Good luck with the new treatment Keith and enjoy that holiday, where?

Kindest regards – vasbyte

David

Thanks for the information gang, [i]for warned is for armed [/i]as some bright spark once said. So it looks like my next step should be Velcade, when it comes that is, and I have kicked the ball way way up the pitch Keith 😉

Not that it has anything to do with Relimid but I thought you would all be dying to know that I play a game called…[Read more]

Hi Eve, Yes I agree with you about time lines.

At the time of my MM diagnosis, 2009, I was aware that this was considered a terminal illness. My first thoughts were that I must sort things out for my wife, how much time did I have, there seemed to be so much to do! When the Consultant told me not to worry about that in an offhand manner I…[Read more]

Hi Helen,

I have PN and I have had it since my treatment started in 2009. I call it sponge foot because that is how it feels. Most of the time I just ignore it, it does not affect my mobility as far as I can tell. I also get the odd tingle in my hands, in fact I have it as I type right now, but, again, it does not seem to affect my ability…[Read more]

Sponge feet sound like Peripheral Neuropathy, which is what I have, and if so you should definitely tell the Consultant.

The worst thing you can do is ignore Myeloma so you must also inform the Consultant that that is what your mother is trying to do. I know exactly where your Mother is coming from my Mother in Law was made of the same stuff,…[Read more]

Thanks for the info.

I am coming up to my final "sale by Date", original prognosis was max 3 years, and I am feeling fine. I planted my last 60 geraniums, from 360, yesterday and just the normal back ache from bending over otherwise I do not feel I am going to pop my clogs at any time soon:-D In fact I am now going camping down by the…[Read more]

Well done Jacqui, Simple isn't it 😀 😀

Amazed you are out of hospital so quick. Just keep the bugs away as Tom says.

Kindest regards – vasbyte

David.

Hi Jane, Welcome. Reading your post you seem to be an old hand :-/ , that is with Myeloma of course.

Kindest regards – vasbyte

David

Hi Chris, Yes, that would fit in. My first skeletal survey showed no other lesions other than the flipping great Tumour eating my neck.

Kindest regards – vasbyte

David

Keep going buddy – just keep bl**dy well going.

Kindest regards – Vasbyte

David

That is interesting about the IV bisphosphonates.

I take Loron, two tablets every day and have been taking them since Aug 2009. I have had no reaction or side effects from them at all.

From reading the posts over the years I can only remember a couple of other people mentioning they take Loron, I wonder why they proscribe different…[Read more]

Hi Chris Welcome(?).

CDT is a very personal experience in that most people seem to have different reactions to the drugs. I got very short tempered, which is most unlike me because I do not normally have a temper at all, and I could not sleep the night I took Dex. These two things seem to be quite common in most people we used to call it…[Read more]

The knee bone is connected to the……………………..:-D. Keep going Dai, just keep dem bones going Man!!

Kindest regards – Vasbyte

David

That is a good point – [u][b]Drink Guinness [/b][/u];-)

kindest regards – vasbyte

David

Sorry to hear your news Liz, the very best of luck to Kev in his treatment which I am sure will contain it.

Kindest regards – Vasbyte

David

It never stops does it:-) Pancytopenic :-S I have been on this site since 2009 and there always seems to be something new.

Best of luck, I hope it is not as bad as you fear.

Kindest regards – vasbyte

David

Hi Carol, I lost a son at 19 years of age, he would be 45 now and no doubt married with children – sadly that was not to be. For 18 months I could not speak his name without welling up with tears. I still think of him and even now I am begining to feel emotional as I write this.

I believe when you lose someone you love the pain does not go…[Read more]

Sorry to hear things are not going to well Paul. You and Andy G seem to be on the same path.

Chins up and Vasbyte my friends.

KIndest regards

David

Ann, write down your questions now. When you get there they will all be forgotten!

Dex affects people differently, myself I could not sleep the night I took it; I would stay up all night watching videos(I use earphones ? so as not to wake the wife), answering or putting questions on this website and/or playing on my computer. I also felt…[Read more]