[Nicola2708Participant]

Yes thats what i thought, i have a terrible fear of heights, but this might just get me over that. Be worth it for the money I would raise. Want to do a black tie event next spring as well, but need to plan that. Plus it helps keeping busy like this, putting my energy in to something so worth while.

Nick x

[Nicola2708Participant]

Thanks Deb

Didnt think it would take so much organising, rotas to do BBQ, making sure mitch will be ok behind the bar, music getting raffle and Auction prizes. But it is all so worth while..I intend to do lots more events as well. Want to make dads wish reality for him.

Tom its The Boot Inn
Gladstone street
ibstock
leicestershire

Im considering doing a skydive as well. Not sure i have the B*****ks to do it lol

Nicola

[Nicola2708Participant]

Hi tom

how are you? Were in ibstock, leicestershire. Lol would help if i d of put that wouldnt it. Xx

[Nicola2708Participant]

First time ive been on here for a long time, bridget you were a lovely lady and offered me great words of kindness when my dad was first diagnosed and later passed sway. I hope your children realise what a wonderful lady youwere. Good night and god bless. Heaven has gained a beautifull angel xx

[Nicola2708Participant]

Yay you go David

what a lovely thing to read. Hope your coughs much better, and managed to enjoy some off the lovely sunshine we had.

love and best wishes

Nicola

[Nicola2708Participant]

hi stephen

all we can do is one step at a time, baby steps as my friend says. i agree with eve though spent lots of time with my children help, they make me laugh and cry all at the same time.

love

nicola

[Nicola2708Participant]

Hi Neelie

Its really good to rant ive only been a member on here for a little while but its been a great place to come to have a rant, or get information. There is always someone here with kinds words and support. Your Dad is now in the right place and im sure he will be getting the best care possible. My advice would to always write down the questions you have for the specialist nurse and the consultants, because you forget and theres always so much information to take on board. Stay positive and dont be afraid to ask for help. Our specalist nurse was a great point of contact for us, and so was the ward sister both going beyond what they needed to. 🙂

Everyone is always here to offer support or just for a chat.

Love

Nicola 😀

[Nicola2708Participant]

Dearest Jean

I Lost my dad 3 weeks ago today, it feels like a great big hole has been left in my life. So i can understand how much you must miss your brother, like you we were there to hold his hand. People keep telling me time is a great healer, may be this is true. Hope Alex was able to enjoy some of her birthday.

Much love to you all.

Nicola x

[Nicola2708Participant]

Dear Helen

Thank you so much for all your kind words over the last few months. How you feeling your self. Any more thoughts on getting that puppy. xxx

[Nicola2708Participant]

It's Monday morning, dads still hanging in there, after a distressing day yesterday they have managed to get to grips with the pain he was in. We just keep talking to him letting him know that we love him. He shouts out ocassiontionly. But has not regained consciousness since Friday. Xx

[Nicola2708Participant]

Dads now receiving pathway care, no more medical intervention. All tubes have been removed. We just waiting cx thank you love to you all x

[Nicola2708Participant]

thank you bridget and helen,

Im really quite frightened and dad looks really scared in eyes, Cant belive how quick its happened. we wont be leaving him. we wont to to do all the care our selfs. thank you for your ongoing support. xxx

[Nicola2708Participant]

hi helen

im hoping it has some affect when we get started on it. as yet a transplants looking unlikely. wont even really discuss it with us. Im scared to go see him, he always seems to get so down in hospital. how are you helen xx

[Nicola2708Participant]

hi
thanks for all your replies, keith it is lenolidomide. Dad(micky) was supposed to start to day when we visited out patients. Unfortunately this wasn't to be the case. Bloods showed high levels of calcium again, infection and poor kidney funtion. So instead of starting the new regime dad(micky) has now been addmitted. He cried for the first time, was horrible. Ive stayed so positive with him. saying its the best place for him, so we can get everything back under control. I don't know what to do anymore, he was so upset. Just kept repeating myself to him. Hows everyone else doing xxx

[Nicola2708Participant]

Thank you Keith and Bridget,

It's so heart warming that you take the time out to reply. Especially when you have so much going on in your own life's. Must admitt to have been sticking my head in the sand, it's a far calmer place to be especially after a few glasses of wine lol. It's not the revlimid it be begins with L. He started on that combination when he was first diagnosed back in August. It's quite heart breaking to see how much he continues to deteriate. The way he talks is like he's given up its hard to hear. It's hard hear.Tryed to encourage him to get out as we have a wheel chair, to take him to choose some new clothes as his stuff is all to big now, he's gone from extra large to small but has no intrest. Just keeps telling us he'll be pushing Daisy's soon. Do you think you know when your time is coming to an end? I'm thinking of going to the myeloma day in Nottingham in April. You are so brave all of you to face this everyday, I send you my love Bridget and pray there is a new treatment around the corner for everyone who needs it. Xxx

[Author]

Posts