Hi Everyone

Come on Tom admit it right arm pain,how many pints do you have to lift until pain starts!!!LOL

Slims pain started in his back when x,ray came back had an old brake plus new brakes,told would heal in 3 months,6 months down the line diagnosed with MM.
Only went to doctor,s because I nagged him!!!!
My advice is go to your own…[Read more]

Hi Min
I feel like Gill,but I am also very proud of you,you have picked yourself up and started to find a new life,as David says we all know what the future has in store,but you are just showing it can be done.

I cannot find you on facebook Min,I would like to keep in touch,I will all ways be grateful for all your help with Slim,you kept me…[Read more]

I am in tears over your post but do understand. Who will advise me over our 2naughtie Westies? Who will be there instead of you?

Good Luck Min. I wish you all the best. I am sure that Peter was a rock for you but he was also a lucky man to have found you

Gill xxxxx

Wonderful news Tom

Congratulations and love from Gill xxx

Hi Bridget

What a bummer. Stephen had radiotherapy for pain and when the pain came back was told the same as you They cannot zap the same spot twice. He had spent a week saying that the radiotherapy had made things worse ( he was told it would be worse before it got better) and then at least another week wanting to marry the guy that prescribed…[Read more]

Hi Sarah

Just wanted to wish Henry the very best of luck My husband had 2 SCTs and had very little side effects (oh boy did I take some strange edibles to Kings College Hospital)

One tip When you get him home serve him tiny amounts of food on a side plate It doesn't overwhelm and he can always have seconds. Stephen craved home made Shepherds…[Read more]

So sorry that you have had to join us but welcome. My husband has had 2 SCTs but relapsed quite quickly . He is now on revlimid and (fingers crossed) it seems to be keeping the mm under control.

We were told some time ago that mm is regarded as quite sexy in medical circles ie. It is an illness that doctors are very interested in and are…[Read more]

Hello Jean

Hi jean sounds inapprpropriate 🙂 The rash that you described is just the same as Stephen got to start with. He had been pruning our wisteria using a small scaffold tower and slipped. He landed on his bum and as the day progressed it became painful. He asked me to have look (the things we do for love) it just looked red but no…[Read more]

Nice to have met you in name even better face to face. You have made me feel guilty my picture is quite old I always loved it as Stephen is pinching my bum off camera hence the giggles:-) . I must post a more updated photo. Me fatter and Stephen with less hair. Before chemo his hair grew backwards now it grows forward

PS did you know that you cannot get shingles unless you have had Chicken Pox?

My husband (Stephen was diagnosed in Nov 2008 aged 53 ) has shingles at the moment. He is in agony. It attacks the nerve endings and causes a huge amount of pain. He is sore but he says he can put up with that but the pain is v.v. Bad (this from a man with several collapsed vertebrae who has to rely on walking aids to leave the house and does not…[Read more]

Sorry to see you here but a huge welcome

Gill x

Hi Tom,
I am so pleased for you.I hope we are not going to loose you,now your fighting fit and officially stamped to be first class condition.:-(

We need more people like you on this site,to tell us the good side,it gives a lot of people hope,so don,t think about loosing us,still cannot find you or your breakfast on FB,or Mins.

Love Eve

Hi Tina
My husband was on the myeloma X1 trials had 6 cycles of CDT with a few hiccups in between,It is a 3 week cycle of tablets which you will take home with you nurses will go over all the tablets with you,there will be extra tablets to stop you feeling sick plus others.You need to write out a chart or get a dairy from Ellen its a must for…[Read more]

Hi Bridget
Sorry to hear your having a hard time,i can understand you not wanting to go back another day for treatment,but all that time at hospital must have left you exhausted:-S lets hope it works.Eve

Hi Everyone

Thanks for the info Ellen,I know this is a complicated complaint,but hope you understand how lack of knowledge does not help the patient.
Good luck Dai with your bottle,!!!
Hi Min no holiday yet,as have had a number of hospital appointments,hoping to fit a cruise in before May,looking good.
Min believe it or not if Peter is like…[Read more]

Hi Jill
My husband has just finished a course of Velcade which he found ok,except for the hospital visits at your mums age they will only do it once a week,but first it,s blood then velcade and it can be combined with her Zometa so one less hospital visit. It does depend on what hospital you attend some can do the whole process under 2 hrs.some…[Read more]

Hi Dai
Min is right about less liquid needs to be day before 24 hr bottle.!!!!

If I am correct Dai you have Kappa Light Chain like Slim,so bloods do not detect it and urine is the marker,so as Min says how do they know you have it back,have you had a MRI scan or BMB,if its showing in light chain test it has to be going through the kidneys…[Read more]

Hi Tom
At least your eating breakfast even if I cannot see it,explains those cheeky choppers,nice to see a healthy face,Slim loves his breakfast,scrambled egg and smoked salmon on toast this morning,trying to wean him off bacon sausage and fried bread,needs to put on weight but needs good weight,it,s not working as the minute I reduce fat intake…[Read more]

Hi Ros
I would agree with Mavis,mums have to have very broad shoulders your the one person she can hurt,and you would still forgive her time to toughen up lady she is no longer a child and is responsible for her own actions.

There comes a time when people cross a line,get on with your life Ros,Michael would want you to be happy.
What this…[Read more]