[Nicola2708Participant]

Hi Bridget

Thank you for taking the time out to reply, you would have laughed even louder if you had heard him refer to dick head in front of his consultant, think she thought he was calling it her lol.

Yes break is def needed for all. He's had a rough trot since end of November, after was taken of drug trial because wasn't working, and went straight to velacade.

Make sure your getting plenty of rest Bridget, you truly are an inspiration Bridget.

Love and big hugs

Nicola and Micky xx

[Nicola2708Participant]

Hi Bridget

I'm sorry to read your news, you have offered lots of kind words to me the last week.I send you my love and an ear if needed.

Love and hugs

Nicola and Micky

[Nicola2708Participant]

Hi chelle
I'm new to this as well. My dad was disgnosed in august and it's been battle after battle. Kept my emotions in check till just befor Christmas, and had a complete break down in the hospital corridor when the TVcard dispenser didn't work. Had a good cry and sat and spoke to my dads Specalist nurse. She has been a good point of contact and surgested this site to me. Are battle continues and though it's been tough my husband and my GP have been really good, like eve I've sort comfort from anti depressants, which have helped level my moods out.. And helped a bit with my sleeping. Apart from when my dad deceides to ring for a chat in the middle of the night the last two nights as he can't sleep to much noise he says from the other patients. I just try and take each day as it comes. Like you say some days are harder than others, and those that prob don't deserve it end up getting the sharp end of your Tongue.

Love and hugs

Nicola

[Nicola2708Participant]

Hi edd

I'm very new to this site, have made a couple of post myself. My toughest times so far is having to remain strong and in control. And leave the break downs and screaming for my husband who without a doubt has held me up. My dad was diagnosed in august of this year, after suffering back and rib pain for over a year. I agree with live each day as it comes. It eventful journey and I've been very lucky that my company have allowed me to have a very flexible approach to my working week. Some weeks im lucky to do 12 hours, others I do manage to make a nearly full week. With support from my husband who helps with care. Live life to the max and make sure you remember to take care of you as well.

Love to you and your wife

Nicola

[Nicola2708Participant]

Hi eve, I'm still very new to this site but have read through lots of post, it's lovely to see your happy news, looks like 2012 is your year. Hope you find a nice cruise for you and slim and enjoy some quality time together.

Love
Nicola

[Nicola2708Participant]

Thank you Bridget, here's hoping.:-) . Everyday is certainly a new challenge. I've been to work today needed some normality myself lol. Although dad has rang me about 20 times bless him. He's awaiting a transfusion as we speak as his heamagloban levels are 8.1. Which are low. Think normal levels are 14.9.

Tom my dads name is Michel or Micky which everyone else calls him lol. Do you guys get involved in much fund-raising I'm just discussing with a few people about may be doing a charity ball, with auction. Give us something positive to work towards and raising some pennies for this wonderful site.

May the forse be with you love nicola

[Nicola2708Participant]

Thanks Tom, he seems alot more perky today. Would imagine that now all that build up is out the pressure has gone and the pain. We spoke about what he asked me to do today, he's feels unhappy about what his life's going to offer, he's not going to be able to return to work if we get him fit enough due to MM attacking his spine and his color bone has colasped, his job involes heavy lifting. But I've tried to put postives in there for him to focus on, once hes feeling better.. 🙂 like you say onwards and upwards..think I do his head in with it lol. But like I said to him today, it's another battle he's won and I'll fight with him every step of the way xxx

[Nicola2708Participant]

Thank you Pamela, I've spoken to ward manager several times and the consultant as well, I no the nurses are busy but there is such things as basic care, it's really helping being on here every ones been so helpful.

Love Nicola xx

[Nicola2708Participant]

hi Bridget

I only joined this site a week ago after plucking up the courage to write things down. So far my dads not had much look with his treatment, un like your mum he's struggling to stay positive. Which we try to keep his mood up beat. It's so nice to come on here and read about other people's journey's, and that positive things do happen stops you feeling so alone.
Wish you and your mum love and support xx

[Nicola2708Participant]

Thank you all so much for your responses, and very kind words. Finally after 5 days dad has passed the poo, from several suppositories and lots of oral laxative sulution. Left him very sore.. Tired and bit scared to eat as he's worried about causing another build up. I wish I could do more to take his pain away, I'd take it for him. Mavis I have considered talking to his medical team, I have spoke to them about his request to me, so they are aware of his feelings. If o seriously think he's had enough I will speak to them again. Think it's very difficult for him as the adjustments to his life, even though my dads 60 hes very young at heart, he's never re married after my mum but has a very large group of friends they often away, down the pub, of to isle of White for TT races, we even caught him rolling skating through the village were he lived a couple of years ago as a dare. Hes a grafter as well, worked 7 days a week often 12 hour days,. Its a whole life change. All I know I will support him as well as I possible can. Xxx

[Nicola2708Participant]

Thanks eve, that's my plan. We don't have a carer at the minute, I've been granted flexible hours, so between me an my husband we've managed. But we do need a little extra help. Which was what assessment was for, but will need to wait again now. Thank you for you help xx

[Nicola2708Participant]

They said they were happy to let him go home, returning twice a week for his chemo injections. We were released with morphine patches, and liquid morphine which is available for him every 2hrs. The other drugs I'm not sure as there not here at the minute.. We were due a nurse out today to help arrange support in the home but I had to cancel as we were not there. To be honest eve it all goes a bit above my head, something just isn't wright. I just have a feeling. He's scared to sleep, but then when he does he doesn't want to wake up. I'm waiting for specialist nurse to call. The lack of communication at the hospital is disgusting, I've turned up and dads not eaten because he couldnt even lift his spoon or fork, medication left on his bed side table again not able to lift a glass and hold tablets. Been horrendous. Xx

[Nicola2708Participant]

Thanks Mavis, how very kind of you to reply. I've spoken with doctors specialist nurse, they've said while there concerned, they still want to carry out this cycle of chemo. Ive had the discussion about dad not having to go through more than needed. The first lot of chemo had no effect which was tablet form along with 6 session of radio therapy on his chest bone and spine. The treatment he's receiving now is what you would be given if you had come out of remission that's how the consultant explained it. I can't believe how aggressive the mylomea has been. My dad was so healthy, very active and still working full time as a builder. Xx

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