Hi Chris

Thank you so much for posting,it does give us some in sight,knowing we have to make this big decision ,it is early days for us concerning SCT,just trying to get any information concerning SCT,its almost like having to take a couple of steps backward to advance, with not knowing if it will be worth the effort
(if that makes…[Read more]

Dai

You are not going to like me for saying this,but in the big picture of things,it does not matter what you would like,because at the end of the day ,Janet will continue to live,how she chooses to do it, it will be a measure of her self being!!!!!,Sorry DAi.
Find your fighting spirit , if you cannot get on trials,ask to have the drug any…[Read more]

Dai I wish I could give you some sound advice,but the only thing I can think of,is if you reduce your water intake it must have an effect on your kidneys.

It is so wrong that you have to comply to a criteria ,were does that leave people like Slim,nothing shows in bloods or urine,I just know when things are not right,luckly I now have a GP who…[Read more]

Hi min
I think it must be the time of year, I have shed more tears today than I have for ages.i have a beautiful new collie dog and going sailing in February but it all seams so hopeless. Cyber hugs Min.
Sarah

Hi Only Me
good to hear the good news about your mum,it is amazing the way things turn round from someone being so ill,and then responding to treatment,its just finding the right treatment.:-)

I think it,s very important to be positive,and to try to lead a normal life as possible,every one has there down days,and as you say there is only one…[Read more]

Hi Val

My hubby suffers with his legs,not so much cramp or even PN, just very painful,they feel very hard around the calves,I massage his legs as much as possible to take some of the tension from the calves,plus walking seems to help,it seem his leg problem is more effected with the cold.
I will not tell you what Slim suggested,but it had to…[Read more]

Dear chrissie
I am so sorry that your husband has lost his battle with mm as did my husband in August, I wish I could say I know how you feel but I do not remember it is as though my mind shut down, I am not sure it is right now. Please take of yourself see your gp and get some pills. I take them to help me sleep, I would have gone mad without…[Read more]

Hi Michele

I can relate to your problem,as we are in the same position,at last we have remission,and waiting on Kings to see if my husband is suitable for SCT,his consultant says although very fit has had pneumonia which has damaged his lungs,so feels it might not be in his interest,but has told us to go to kings,they are the experts,so we…[Read more]

Hi Bridget
Do not understand it myself LOL loosing the plot I think:-P Eve

Hi Gill

Gill you should never feel like that,this is when you need this site the most,because it,s hard to talk to family about it,and most of us carers have earned are stripes with DEX.:-/

I am able to say to Slim is it the DEX talking or Slim and he does calm down,its a bit harder in public ,when he makes a remark that,s uncalled fore. I…[Read more]

Eatery (it's been ages since supper)

Fantastic news. Remission is a wonderful word to hear. As for SCT I believe that everyone is very different. Stephen sailed through his first SCT and felt quite guilty as others felt awful, But he was one of the unlucky ones and got very little remission from it
Fingers crossed and the best of luck

Fingers crossed for John I know that in Stephen's case his blood does not give a very bad pp reading but his "boney" damage (spine, hip rib and sternum) tells all.
Good luck gill

hi Everyone
Can some one tell me what has Gary O Brien??????? Eve

Hi Chrissie
I am so sorry for your loss,I am also awake in the early hours wondering what the future holds,we never know what to do for the best, you just try to do your best and try to remain positive.

People who have been through the same thing will reply to you,and try to help you get through this awful time,just try to remain positive,and…[Read more]

Thank you everyone for your good wishers and advice on SCT.

Still waiting on letter from Kings.!!!

Slim stopped Chemo a week before Christmas and has not been well since,it started on Christmas day,and has gradually got worst,on his last blood test on the 28th his kidney level functions were just starting to rise,so more blood test this…[Read more]

Hi Everyone

Its now 2012,time goes so slowly when your young,but as the years pass they seem to fly,so my word has to be

YEARLY I know it leaves RLY

But it seemed to fit into the new year. Eve