Hi Bridgett and all those others kind enough to reply.

Just to let you know that we have taken the specialist at her word when she said to enjoy what time I had left (we have decided that´s 30 years in my case) and have beggered off to Spain for a holiday. Sunshine is great and it´s a real treat just to sit out and rest (although it´s ra…[Read more]

Hi Phil

Do hope the reduced dose is good for you – I asked on Mnday if they would put me back on a maintenance with a reduced dose but my specialist said that I was "passed that stage now" and says I should just enjoy what level of fitness I have now. Anyway hope all goes well with you and yes, I´m sure that the outside life is helping me…[Read more]

Hi Helen

Had my transplant in February 2011 and we seem to have had a similar recovery history. I don´t know why my specialist thought I was too "fragile" to carry on with Revlimid although I had lost over 10% of my body weight and generally felt rotten and miserable – also tingling feet etc. My dose was 20mg which I felt was too high but we…[Read more]

Hi Amelie and Helan
Yes, I am in the UK Amelie and as Helen explained I was on a drugs trial and so was provided with Revlimid. What treatment are you on Amelie?
To be honest I´m not really convinced that the Revlimid was to blame but I just never seemsd to "bounce back" too well after the SCT but I do remember that I was just beginning to…[Read more]

Hi – hope the meds are helping with the bone pain. Regarding the tingling feet etc – I have had this for about a year since I have had all the Chemo – lots and lots including Velcade and Revlimid. I describe it as having an electric current though the soles of my feet and although irritating can´t say mine is too bad as the back and general…[Read more]

Chrissie, so very sorry for your terrible loss. I lost Michael to cancer (brain tumour he was 42) twenty years ago. That terrible grief does pass please do believe me and hang on. The best advice I was given was as follows: Concentrate on just breathing and eventually the rest will follow, and don´t on any account make any serious decisions…[Read more]

Hi Nicola

Glad to hear your dad is improving. You are a super daughter and he must be so proud of you. Please try and look after yourself too although I know it´s really hard when life is so difficult and busy.
Best Wishes
Carol

Hi Gary, First off.. Don't be embarrassed!! It is wonderful that you want to help your sister. I am the carer for my husband who is 37 (DX 2004). I wish I could say the magic words to solve the situation but unfortunately… Cancer sucks.. And there is no easy way. Phil had SCT and different chemos over the past 7yrs (including Thalidomide) and…[Read more]

Hi and welcome. I have to agree with the others, the support you will get here is wonderful. I am a carer to my husband Phil. He was DX 2004 at 30. He has done well but the past year MM has been taking a toll. The feelings you have are so normal. You will have good and bad days just like he will. Phil was just admitted into hospital for the 2nd…[Read more]

Welcome to the forum, sorry it's under this situation. I am 37 and the carer of my husband (also 37). You're levels are very low which actually is a good time to av a SCT. I wasn't with my husband when he had his in 2005 but I do know you will need a lot of support. It is a difficult recovery, in some aspects more emotional. It's the only time he…[Read more]

Hi
I have been away so please accept my apologies for the delay. Welcome to the site, although so sorry you have had this awful shock.
I have been on the Myeloma trial since last July although I was diagnosed in 2005 and managed without treatment until then.
I have had a range of treatments including Revlimid and the stem cell transplant and…[Read more]

Hi Mari
So sorry that you have had such an awful shock. I had a similar one a few years ago and then it went down again after a couple of months. At the time I personally put it down to the shock at the loss of my son in law in a road traffic accident (aged only 32 and Daddy to a little boy aged 5)but who knows with MM? – not sure even the…[Read more]

Hi Terry and welcome although I´m truly sorry that we are meeting here!

You really have been through it I´m afraid haven´t you? I was going to mention Revlimid (which seemed to work ok for me apart from the side effects and it brought my paraprotien level down prior to SCT but I have just read Scott talking about it to you. Might be worth as…[Read more]

Hi Ted
So glad to hear that you are continuing in fairly good health – long may it continue!
We live in Halifax and I am beginning to think that it´s going to rain forever here!

Take good care of yourself.
Love Carol xxxx

Please accept our sympathy and very best wishes at this very difficult time.
Carol Bradley

Hello Peter

Just wanted to say Welcome to you although I´m sorry we are all meeting like this.
You and you super wife sound to have worked out how to cope with this horrid illness really well and your good lady obviously takes very good care of you. What would we do without our lovely helpers? – be pretty miserable I think.

Best wishes
Carol xxxx