I had my SCT in Dec 2010. I vaguely remember taking anti shingles medicine at the time to prevent it :-S ! I am never sure whether my ?chemo brain?, forgetting things etc?, is ?chemo brain? or part of life?s rich pattern at 70 years.

Kindest regards ? vasbyte

David

Apart from a short period when the Beacon Centre was getting established and my hospital notes got lost between departments, in 2009, I rarely have to wait for my appointments. Probably 30 mins sometimes and once I even went in early, having said that my appointments have been to see the Consultant only and not for any form of treatment.…[Read more]

That is really good to hear. I love the word "complete", so powerfull in this instance.

Long may it continue.

Kindest regards – vasbyte

David

Go for it Babs 😀 . Wonderful news, and as Jean says, it is great to read these uplifting results.

I go for my appointment on Friday, Mo and I are planning a trip to Mainland Spain in June so I will be looking for clearance of some sort (helps with the Insurance).

Kindest regards ? vasbyte

David

Hi Robin, I cannot come anywhere near your Dad?s terrible time. However, I was first diagnosed in July 2009. I broke my neck getting out of bed, luckily the Hospital was real switched on and after having surgery to put in internal scaffolding, to hold my head up, I am right as rain, as they say. (Never really understood that saying but there…[Read more]

It does sounds good Maureen, very soon he will be under your feet and in the way 😀 😀 . All the best to you both

Kindest regards – vasbyte

David

RED PEE 😎 Where have I been since 2009! Never heard of it before so I must have completly missed those posts! What ever next. Oh, welcome to the site.

Kindest regards – vasbyte

David

Yes, I think you are right Pat and I certainly know what you mean.

I drove to Exeter for lunch and coffees with my Wife, our Son and Daughter and their partners yesterday and had a great time it was a real nice day – not the weather, the company.

I felt good.

Kindest regards ? vasbyte

David

That is great news Tom. 4 months my golly gosh! I visit my Consultant next
Friday 22nd. Tomorrow I give my sample of blood to see what is going on:-P – hold on it is tomorrow already!

At the moment I cannot sleep so I am taking this time to catch up on the posts. I have been taking Tramadol every night to ease a pain in my chest…[Read more]

Hi Trish, Sorry to hear about the relapse. I am in the same boat, but my SCT lasted 2 years which was six months longer than predicted (best guess at the time). I have just started relapsing and at the moment it is a gentle curve up, I am now on 6.7 pp. You never know it may just decide to go down, who knows for sure with this awful…[Read more]

+1 Dai. (I notice the youngsters put +1 when they agree with something on a forum so being every young I thought I would too).

Kindest regards – Vasbyte

David

My sincere condolences to you, no doubt you have some good memories of your Dad ? keep hold of them. From what you say at least he did not suffer the trials of this awful decease.

May your God walk with you at this difficult time.

Kindest regards ? vasbyte

David

Congratulations to all concerned.

We have 7 Grandchildren, 9 to 19, and they have been a great source of love, fun and amusement over the years. I never knew my parents/grandparents, the war, and It has been a great source of love and comfort to me to re-establish my family. My oldest Grandchild is now 19 and the first one to fly the nest…[Read more]

Hi Lesley, I have not been on this trial but several of our regulars are on it and I am sure they will give you chapter and verse shortly.

All the very best of luck

Kindest regards – vasbyte

David

That is great news Tina. Now have some fun 😀 and long may it last.

Kindest regards -vasbyte

David

Hi Wendy, I am in the same boat as you although I am PPs and not Kappa. My SCT lasted 2 years which is 6 months longer than predicted at the time.

I have gone from 3.5 to 6.7 but it was over 3 months. I have now been given a 2 month appointment, 22 Feb 13, to see what is happening. The Consultant's letter to my GP indicated that I am…[Read more]

Hi Sarah Jane, The ones I monitor for my own piece of mind are:

WBC – White Blood Count Mine 7.9 range for a male 4.2 – 10.8
HB – Haemoglobin Mine 13.1 range for a male 13.5 – 17.5
Plts – Platelets Mine 300 range for a male 150 – 400
N – Neutrophils forgot to get this one

PP – Paraprotiens…[Read more]

I have just caught up with this post and I like Mavis take my hat off to people who go on the trials. There would be no progression if we all opted out and as such these "trialers" have giving unnumbered people a longer and probably happier life. I am too old for any trials but would have taken that course if it had been offered.

With regard…[Read more]