you are desperate for money you may not have a choice, but if you can trim down your living costs then just cocentrate on getting better.
It's my husband that has mm I signed off work with stress when he was first diagnosed as he was so ill then. After an exemplary record of attendance and decades of…[Read more]
eve replied to the topic restless feet in the forum Side-effects 13 years, 9 months ago
Hi
I agree with John and Sue
Slim never got it until after he finished Velcade,he had Amitriptyline 5 to help him sleep,then when he was in Kings they gave him 25 and said it was a form of PN,I bought the Palmers cocoa butter Slim very seldom complains of his feet now.
I also get Polytar for his skin and must say since he washers in it,has…[Read more]
eve replied to the topic PLATELETS in the forum Treatment 13 years, 9 months ago
Hi Gill
I did not know what a banshee was either,heard the saying!!!!:-)made me laugh
Gill I know I am over the top when it comes to Slims eating,years ago he ate like a horse,but he is down to 61.8 k my daughters are all going on diets to stay below his weight.LOL.
For every ounce he looses I gain,I eat to keep him company,because eating is…[Read more]
eve replied to the topic Back home in the forum General 13 years, 9 months ago
Hi Andy
That is why I asked were you are having treatment!!!,At the end of the day how do you feel about your treatment,There are Trials going on in all the major hospitals.
If you put Trials in the search engine on here it will come up with all trials plus were they are,If you ask Dai he will tell you his experience of not having the best of…[Read more]
Gill replied to the topic restless feet in the forum Side-effects 13 years, 9 months ago
Have you looked up neuropathy That can be caused by treatment. Tingly feet and hands and aches
Gill
Gill replied to the topic PLATELETS in the forum Treatment 13 years, 9 months ago
I am so pleased that Slim is a little better . Stephen had platelets too it seemed to be the norm. I know that I get boring with my home spun ideas (couldn't spell phylosophy) but food is best served very little and often. Served on a tea plate it gives the illusion of tiny and doesn't overwhelm I am sure that Slim will go from strength to…[Read more]
eve replied to the topic Back home in the forum General 13 years, 9 months ago
Hi Andy
I noticed you joined the forum in Feb this year,but started treatment in Oct 2011,I have followed your different treatments,I am just surprised they do not seem to give them much time to work,I say this because Slim started treatment in January 2011 and was still having chemo up to the Christmas2011.
It took a long time to get that stage…[Read more]
Gill replied to the topic And yet another 3 months! in the forum General 13 years, 9 months ago
Well done you. Don't forget to check your existing insurance policies (we found Stephen was covered for travel without any extra premium) If not try MIA they covered Stephen before we looked at our existing policy :-/
Gill
Gill replied to the topic Back home in the forum General 13 years, 9 months ago
Here's hoping that the rev and the dreaded dex do the trick
Dex for breakfast? I think I would rather stick to my toast and chunky marmalade washed down with a strong cup of coffee
Love from Gill
Gill replied to the topic Good News X Two in the forum General 13 years, 9 months ago
So pleased to hear your news Good luck yo you both
Love from Gill xxx
eve replied to the topic PLATELETS in the forum Treatment 13 years, 9 months ago
Hi Vicky
I think it is a man thing,but without meaning too you do as a carer tend to take over most things, It is there body. I suppose it,s just instincts to want to help and make them get better.
So he becomes the stubborn grumpy old man,and I become the nagging,fussing old lady.[it,s a very fine line]
Slim has an ally in Tom,but I think…[Read more]
eve replied to the topic Maybe a Good Idea??? in the forum Off topic 13 years, 9 months ago
Hi Gill and Wendy
I think it,s not until you start looking back,that you begin to wonder if you remember it as it was.!!!!
When Slim was in ITU they offer you a dairy that they will right for you,because you cannot remember anything about it,so you loose so many days.
Some nurses think its a good thing,that you have no memory of it.If you…[Read more]
Gill started the topic Maybe a Good Idea???. in the forum Off topic 13 years, 9 months ago
Stephen (my Husband) has had 2 transplants and is now on Bendomustine with a hope that if it fails Pomlidomide may help.
He has had some (not huge) reactions to all the drugs that have come with this latest stage of treatment (some of the drugs are old horrid friends eg Dex)and we both found ourselves wondering what the affects were last time.…[Read more]
Gill replied to the topic Second SCT in the forum Treatment 13 years, 9 months ago
I wish you both huge luck I know well the journey to Kings I went from Orpington to Denmark Hill and trudged down that blooming hill to Kings with all the "tempting goodies" I could think of. Trudging back was lighter with dirty washing, mainly PJ bottoms (too much information.)
Stephen had both SCTs in Kings a great,wonderful and caring place.…[Read more]
eve replied to the topic Good News X Two in the forum General 13 years, 9 months ago
Tom and Elaine
That,s smashing new for both of you,you both must be over the moon,with big smiles on your faces.
I hope you are going to treat the old woman to more than a drink!!!!,(I mean a night out,with all the trimmings) I could almost see what you were thinking then:-P
At least your holiday will be care free,and no hospital for…[Read more]
eve replied to the topic PLATELETS in the forum Treatment 13 years, 9 months ago
Tom
We went very early,in and out in no time,they will phone this afternoon,if treatment needed,but I think we have turned the corner.8-) 😀 🙂
Slim is not trying to rush his recovery,enjoyed being out to day,but knows he is trying to run before he can walk:-P
So with a little bit of luck it will be bloods only.Love Eve
eve replied to the topic Second SCT in the forum Treatment 13 years, 9 months ago
Hi Mari
Yes to all your questions,the rooms are a bit smaller than Davidson wards.
Good tv,Internet connections £15 for the month,small fridge,There is even a little view over the roof tops if you have a room on the left,many just have brick walls,I worked it out to over 100 steps plus,over 1 mile walking.It,s the steps at the train stations I…[Read more]
eve replied to the topic PLATELETS in the forum Treatment 13 years, 9 months ago
Hi Dai
Now you know what his hospital is like:-P :'-( >:-(
1 hr to get there and park!!!we are like a piece of the furniture in the waiting room lol,
I watch all these new people starting treatment,and they just do not have a clue how much time they will spend in waiting rooms.
Its not the nurses fault they are just so over whelmed,some of…[Read more]
eve replied to the topic My Dad in the forum Newcomers 13 years, 9 months ago
Hi Jen
Did you ask if your Dad had any tumour,s or lesions!!! this could be the pain,but chemo drugs should stop it,you do not say what pain relief your dad is on!!!or how much weight he has lost.
Slim could not pick up a carry bag with a few items in,
Jen it all takes time,they know if things are working by the blood results,and kappa light…[Read more]