Hi Sarah
Good to hear from you,no sign of the Ram!!!!!!
what you say is so true,Gordon loved his land and was privileged to die on it,and you have the comfort of your family around you.I consider grand kids your greatest asset,the future generation for the land you love so well,so his memory will always be there,you just have to decide were your…[Read more]

Hi Eve
Wonderful news!!!! so sorry that your complaint was taken so badly. Don't let the B—–s get you down! Keep smiling

Sarah x

Hi Roz
I am so sorry that you are unable to get the help you need. After gordon died the local hospice offered me councilling i threw it in bin, me need help pah! Stupid stupid me.It maybe worthwhile contacting your local hospice, they are supposed to help the likes of you and me.

with best wishes Sarah

Hi Jo
I was thinking about you today,so sorry Jo you have been doing so well,Velcade has worked well for Slim,and they have caught you early,Let hope the BMB shows low results,I can only say its knocked Slims from 80% to 10% in bone marrow,that,s after 4 cycles twice a week,with no heavy side effects.
Ask away Jo,if we can help you we…[Read more]

On a a very light note does that mean we can all delete anything we don't agree with:-)

Hmmmm who do I want to disagree with?????

Nobody actually. You are all great. Come on somebody say something controversial so I can go wham wham wham:-) and delete you 😀 😀 😀

Hi Dave
Tom said it you have been through the wars,and with the determination to walk again,I would say you are doing great,its a big thing,my hubby was lucky he had no compression of the spine,but a fair amount of bone damage.
if you have a look at under fifties there is someone on there who has eye problems ,I think that,s how Myeloma was…[Read more]

Hi Helen,
I felt the same way as you when Slim was in hospital and thought wait until he came home,but I was so busy,bathing and looking after him day and night,the complaint never got done,and my verbal complaint never was dealt with,he will never go on that particular ward again,and now I stand my ground I take the view I know when he is…[Read more]

Hi All

I do so agree with you, do it now tommorow may never come! Gordon,s love was his farm his land, his cattle me and the children came in there somewhere. We did very little travelling in the last few years mainly because everything he wanted was at home. Our last very difficult trip was to go to the Great Yorkshire Show we should not have…[Read more]

Hi Gill
Well at least you are getting there,I know you said there was a good local doctor,who new about Myeloma,so that must be helpful if any thing goes wrong!!
How will travelling affect being on RCD????

We did have a week in Canterbury site as we had so many hospital appointments between us,it was cheaper and easier than travelling for…[Read more]

Thanks again for all your wishers,yes I did over do it a teeny bit!!!,i had Slims share as he does not enjoy a drink!!!.
He over did it by not resting enough,found all this energy,and paid the price on Sunday after the walk,has been sleeping most of the day and night,making up for not sleeping well on Velcade.
2 week of 5 cycle this week.
On…[Read more]

Hi Gill
RCD is the other side of myeloma X1 trials,Slim got CDT side,but we wanted the RCD,if that makes sense !!!
This is the one JET had and had such good results.As you know people are affected in different ways,but they can alter the dose,It looks if it will become one of the front line drugs for MYeloma but at the moment still a trial…[Read more]

Welcome Home Min I am pleased that you seem to have slotted back into home without too much trouble. You sound as though you are going to be very busy in the coming months

Love from Gill xxx

Hi Eve

I hope you are in that motor home very soon It sounds as though Slim is improving well so you may be off on your travels quite soon.

We are off to France for the first time in a year mid November (Brrrr!!)
We are very excited but wonder what we will be walking into in our old house

Love from Gillxx

Eve That is fantastic news I am so pleased for you. I am glad you celebrated after the news we need more celebrations methinks

Love from Gill xxx

Hi Abi

I hope that your dad responds quickly to whtever treatment he receives do keep posting on here for support and information

regards Gill

Hi Roz
You are coming up to your own 1 year soon!!,so my thoughts are with you,I have to confess when people say it gets easier!! I have my doubts the loss just becomes more acceptable,but it,s always there,but in time the good memories remain.
I hope you have planned to do something,even if it just opening a bottle of wine and enjoying that…[Read more]

Hi Everybody
I am on a bit of a high at the moment,slept well for the first time in ages.mind you G&T wine an d baileys helped.LOL but feel wonderful this morning and its such a lovely day the sun shining,and everyone seem to be out walking this morning.8-)
Min you were right about not giving up,and with out your support,i think i might…[Read more]

Hi Dad and Abi
Welcome to the site,It is no use telling you not to worry because your world has just been invaded by Myeloma,and your thinking this cannot be happening to your dad.
There is so much to take in,so just try to take it one day at a time,I found it useful to ask friends and relatives to stop phoning all the time,because I was just…[Read more]