The photo was amazing Min I hope you'r making the most of all that lovely sunshine. The weather here is foul we need our

UMBRELLAS

LAS

Hi David
its just so nice to hear from a person who has gone through the mm journey,and come out the other side and has got his life back.

A big welcome to the site and I do hope you continue to post.

As you say everyone is different and some people have a longer and harder journey,which in its self creates more problems.
I have found this…[Read more]

hi Sue
You want to waffle go ahead,it does you good sometimes and helps when things go wrong,this site makes you realise how so many hospitals are different concerning treatment.
Slim is on Myeloma X1 trials ,so we do have to stick to a certain treatment,but who every devised how it was to be taken never considered the patient.
EG:VELCADE DAY…[Read more]

Hi Bridget and Helen
Defo late birds,was like that myself afew months ago, working hard to try to make sure I am not still buzzing in the early hours.:-/

Slim has been injecting himself for over 6 months now,no bruising but area less pliable,chose to do it himself as scared I would use him like a dart board:-P
To be honest I would be able to…[Read more]

Hi Sue
just to tell you about point 2 of your questions?
Slim has Velcade twice a week dose has always been 2.3

We had appointments at 9 for bloods and 1 o clock for Velcade.
leaving at 8 in morning bloods taken then stayed in city,went back for Velcade by 3 o clock often no velcade getting treatment at 4.30,if we are lucky home by 6.We…[Read more]

Hi David
I know you are in remission,was it the same through treatment!!
I agree completely with you, in terms of getting results,and agree,you can almost see the reactions on the professionals faces(patients who think they know best).
I feel they have failed to keep up with the times,I do accept many people do not want to know!!! fair enough…[Read more]

Hi David
I have no problem getting blood results I ask for them at the beginning of each cycle the nurses print them off,and I can see straight away if there are any problems.I find the chemo nurses are willing to expain anything I do not understand,and since Slim has been on Velcade take more of an active roll,concerning his general…[Read more]

Number 3 up and running Gill xx

Good Luck Dai and thanks for representing us all Gillxxx

Hi Sarah

Sorry to be late into this thread. My husband was diagnosed at 53 in Nov 2008 One of the chemo nurses told us to apply for a blue badge straight away as anybody receiving chemotherapy was entitled to be considered. Stephen was also told to fill out the form as if it were his worst day.

The nurse (bless her) said that you don't get…[Read more]

OK folks "spit" something out of

SALIVA

IVA next

Hi Everyone

how about a small one but still important RICHER

For having loved and lived giving HER,ans I am not talking about money.Eve

Hi Jim
What is going on!!!!has something happened ,have you all these e mails on your computer,going into trash can,or are you to ill to reply.
Hope it,s just the trash can eating them up rather than the latter.LOL Eve

Hi Min
It all comes down to lack of knowledge and when you get conflicting answers from the professionals, it does make you question everything around you.
I know what your saying Min as when he was first admitted they took bone marrow,full body xrays and MRI and result confirmed and talking about Myeloma trials within days.

I do not have the…[Read more]

Hi Jo
How are you doing,thought you might post to let us know about info day.Did it go well. Love Eve

Hi Tom
I believe what ever works for you as an individual:-)that,s what is most important you are the person living with it,and it seem to work very well for you,all ways cheerful,never worry unless the doctor is not smiling,were would we be if we did not have people like you Tom on this forum.
So consider yourself an asset. Love Eve

Hi Dai
I will see what I can do,I know boffins deal with the fact side of the treatment,understandable so ,but first and foremost I am a carer to some one who is very ill and is going to pass away,either from Myeloma or a related illness,so as such I tend to be emotional about it.So you Dai are going to have to bear with me.I do write as I…[Read more]

Hi Tina

Well done on the windsurfing! I sail, not as physical as windsurfing or as wet!I am getting old. I get tearful when I return home from holiday, no Gordon to chatter to.

Take care Sarah x