Hi Mavis
Yes i read jets blog/post,she is truly an inspiration and provides insight into my next step.
cheers Paul

Hi Michele
I to am similar about the clothing I have used while being in hospital,even thoe its been through the wash its the associations they have.I am sure that it will wear off in time.Taken the dog out this morning with my wife Rachel and have now spent at least 3hrs snoozing!Where we live is quite rural so there is little public…[Read more]

Hi all
Thanks for the kind words of support,well it happened yesterday as planned and the smell of sweet corn followed.
I am unsure if there is a second batch in cold storage at this moment in time ,they used 8 bags so I suspect I got it all back but I will ask.I am struggling with internet connection but will up date when I can:-D
cheers Paul

Hi Scott
Sorry to hear about the lightchain readings going up,but you are right we just need to carry on fighting and getting on with our life.Hope you had a great time in Spain and I will keep my fingers crossed for you.
cheers Paul

Hi Carol
Thanks for the lovely post,your horse looks huge! you must certainly have got some strength to ride him and the weather looks good to.
lots love Paulxx

Hi Carol / Helen
I am coming to the end of my first cycle of DT pace with no real side effects other than feeling tired late evening/early mornings and my hair is disappearing rather quickly.I am due back into hospital next Monday for 4 days chemo and Dex.We have booked a cottage in Alnmouth Northumberland in early July which will…[Read more]

Siobhan
Really sorry to hear about the passing of your mum,she was so helpful to me when I first came onto the site.
love Paul

Hi Roy
One word sums it up "inspirational!"
cheers Paul

Hello all
Took the dog out of a walk yesterday and today for 1hr and my legs are starting to feel better.Seem to have put on some Dex weight on again I feel like a budha.
Inst it amazing how the sun and wind on your face just makes things better:-)
cheers Paul

Hello All
Got out of Hospital late Friday night after 5 days in hooked up with 3 IV lines.Side effects wise just the usual Dex hiccups and feeling abit tired first thing in a morning.Taking things a little easy this week as 5 days on the ward have made my legs like jelly.So its fingers crossed ! Feeling positive again about meds and…[Read more]

Hello all
Really appreciate the support!
Dai-Thanks for the article, I have found it very helpful and its injected some positive juices back into me.

Andy-Thanks for the insight on your stay in hospital,it does seem we are similar in our issues.
Going to wales this weekend and weather is good so looking forward before hospital on…[Read more]

Thanks Eve & Jo for the support, its the first time since diagnosis that I have felt really p….. off with it all.I am trying to remain positive but as we say in Yorkshire "By gum" its tough at times.:-)

Dai
Fantastic news mate keep up with the positive vibes.
cheers Paul:-D

Hi Ali
Sorry for late post as I have just spent a week in hospital.
Before anyone goes for a Stem cell transplant the medical team need to check that the persons heart,lungs are in working order,so various function tests are carried out and results sent to the consultant.
Cyclo priming lasts for 12hrs and you have various bags of chemo…[Read more]

Hi Vicki/Colin
Yes i still feel tired but once up and about with exercise you feel much better.If i am tired i just have a snooze.I have been off work since last Aug and my employers are very supportive.
cheers Paul

Hi Vicki
AS regards managing on a day to day basis my experience has been it depends at what point in the cycle you are and what meds you are on.You and Colin should start to notice a pattern of how Colin feels taking certain meds.
I.E When I take Dexamethasone over 4 days,day 1 is ok no problems..but days 2-4 my sense of taste goes out…[Read more]

Hi Vicki and Colin
I was diagnosed in Aug 2011 after my wife and I returned from one of our regular trips to Northen Scotland,cycling,camping,hill walking sort of stuff,I am 40 years old so one of the younger end on the site.
I cant remember what my initial counts were as my head was all over the place after the diagnosis.(I…[Read more]