Hi Sarah

It doesn,t just rain it pours as the saying goes,and its raining on you,put that brolly up and protect yourself,you don,t want to catch anything,!!!!

Ask yourself why your MIL is phoning you and not Gordon,s siblings the reason being she feels she can relate to you,and because she see,s you as a strong person who is coping so…[Read more]

Short one for you all

STINK

Anybody want to "INK" in the rest 😎

I am so sorry that you are having such a rough time and all on top of losing Gordon.

I have no cure for your shouting M I L, well one or two but nothing legal:-) Shouting back would probably not help. You could try keeping a crossword by the phone and just make sympathetic clucky noises down the phone whilst filling out the crossword.

I…[Read more]

Hi Bridget

Good luck with your RT Hope it zaps that pain right out of the window.

Stephen saw the radiology oncologist today and he is to be zapped next week. Like you he cannot wait as he is in a great deal of pain at the moment. His scan has shown that he has a tumour that is, as the doctor put it, nipping his spine and that is what is…[Read more]

Hi Tom
Must admit you do seem well looked after:-)I think Slims consultant takes one look at me,and thinks she,s going to start asking questions:-P
Went to hospital today,bloods and treatment ,arrived 9 oclock bloods,1 0clock for treatment Slim had treatment at 3.30,left 4 oclock.in all treatment is 30 min top.with travelling 9 hours…[Read more]

hi bridget
i do hope all goes well tomorrow, and the proff gets to grips with your wretched pain. there cannot be anything worse than pain.
with love sarah xx

Hi Min
Just come on to tell you,that you will be in my thoughts tomorrow,I hope you have a good celebration of Peter,s life,It is going to be hard for you,as you had no time to prepare yourself,IF Peter had to die in hospital ,Icould not think of a better place to die,I think ITU staff are wonderful people,different from the general wards.

We…[Read more]

Hi Min

I just know tomorrrow will a wonderful celebration of Peter's life, as Gordon's was. I still have a problem with 'celebration' I wanted and still do, rage against the injustice of losing my husband! But I went along with the flow, and the very funny yorkshire vicar!.
You will be in my thoughts tommorow, I am so sorry you family is not…[Read more]

Hi Bridget
Have to say Bridget how much i admire you,good job its not me who has this illness I am a coward when it comes to pain.
Wishing you well for tomorrow.Eve

Jean it is not you I posted a word and a chat and then realised that the word I had chosen did not have all 3 last letters so I quickly deleted it 🙁

It is me with senior moments as I cannot even remember what the word was:-/

My message to Bridget was that I would not even remember if we had the same 3 letters twice but I think we would…[Read more]

Hi Alison

Welcome to the site,Good to know you have plateaued,and are back at work ,my husband started treatment in February,CDT,but has had to start Velcade.
SCT is not recommended by his consultant,because of damage to lungs.we do not have that option to decide yet.:-(

There are a few people on here who have chosen not to have…[Read more]

Hi
I often wonder how many people die with it not being diagnosed,if you think the average age is 70,do doctors bother to even,go along the myeloma route???

Young people seem to be getting picked up earlier while older people,have usually broken bones by then.
so is the numbers higher than3000 a year in uk who get this disease???

On…[Read more]

Gill
I got a message from the web team and I nearly never came on this sit again,so formal ,no flower powering at all they told me they considered that my language was in appropriate ,and I do not swear?????The word I used was b-l-o-o-d-y,Since then if you go to put a word in they consider unsuitable it comes up in red,!!! thank god Tom taught me…[Read more]

Before I suggest my word I will tell you that my heart sunk when I saw that the webteam had replied to to my first try of getting this game up and running. I thought that they were going to say it was a too frivolous subject.:-/

My word is going to be

ESSENCE

Anybody want to grab NCE?

Hi Paul I am so pleased that the dex is not affecting you Good luck with the rest of your treatment and do still pop in to this side of the site as well as the under 50s Stephen (husband with mm) is 56 and was diagnosed when he was 53. Stephen and dex did not go well together, and it is great to hear that it does not affect everybody in a negative…[Read more]

Ecstasy? Cannabis? I have had to stop Stephen climbing up into the loft to look for his kaftan, beads and psychodelic LPs.

We grew up in the 60s 🙂

On a far more serious note. It infuriates me to hear that hospitals are not willing to fund certain treatments eg Sharon's PET scans. I am no math buff and probably would not understand the…[Read more]

hI EVERYBODY
It must be me,do I detect that men do not just take these poisons tablets,and say well doctors know best!!!!!!!!
If we do not take an active part in this illness why should anybody else bother!!!
I know I live with one!!
Sorry but we have to work together,I would like to see more co-operation between the medical profession and the…[Read more]

Hi everyone
How about

NOISINESS
Leaving NESS

Dai has a far better way with words than I do but I am sure his eloquence speaks for all of us.

I hope Wednesday is a great celebration of Peter's life and I will be thinking of you.

Thanks to Eve for pointing out the attachments. What lovely photos and what treasured memories they will be

Much love and hugs from just one of your cyber…[Read more]