eve replied to the topic 'My My' & 'Bad News'… in the forum General 14 years, 8 months ago
Hi Dai
At least you have explained to me why I am always laughing,Never looked up the Wilki for meaning of Gallows Humour just thought it was me,always have a weird sense humour,some times i find myself laughing at the weirdest things, I just thought it was the scouser in me,plus the pills [magic].As long as I am laughing and not crying,that,s…[Read more]
eve started the topic Walking The Dog. in the forum Carers 14 years, 8 months ago
Hi Everyone
Everyone says how walking the dog is very therapeutic and I would agree,every morning and evening the dog has a lovely walk along the sea shore,not only does the dog enjoy it,Slim and I do to.
Yesterday as usual,we went out early afternoon,and a friend stopped to speak,i have only seen her at a distance before,curiosity of Slim on…[Read more]
eve replied to the topic Baloon Kyphoplasty in the forum Carers 14 years, 8 months ago
Hi Min
Just here to send you good wishers,Eve
eve replied to the topic News in the forum General 14 years, 8 months ago
Hi Bridget
Instincts are a wonderful thing,and we all need to listen to them,as you say you know your body best,better to deal with it,!!!.
Min i thought you have been too quiet,I know what you mean about so much bad news,but that,s what people are here for to help to laugh and cry with you,you yourself made me realise,there is someone out there…[Read more]
eve replied to the topic New to the forum in the forum Newcomers 14 years, 8 months ago
Hi Ted,
No you are not the only man on here,if you look at the average person to have this diseases its,men of black race age 70 years,???? I know but thats what facts and figures say.:-P
I think,we see more younger people on this site,because the average age on people who use computers are younger.
We have 2 Davids and a smiley Tom,plus are…[Read more]
zasrs replied to the topic News in the forum General 14 years, 8 months ago
dear Bridget
Stay stong and keep swearing.
With love sarah xx
eve replied to the topic plasmacytoma in the forum Newcomers 14 years, 8 months ago
Hi Liz
sorry you have had to join this site,but you should find help here.
I think the section that might be more help would be related conditions,
I have no knowledge of anybody with this condition,but i do know mm attacks the soft tissue sometimes.
You could also try the myeloma nurse on this site,phone or send e mail,she helped me with some…[Read more]
eve replied to the topic Dad just diagnosed with MM in the forum Newcomers 14 years, 8 months ago
Hi Sally
I am a carer for my husband,If I am honest as much as my husband use to be a very capable man,this mm has taken an awful lot from him,and he would be the first to admit ,he does not know what he would have done without me,saying that my husband had septic pneumonia and ended up 22 days in hospital,he has always been a fit man,ex royal…[Read more]
eve replied to the topic Myeloma X1 stage 2 in the forum Treatment 14 years, 8 months ago
Hi Everybody
Min the problem with dex is we do not have it to take,in the morning,trial day one take vcd,will not give us dex until blood results come back .so 9 for bloods 1 oclock for injection then,rest of meds sent for got out at 3-30 in afternoon.Stupid i know,were did commen sence go!!!!!!
Bridget I asked about picc line after reading…[Read more]
eve replied to the topic New to the forum in the forum Newcomers 14 years, 8 months ago
Hi Ted
Never forget you are 80 years YOUNG,happy birthday,A life is a Life and you make sure you enjoy every minute of it.:-)
As Bridget say Gp come across Myeloma may be once in there life time,I changed my gp to another one in the practice who had a little bit more knowledge and was willing to learn more about it!!.
Please,do not feel,a…[Read more]
eve replied to the topic Myeloma X1 stage 2 in the forum Treatment 14 years, 8 months ago
Thanks Everyone for your replies
We got there at 12.30 for a one oclock appointment.As the bloods were taken previous day ,Saline drip first injection into it then more Saline sounds easy.left hospital at 3.30.Slim had to take tablets on same day so dex taken on the way home,he has been up most of the night and this morning more dex.so full of…[Read more]
eve started the topic Myeloma X1 stage 2. in the forum Treatment 14 years, 8 months ago
Hi Everyone
Apprehension was right,Slim after starting trials in February and having a few ups and downs on the way finished 6 cycle two weeks ago,and we were left in limbo not knowing what the next path he was going to take.!!:-(
Had meeting 2 weeks ago,not going to recommend SCT as holes and blood clots on lungs!!!,awaiting on…[Read more]
Gill replied to the topic Home At Last in the forum Treatment 14 years, 8 months ago
Welcome home but take it easy. I hope you can get some serious R & R now
Gillxx
Gill replied to the topic Hello All, Michael's garden is done in the forum Off topic 14 years, 8 months ago
You have done Michael proud Roz. Now it is your turn to enjoy the fruits of your labour and enjoy it
Gillxx
I know this is very sloppy but it is also very old. I like to think that Gurney wrote it in her latter years
Dorothy Frances Gurney (1858 – 1932)
The kiss of the sun for pardon, The song of the birds for mirth, One is nearer…[Read more]
Gill replied to the topic Treatment in the forum General 14 years, 8 months ago
Dear Gaye
I have only been popping in and out of this site recently as other things seem to have taken over but I have just caught your post and your decision.
I know that Stephen will make that same decision at some stage and that my instinct will be to beg him to change his mind. I will not do that as I know that would be from my selfish…[Read more]
eve replied to the topic Home At Last in the forum Treatment 14 years, 8 months ago
Hi Keith
glad to hear the good news,so nice to hear someone is doing well,The sea air is wonderful,I do not think I could live far from the sea its in the blood,i actually need to be near the sea.
best Wishers eve
eve replied to the topic Treatment in the forum General 14 years, 8 months ago
Hi Gaye
I came on this site the end of February just as you went off,I saw your posting on trying new drugs ,about getting approval ,and your problems with pain control,I went back over your old posting to try to learn from your experience and I did,thank you for helping new people on this site.I like many others wondered what had happened to…[Read more]
eve replied to the topic Baloon Kyphoplasty in the forum Carers 14 years, 8 months ago
Hi Min
Glad to see you have posted at last was worrying,as all your posting was about other people and not how Peter and you were.:-)I hope it all works out for you on Monday,and Peter starts to feel better,now his back has been fixed
We need some good news on this site,so keeping fingers crossed that Peter is the turning point!!!,will be…[Read more]
eve replied to the topic Patient view/opinion for a Royal College of Pathologists / Association for Clinical Biochemistry in the forum General 14 years, 8 months ago
Hi Craig
The Problem is Craig,you need someone who has been through the whole system of varies drugs,with all the problems that go with it,these people do not plan that far a head.As you may understand they do not know what will be happening by November so no one can offer you a guarantee!!!!.Even carers like Min who are very well informed,have…[Read more]
eve replied to the topic Bendamustine Clinical Trial in the forum Treatment 14 years, 8 months ago
Hi Susannah
I have been following you post,but as you are head of my husband ,have not posted,posting now just to say even though you don,t know me,I am wishing you all the best and hope you have Michael home soon.Eve