[NettieParticipant]

Hi
Although I live much further north, in Dunnet Thurso, I was sent to ARI for my second SCT. No complaints at all, the staff were fantastic and the food wasn't bad either! I was able to take my laptop in with me and they even provided me with a Wii Sport to keep me active. The level of cleanliness and hygiene was excellent and the housekeeping team very thorough.
ARI is not the hospital I usually attend but Raigmore in Inverness is not able to cope with SCTs and I was given the choice of several hospitals for this, Aberdeen being the closest.
If there is anything you are not happy with you always have the choice to attend an alternative hospital.
Hope this helps, are you due to go to ARI for treatment?
Nettie

[NettieParticipant]

Dear Siobhan
I do not visit this forum very often now, I have difficultly coming to terms with losing 'cyber' friends, although we never meet this is a close community. Bridget was special, she always had the right words and understanding for everyone who needed reassurance in their battle with this b****y* disease . Your mum and I relapsed at the same time and both went for the Myeloma X trial and I was devastated when the treatment did not work for her, it was just so unfair. Even through her pain she still gave comfort to others and we will all miss her her courage and spirit. My thoughts and prayers are with you and your family who she dearly loved.
Rest in Peace Bridget.
Nettie x

[NettieParticipant]

Dearest Bridget, you were a comfort and an inspiration to us all even through all the pain you endured. My thoughts and prayers are with your family at such a sad time, you will be greatly missed by so many. Rest in peace my friend. Nettie x

[NettieParticipant]

Hi Bridget
I haven't looked in on the forum for a while but just been reading this thread and I am devastated to hear you are going through such a tough time.
I want to add my very best wishes to the long list from your 'cyber' friends and hope and pray you will regain your appetite and start to feel a bit better soon.
You are such a a great comfort and support to so many on this forum we really miss your posts but it is our turn to wish you well and to keep fighting this b****y disease!
Love and hugs,
Nettie xx

[NettieParticipant]

Wow! Dai I am so impressed ~ this is excellent ~ a man of many talents, thanks so much for sharing this.

Love Nettie xx

[NettieParticipant]

Hi Penny

You are not alone in the Highlands – I live up in Dunnet (Thurso) and had my second SCT in Aberdeen in 2009. The staff at Aberdeen are great and they even provided me with a Wii Sport machine to keep me moving and relieve the boredom! You may even be entertained by Steven (Seagull) who knocks on the window every morning expecting to share your breakfast! If you would like to contact me by email my address is pippannette@macace.net.

Wishing you all the best,
Nettie x

[NettieParticipant]

Hi Janet

I am so sorry to read that you were given the news we all dread – but please don't despair! It is quite normal to completely forget to ask 'what now?' because you tend to blank everything when you are sitting in the consultant's office, but now you have had some time to come to terms with the news give the hospital a ring and either speak to the nurse in charge or ask for another appointment to discuss your treatment options. I always take a notebook with all the questions I want to ask then I can jot down the answers to read back later.

I relapsed five years after my first transplant and it felt like my world had collapsed around me but there are so many new drug combinations now that a second transplant may not be the only option. Myeloma is such an individual disease that a treatment that suits one patient may not be the best choice for another. I did have a second SCT and have been in full remission for the past 2½ years and (touch wood!) I am feeling so well now it is sometimes hard to believe I am an MM patient!

Please do stay in touch with this forum and let us know how you are getting on – there are so many caring, helpful 'cyber' friends here who are willing to listen and offer support.

Nettie x

[NettieParticipant]

Hi Chrissie

I have been away for a while but just looked in and have been reading your posts. I am so sorry to see the heartbreak you are going through and the uphill struggle David is enduring. This disease really is a b****r but I am so pleased you have found this site as there is so much to be gained from all the wonderful people you meet here.

You are certainly not impotent ~ you are obviously a loving and caring wife to David and that is the best support anyone can wish for, I could not have faced the past seven years without the love and support of my husband and I am eternally grateful to him as I am sure David is to you.

MM is such an individual cancer it does take time to hit on the best treatment for each patient and there will be one there for David. Never give up hope, it is what keeps us all going.

Love and "cyber hugs' to you both,

Nettie x

[NettieParticipant]

😀 Brilliant!! thank you for sharing this David, it has really brightened my day! 🙂
Love Nettie x

[NettieParticipant]

🙂 no offence taken Gill – just trying to find new words for the game:-)
Love Nettie x

BELATED

[NettieParticipant]

….. not sure that I deserve that when Nosology can be found in just about every dictionary but I'm not one for 'poking my nose' where it is not wanted so …. I will find another DERIVATIVE x:-)

[NettieParticipant]

Hello Dai
I am pleased to hear you are back home – when you went 'quiet' on the forum I thought that you had gone to the B&B! You are the fourth person I know of who has had a bad reaction to the jabs in the past week so maybe there really is something in it this year that is causing a problem – the only time I reacted badly to it was when the actual jab hurt and everyone who has had a bad reaction has also said the jab really hurt:'-( – very odd! Anyway, I hope you and Janet are both feeling much better now.:-)
Love Nettie xx

[NettieParticipant]

Something we all could do with
RELAXATION!
Nettie x

[NettieParticipant]

🙁 So sorry to hear you are suffering with the dreaded "Weekend Lurgy" Dai! 🙁 ~ isn't it just amazing that it always seems to happen on a Friday afternoon when you either feel you don't want to disturb the medical fraternity or simply cannot get a reply from them!! At least you have a Doc who errs on the cautious side and has made everyone aware of your situation. A night in hospital would at least put your minds at rest that there is nothing more serious going on – shame they don't provide double en-suite rooms so Janet could join you!!!
Keeping everything crossed that it is just a glitch caused by the jabs and hope you will both be feeling better very soon 🙂
Love Nettie xx

[NettieParticipant]

😀 ha ha – thought that one would get you thinking David 😛 xx

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