[MinParticipant]

Hi Bridget
The very best of luck to you when it starts, I hope it doesnt have too many bad side effects and you can get back to living normaly again. Take CAre
Love
MIn

[MinParticipant]

Good luck to you Debs ands well done in advance.
Your post caught my eye because Peter and I used to live in Piddington. and drove thru West Wycombe to get anywhere in particular High Wycome where our daughter was born and Peter was posted in the RAF so it was like a blast from the past seeing it written down.
Hope you dont mind my going off in a tangent but my eyes lit up for a moment with happy memories.
Love Min

[MinParticipant]

Thank You so much for responding to my request for somewhere to be able to chat without feeling negative an guilty.
Like you Sarah its all a bit too raw at the moment, and my grief like yours is tinged with anger that some people are still drawing breath when my dearly loved husband is not. Peters Father is a typical example of this.
We will never be able to understand who makes that final draw of who comes and who stays until its our turn.
I find myself surrounded by memories and still find it difficult to believe he is not coming home.
Almost on a daily basis I do a little more investigation into his wardrobe and drawers finding new items that i didnt know existed.
A massive framed picture of the Queen behind all the hanging shirts…..What s that all about and what can I do with it?
Tonight I ate a meal and fell asleep in the chair in a manner that used to be all too familiar in the past. It was lovely to sleep naturally although without the heating on I got cold quick!
Im working out how to get thru all those food items in the freezer that were his favourites so I can make room for mine.
The sauces in the cupboards are a constant reminder of his not being here do I throw them out or leave them there
My car boot is absolutely full of all his paper work from when he did lecturing to the ambulance service and probation service and I cant quite get up the will to take them to the tip.
Then there are the clothes when do I part with them?
Its so hard.
Min

[MinParticipant]

Hi Sarah
Dont beat yourself up, the IF word is the biggest little word I have encountered .
Peter actualy was on Velcade but it stopped working. I keep asking similar questions about the next best thing but I am slowly coming to understand that we have not a minute longer on this earth than the grand master has planned for us.
The timing stinks and the method is inhuman but we cant change 'The Plan' its the people left behind to suffer that it hurts.
Time to pop the little pill again to stop my trembling and try and get at least 4 hours sleep! Booked my flights to Dubai so have something to look forward to.
Love
Min

[MinParticipant]

Dear Julie
I am so sorry that your mum has lost her battle with this dreadful disease. I hope you take comfort from the fact she was able to achieve her last wish and die at home. May she rest in Peace now she is free of pain and discomfort
Love MIn

[MinParticipant]

Well done Nettie brave lady
Min

[MinParticipant]

Its under General with the title Free light chains increase after sct
Sharpy can be found under her name and its her last post I believe spelt it wrong above sorry
Min

[MinParticipant]

Dear Mari
Please read Sharpie 's last post it makes lots of sense her explanation of pp going up as told to her.
It may help to calm your fears. I know all too well how easy it is to get on the panic step. When you have more information you will feel much calmer. I hope
Love
Min

[MinParticipant]

I know how it is Sarah,
I came home from my daughters on Monday to an empty house. No one to tell of my week away.
Been trying to put a new blind up in the kitchen and its taken me all day.
Peter was so handy about the house, and you cant find a workman for love or money just to put a blind up.
Just had a big bubble and weep first one since i came home but feel so much better for it.
Time for a whisky and lemonade (for medicinal purposes. Cold symptoms and sadness!
Love MIn

[MinParticipant]

Dear Gill,
there is a BBC programme Rip Of Britain with angela rippon gloria honeyford and they are worth a try.
then there is BBC watchdog programme they love this kind of thing.
In the meanwhile does Stephen get Disability living allowance? if not he should as well as the Motability side of it.
peter got all of it and his Macmillan nurse was really good at getting him a terminal illness form filled in so no waiting for them to make a decision. Once you have one of them you could forward it to the Bank.
See his GP they are usualy much better at this kind of thing than Consultants.
We had a similar thing happen with an insurance policy that would not pay his life insurance early. It matured 2 months before he died and would have been double if he had died before it matured.
I wish you the best of luck and if all else fails i suggest the insurance ombudsman as a back up to any letters you send.
Fingers crossed for you dear
Min
ps is this the same consultant who commited himself to telling Stephen to put his affairs in order a while ago? What changed his mind ?

[MinParticipant]

Keith Peter used to get what they called 'cover' when having transfusions to stop an alergic reaction. Just an anti histamine IV. Might be worth asking about.
Min

[MinParticipant]

I know where your coming from Roz, being alone with no one to chat to or make a cup of tea etc is very different to how I imagined.
Not sure if i can get used to this quiet life who do I moan to when theres rubbish on the TV! Who is going to make sure I come home safe when I take the dogs out. Its very hard.
It will take some getting used to.
Min

[MinParticipant]

Absolutly Brilliant new Dai… get on and enjoy your life.
Min

[MinParticipant]

Yes Bridget I do feel a lot better but not sure it will continue when I get back to being n my own. But I plan to do lots of test drives. Unfortunatly my new car has to be capable of totoing 3 labradors so no racy sportscars for me. My old dog has been with me this week and had some extra attention during which I noticed that he is going deaf, and has cataracts so needs extra love for a while.
Yesterday I took him to the ford and along with Emmas dogs went swimming but he and one of emmas was unable to get out up the bank.
There I was jumping in to the rescue wearing my grandsons wellies. But the water was up to my knees and my gypsy elastcated waist skirt was sinking as fast as I was. Having to lift the two hefalumps up the bank meant I had soaking chest wet skirt hems and once out I could not get the wellies off to get the water out so lay on my back and lifted my legs to empty the water so soaked my knickers too.
I looked a right sight on the way home I can tell you. good job it was only over fields and no one to see but the animals. Daisy couldnt wait to tell her Mum her nanna had wet herself!

[MinParticipant]

Lovely pic of the fence and two ears Eve, dont be shy !

[Author]

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