Hi Andy

Yes I am very tired,you would think with Slim being in hospital,that I would have some peace of mind???.
Any way he is coming home today,and will feel far more comfortable with that.

He has to go into A&E,you go through the whole routine,3 hours on A&E moved to back room,no beds,he was moved to a ward eventually, not specialised,they…[Read more]

Hi Andy

You are at the stage of the game were it’s important that every thing is under control,and you are making the right decision ,so all good,try to think back when you were a novice at this!!!!,now you go in and know more about your condition than most of the people you are dealing with!!!! Or do you go straight to unit and by pass…[Read more]

Hi Polly

I read Pat,s and Arnie,s opinions as well,interesting reading??.?

I like the way you substitute fat for curvy lady,and as I am fat,I won,t be singing,!!! Lol

Seriously Mandy,start fighting,I hate the word fight!!! But your attitude,your will to live will carry you a long way
I would urge any doctor not to have a set agenda!!!,they are…[Read more]

Make sure you keep in touch!!! One day you just might see me there,never say never is my motto!! Life is on hold!!!!but Myeloma makes you realise,dreams have to be lived. Love Eve

Hi David

No surprises there then!!!

Saga was originally a family organisation,a couple of years ago the man who owned it sold it to the AA.They have since sold it on to an American company,it is now far removed from the original company.

I live 15 miles away from Folkstone which is the main head quarters ,I use to have all my insurances with…[Read more]

Hi Carol

No hair!!! Scar on chest!!!,you make me laugh some times,but in a good way,were,s your ozzy spirit.
Tell them to get this thing out,you want to look good on a Ozzy beach!!!!.Eve

Hi Mandy

Why not ask him what he would do if he was in your position,????? But still get another opinion?????,they all have different school of thoughts.

I can only tell you,Slim was basically told,no treatment,would support him so go home and die,he is now being treated by another hospital after a second opinion,and yes we realise he still…[Read more]

Hi Carol

Slim had the opposite of you,when they put it in it took over 4 hours,lot of pain,and because of this when it was removed it was day surgery,it just slipped out,after being in for a very long time!!!

If it’s painful get it removed!!!!,did they realise they left it behind????
It should be a day job surgery.

Don’t,forget to say hello to…[Read more]

Hi Vicki and Collin

Good to see you are still going strong,plus started having holidays!!!if it was me,you would not see me for dust,although I realise things are different for everyone. I suppose it was because are life was one long holiday before Myeloma,or should I say it was just a way of life????

Make the most of what you have got!!!and I…[Read more]

Hi Mandy

The news is not good,but from previous post you new this was going to be that way,Mandy you had no remission so you are high risk and it’s not great for people in this situation, you have good things on your side,you are young enough to have a back to back SCT,you have a family to keep you going,this is all good.

As for lying in a…[Read more]

Hi Jo

Lovely to hear from you.

I miss the holidays as well,but it is out of the question here as well,I did think about trying to book a break in bournmouth at the hotel for cancer patients it’s something to do with the Mac Milan site,but it’s not the sought of holiday Slim wants,in his mind he thinks we can still go in are Motor Home,but with…[Read more]

Hi Jean

Good for you,keep in that frame of mind,never give up,it will take you both a long way,.Eve

Hi Keith

Quick one!!

Get some chlorpromazine tablets from your GP,they stop the hiccups, Eve

Hi Sarah

Well all that is good to know!!!!

The worst thing I can think of that Slim did in the early days of Dex,is he got an idea to put everything behind the wardrobe,and I said no,when I went out I came back to an empty cupboard and it was all behind the wardrobes!!!!!,I do not let Slim drive on any treatment!!! Apart from that argumentative…[Read more]

Hi Sarah

I cannot help but question the amount given of Dex ????

My husband is on his fourth treatment in three years,each time with Dex,and the days he has taken it are varied,example:he is at present on Velcade one injection a week,he takes 40 ml two days running!!!,when he had two injections a week he had four days of 40 which was changed to…[Read more]

Hi Jean

After the blip as I call it,it took a very long time to recover,eventually Slim was walking again,he started treatment about two weeks after he came out of hospital,I thought it was to soon,but he coped well,but treatment failed,went on to CDV and then SCT.

Nothing has stopped the Myeloma,no real remission,he started CDR,but had a…[Read more]

Hi All

I think once you understand what’s going on it’s easier to take control of,keep yourself busy,telling the cat off is a good one,it cannot answer back,as a carer the one thing that use to annoy me,was my hubby could not see it was the Dex that made him so stubborn and argumentative as time goes on it does get easier. I use to keep a bit of…[Read more]

Hi Jeff

Glad to see you are feeling better,and being positive all helps your condition.

CDR is very like the CDT treatment you had,as you are slightly older,once they are able to control your PP,they tend to use it as a maintenance drug until it stops working,some people have been on it for a long time,as you know everyone reacts different to…[Read more]

Hi Molly

There are a lot of people in the position as your husband,it does depend on how his heart is affected by it. The Royal Free Hospital in London is the only hospital who deals with it,but they liaison with local hospital,it is rare 600 cases a year.

I cannot pretend it not serious and tell you not to worry!!,but please get in touch with…[Read more]

Hi Jo

You must feel that the Damascus Sword is dropping!!,all these new treatments effecting people in different ways!!,I think even the experts are on a big learning curve with us.

Sorry Mandy about taking your post but Jo does not post much for herself,you have to drag the news of her condition out of her,said in a nice way Jo!!!,please post…[Read more]