Gill replied to the topic Hi I am new Help – Now that I have relapsed in the forum Newcomers 14 years, 6 months ago
Hi Terry
We must indeed be almost neighbours, as we live in the last road on the right at the bottom of Poverest Hill. We are about half way along where the semis are. (The one with the iron gates).
Stephen hasn?t attended Kings since his last SCT so it was not us you saw. Mind you I just love the idea that we have doppelgangers that are the…[Read more]
eve replied to the topic Advice for Nadine – plus 'individualisation of treatment'. in the forum General 14 years, 6 months ago
Hi Everyone
I will not bore you with general details except to say,husband started on ctd,now on velcade and looks if he will not be offered sct.
My point on this,is we were told he had Myeloma told about Myeloma trials and felt we had no options,asked if we had any questions,how can you ask questions if you do not know what to…[Read more]
eve replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years, 6 months ago
Hi Everyone
How about
HENPECKED
I know I leave you with the same end but Slim tells me i keep doing that:-) :-/ :-S
KED
Love Eve
eve replied to the topic Infoday for Plymouth Support Group in the forum General 14 years, 6 months ago
Hi Shir
Nice to see you keeping your chin up,would drive me mad too,Do not know if your are on face book,but they have scrabble on there ,and now i find myself
in the house more ,I play alot,also Slim plays to keep his mind active,I agree completely would not be without my lap top,use it to skype a lot,shows when friends are on line,so pop in…[Read more]
eve replied to the topic Us who get left behind in the forum Off topic 14 years, 6 months ago
Hi |Girls
If i may call you that.My kids are terrified when I drive because if they talk to me,I have to take my eyes of the road,even my son-in-laws are scared.LOL.
I wish I could wave a magic wand and take all your pain away,but it,s not going to happen.
Life will go on and each day you will find some thing to smile about,I hope you will all…[Read more]
eve replied to the topic Zometa v loron? in the forum Treatment 14 years, 6 months ago
Hi Everybody
Zometa is known to be very effective on bone damage,usually administered once a month to strengthen bone with Adcal-D3 once a day.This has worked wonders on Slim,who could not even lift a carry bag with one item in.
Now he is on Velcade he has Zometa every three weeks,but Myeloma is 80% in marrow,
I can only say doing research on…[Read more]
eve replied to the topic Good news… Velcade 7 & 8 in the forum Treatment 14 years, 6 months ago
Ho Dai I am so pleased for you,I hope tonight you are sitting there with a big grin on your face,must feel like winning the lottery.
Only this is far more important,and more worth while.
May you enjoy the freedom this gives you.Love Eve
zasrs replied to the topic I LOVE in the forum Off topic 14 years, 6 months ago
Hi All
My fathers funeral today, what beautiful weather!! Had a wonderful funeral lunch with his friends and family, i cannot grieve for him, he was 86 for goodness sake!! Vety healthy all his life no chemo or sct for him, I feel for Gordon though, he now has my mother and father sitting on his cloud!! My little granddaughter still waves to papa…[Read more]
zasrs replied to the topic Us who get left behind in the forum Off topic 14 years, 6 months ago
Hi Eve and Roz
Not to sure how to reply to you both, Roz I understand the lonelyness and I have children and grandchildren around all the time there is no one to chatter to about the day to day things!!
Eve my boat partner is very deaf takes her hearing aids off when we sail, very difficult to sail with a partner who cannot hear, but we managed…[Read more]
zasrs replied to the topic Good news… Velcade 7 & 8 in the forum Treatment 14 years, 6 months ago
Hi Dai
What lovley news!! Enjoy do what you want to do, just do!!
with love to you both sarah xx
eve replied to the topic Velcade induced Neuropathy in the forum Side-effects 14 years, 6 months ago
Hi Debs
I do feel for you,they treat you like you are thick as two short planks,and wonder why patients loose there respect for doctors.
I had a problem,with a doctor last week,in the end I told him I was standing my ground,as i new when Slim was not well did not go down well:-P but worked.
Same doctor couple of hours later could not have…[Read more]
eve replied to the topic I LOVE in the forum Off topic 14 years, 6 months ago
Hi All
I love all this glorious weather we are having,it is a real bonus,it makes so much difference to our days,people walking round with a smile on there faces , i just wish it would not end.8-)
I love that Slim has decided he wants to go out as a family for his birthday,one daughter will be missing in NZ.to me it means he is feeling…[Read more]
eve replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years, 6 months ago
Hi All
Nice simply one
STICK
ICK next love Eve
eve replied to the topic Radiotherapy Appointment Tomorrow!! Yippee!! in the forum Treatment 14 years, 6 months ago
Hi Min
I can just see Daisy telling everyone about you wetting yourself,LOL,You made my day,
The dogs will get you out of the bed in the mornings,just take it a day at a time.Love Eve
eve replied to the topic Free Light Chains increase after completing CTD? in the forum General 14 years, 6 months ago
Hi Clare
You must be worried after 6 courses of CTD then a rise in light chains,best to ring hospital tell them your worries,you will be able to see your dads consultant early.
Slim had 6 cycles of CTD seems to be on path for remission,when they took bone marrow found MM had gone up,but light chains were down:-S,left us shocked,spoke to nurse…[Read more]
eve replied to the topic WEDDING ANIVERSERY in the forum Off topic 14 years, 6 months ago
Hi Jo
Well come on tell us,did he wine and dine you!!:-)
As much as i love Slim he cannot even remember my birthday with out my daughters telling him,so not holding much hope for first wedding aniversery.
Saying that he did buy me a bunch of flowers twice in thirty years not bad,and not from a garage forecourt,sainsbury,s more up market…[Read more]
eve replied to the topic Not Good News in the forum Carers 14 years, 6 months ago
Well said Mavis I agree,Eve
eve replied to the topic Us who get left behind in the forum Off topic 14 years, 6 months ago
Hi Roz
Sorry if i got it wrong,I know how hard it can be to live alone,specially at weekends,the door shuts on friday and thats it till Monday .
I am not very good at explaining myself,I myself have my own isolation,because I am deaf,I am suppose to were hearing aids,but I hate them,so it,s not so much physical as mental isolation that I was…[Read more]
eve replied to the topic New to Forum in the forum Newcomers 14 years, 6 months ago
HI Etta
Mind blowing,but do not worry you are not alone,Slim my husband did 6 cycles of ctd and there are lots more people on this site just like you.
Love Eve
eve replied to the topic Big dog in the forum Off topic 14 years, 6 months ago
Hi Gill
No not that good looking LOL:-P
Tried reducing pictures but not having much luck,eldest daughter tried,she could not do it.
But at least i have managed to get a photo up,no way am I going to put one up of me that close up LOL,its bad enough looking in the mirror.:-D
Love Eve