Hi Peggy
BMB are not the nicest thing to have,but they will show what is going on with your bone marrow,because some times the kappa light chain readings do not reflect what is going on in the bone marrow.

Your BP reacts to your condition,it can go up and down if your nerves or upset,so take deep breaths and keep calm,:-P
Myeloma does take…[Read more]

Hi Everyone

Just Looking in,This is what we need,good news,Wendy and David,lets hope we hear lots more.love Eve

Hi Gail

Reading your post,it could me writing it,only the year would change to January 2011.So you are not alone,you have joined many other people on this journey,because the carer has no choice,and some times is forgotten,because everyone worries about the person who is ill.

I use to worry about my husband,being very confused,plus lots of…[Read more]

Hi Susan
Thank you for posting about Sharon,i have been trying to find out how Sharon was as she was on Velcade the same as Slim,and i was wondering was it working for her,she helped me a lot with information.
Thanks again for posting,I wish her husband and young family all the best,Eve

Hi All

Thank you all for your kindness it has helped over the last few days,as we have found it difficult even to mention it.So this did help.

We are going to have a celebration of Matty,s life on the 8th of May My daughter from NZ has come home,so although it is a time of sadness,there is a great deal of love and happiness around us as…[Read more]

Hi Lexi

I am up at this terrible hour,so i thought I would reply to your posting.

First may I welcome you,we are usually a happy bunch on here,who have either got Myeloma or are carers.

May i say,Smouldering Myeloma may never go into Myeloma,also some people have it for many many years,Ted on here is in his eighties and although his…[Read more]

Hi Duncan
Sorry for not replying.

You have a lovely dog,it will be a great help to you in your recovery,as you have to take the dog for a walk and this helps.

We are based in Deal Kent,but Slim knows Bovi Sands well based in Torpoint, in 40 and 42 commando units once upon a time
I have some problems not connected with myeloma,so will be…[Read more]

Hi Stephen

Sorry for not welcoming you to the site earlier,as I have had a few problems myself,its my husband who has Myeloma.

They say myeloma is such an individual illness and everyone reacts different to the drugs involved,I can only tell you about Slim my husband.
he was on CTD had 6 cycles and looked if he was in remission,bloods and…[Read more]

Hi Dai Bridget and all

I often pop into the forum, but dont always post. Always pleased to see so many old friends posting merrily or not as the case maybe!
My son and I have just finished lambing our larger than usual flock, very hard at times, Gordon is all over the farm, Charlie my younger son seems to have taken his place on the big red…[Read more]

Hello Stan

Welcome,I can well understand your concerns,have you mentioned to the doctor the MM history?

Some Myeloma,s do not give any indication in the blood,there are number of different Myeloma,s and the correct blood test plus urine test have to be done. This will indicate if myeloma is possible,the only positive test is a bmb,if they…[Read more]

Hi Tracey

Just quick reply as doing this on I pad in hospital

Slim takes Amitriptyine 10m to help him sleep they have just upped his dose to 25m because they also use this for PN as this is used for PN might be worth asking you doctor. Eve

Hi Duncan, Yes you are in the right place, if you ring Ellen she will be able to tell you about it plus send you booklets. There are a few people on here with Amyloids so I am sure they will reply when they see your post. I believe there are only about 600 cases a year and Royal Free is the…[Read more]

Hi All
They are good profile picture,Think I will have to get my hair done and try it out .LOL Eve

Hi Ali
Welcome to the site,

I think we all worry when a new hospital,is on the cards,I know I did,,what you have to remember is they are designated units.All new to us,but something they deal with on a day to day bases.

It will seem over whelming at first,but treat it all as another learning curve,it will help if family go with your mum as…[Read more]

Hi Tracey

I am sitting here this morning,and the sun is coming up I have tears in my eyes,and truthfully I do not know why,I do not know if its because I read your post,and thought,poor girl or if I was just seeing myself a little bit further down the line.So it must be me just being a bit tearful.have to find my little white pills again,they…[Read more]

Hi David
You know what they say "love is blind" LOL Eve

Hi stephen
My husband died in august 2011, grief is awful if eel for you and your sons, keep them close they need you as much as you need them, something I keep forgetting. It does get better or so I am told but I am afraid I am still waiting for that to happen.
My thoughts are with you all, take all the help you are offered.
Sarah

Hi Teresa

My thought are with you,do not bother replying individually unless it helps you,we all have some idea what you are going through at this time.

This is a very sad time for you and your family,enjoy ever day as much as you can,and any time you feel like unburdening yourself,if you do not want to do it through the site,lots of us have…[Read more]