Oh Jean

I was so sorry to read your post. Both Stephen and I are only children so have no idea what it must be like to lose a brother or sister. We both regret not having siblings to share our worries with but maybe it's not a bad thing.

I do hope that Alex's celebration of her birthday is that! A celebration of 19 years of life with a…[Read more]

Hi
Well I have to say Dai I feared the worst,Slim has no memory ,so he has no fear,he goes into this hoping for the best,his decision ,up to now I have felt positive,started procedure only to receive a letter,with appointment for cat scan,how can they start this and then decide he has to have a scan!!!,they want us to travel 86 miles to sign a…[Read more]

hi Dai

Out of interest,have you ever seen or heard of the Zulu warrior,the reason I ask,is you mentioning the local barracks requesting rebel songs,they were banned in barracks ,Once heard and seen never forgotten.

I think the words ring true,kill or be killed.different world.time and place, keep writing,you have something to say ,love Eve

Dai

I hope you are going to put music to those lyrics ?

It reminds me a bit of the Irish rebel songs of the sixties, believe it or not the forces use to listen to them too.
Hope to hear it to music soon Love Eve

Hi Viv

I was hoping you would get some reply,s from people in your dad,s position,so I am boosting this to see if some people can help you.

People do get very tired,but you have to make the most of the times you have some energy,and make plans to go out even if its a walk round the block,all doctors will tell your dad to excise ,they chemo…[Read more]

Dear Nicola

I am sorry that your Dad has gone. We all want our loved ones to stay a little longer so please don't feel selfish.

I am in my early 60s and my dad died over 20 years ago. He is still around me somewhere. In small things that belonged to him that now adorn my home, in my memories and on rememberence sunday I watch with pride…[Read more]

Dear Michelle

I am so sorry to hear that Phil died. This is such a nasty illness for everybody but particularly cruel to young people like Phil.

I am sure that Friday will be very difficult for you all but hope that it will also be a celebration of Phil's life.

As Helen said do talk to the children about him and keep him real for you…[Read more]

I cannot praise Kings highly enough (food apart and that is not their fault it's all sub-contracted out)

They were great whem Stephen was there and nothing was too much trouble.

Good luck to you both

Love from Gill x

Best of luck with your SCT Carol. I hope it goes really well for you

Kind Regards Gillx

Hi Dai
You are doing what you do best!!

I have a time it,s 4am don.t ask what I associate it with,but sure enough when it strikes 4am,I look at the clock and know the time without looking!!!

I do think about a lot of things and often wish I took a pen and paper to bed,my daughter does this every night,so you keep on with your writing time…[Read more]

Thank You Everyone
For your good wishers,very very impressed with Kings Chemo unit,it took us be surprise,after local hospital,the staff were very impressive,not one walked by looking down at the floor,and everyone kept checking all monitors.

Gives us more confidence in SCT.

Slim sleeping after busy time,next stage is harvest,so date…[Read more]

Dear Michelle
I was so sorry to read of the loss of your husband at such a young age from this dreadful disease, my thoughts are with you and your family. You will have days ahead, my only advice is take all the help on offer and keep your family close. Be kind dot yourself.
With love
Sarah

Hi Dai

Sorry i have missed your post.Rearly good to hear new treatment is working,and you have some releave from the pain.

Finding i cannot keep up with the post,think its because as things improved with Slim,my middle of the night,being wide awake has faded and now sleeping well myself,
It is lovely to hear the old Dai back again,Love Eve

Hi Tom
Well managed a few days away in motor home,but came home early Slim not to well,have been waiting on a phone call from Kings to tell us results,only to find they,did not ring mobile as requested,but left message on answer machine…[Read more]

Hi Viv

Welcome,this is going to be a big learning curve in your life ,and many times you are going to wish you are not here.There is no cure for Myeloma but it is treatable,how long a person lives depends on how they view there world,there hopes and dreams.

You have had Cancer yourself so you know the problems,We live in this world of…[Read more]

Thank you everyone for your good wishes,

Slims shattered gone to bed and I am going to follow him,left home at 9am got back just before 8pm.It leaves us a bit dumb foundered, spent a long time for test that could have been done in Canterbury,Ex ray and Heart Monitor.The rest could have been explained in a booklet.!!

Next appointment next…[Read more]

Hi Everybody
Well things are moving fast now,all dates have been moved forward.

Slim was lucky,he asked could he have anything done locally instead of travelling 85 miles to London,so they allowed him to have BMB in Canterbury.
Hoping he might be allowed to have the Cyclophosphamide 5 hr drip also in Canterbury.( fingers crossed ):-P

Off…[Read more]

I am so sorry that your dad has reached this stage of mm so quickly. Love and prayers for you and your family Gill x