• Op was not a success I am afraid. However not a complete failure yet. They had to put the Catheter back in and in 3 weeks they will take it out again and I will “try to live without it” if I cannot it means a permanent Catheter for me!!!

    kind regards – Vasbyte


  • Thanks all for the kind posts. Yes, they are thinking of cutting out some more of my head. My appointment is later this month when they will decide what to do.

    From January it has been a really troublesome year. July/August has been a real problem month of one thing after another. Biopsy on my head, Two teeth extracted, Operation to core out…[Read more]

  • Not to well Andy I now have skin Cancer to add to my list of cancers! I have an appointment with them at the end of the month when they are gong to cut a slice out of my head!!!! Not going to be much left of me at this rate.

    MY teeth extraction, on the 27th, proved a real tough one they could not get the top one out and had to cut it in 4 and…[Read more]

  • I am off to hospital today to have my Prostate Operation. Easiest way to describe what they are going to do is that it is like “coring an apple” only they are doing it to my Prostate gland. Cannot say I am looking forward to the operation but if it gets rid of the cafeter and bag then I will be a happy bunny. However, I am told it only has a…[Read more]

  • Perkymite replied to the topic Cancer Drug Fund in the forum Off topic 7 years, 9 months ago

    Yep signed.


  • I did well on Rev and Dex going to “excellent” Remission withing a couple of months. I have been off it for nearly a month now whilst I await my Prostate Operation, which is today. I expect to go back on it at the end of the month, I think I see the consultant on the 22nd. The only problem I have with it is the cycle of Constipation and loose…[Read more]

  • Best of Luck Karen I hope all is well.

    Kind regards Vasbyte


  • I would not say they are “ignored”. however most of us have our own problems to solve and our own fund raising.

    Well done for your work keep it up.

    Kind regards – ~Vasbyte


  • Perkymite replied to the topic Tom? in the forum Off topic 7 years, 9 months ago

    Glad you are still going well Tom. I had bad PN with Velcade. They just took me off it and I went straight onto Revlimide which I have found much better with minimum side affects. Plus it took me in to remission which I had not managed to achieve since I started in 2009.

    Kindest regards – vasbyte


  • Perkymite started the topic Tom? in the forum Off topic 7 years, 9 months ago

    I haven’t seen Tom on here recently is he still posting?


  • You are absolutely right Eve.

    Anyway, I have already met God, he was the RSM of the 1st Parachute Regiment, and he told me several times, when I was a young Sergeant, exactly what he was going to do with several bits of my body when he had finished with me. Said at 500 decibels 2 inches from my right ear, whilst I stood frozen to the spot So I…[Read more]

  • You may be right there Richard: I repent, I repent. I repent!

    We do not mention those days Don, although over 59 years ago my wife of 52 years reads this forum!!!! (p.s. yes they were great days shhh).

    I repent, I repent. I repent

    I have not heard that said Maureen. The Cancer is on my head and the first thing they asked was whether I was…[Read more]

  • My wife thinks I am paranoid but I am certain somebody is trying to kill me.

    Fist I have Myeloma next I find I have Prostate Cancer and blow me down if I do not find out today that I now have Skin Cancer!!!!!!

    I am sure somebody is trying to kill me.

    Kindest Regards – Vasbyte


  • Hi Bryn, At 37 you must have been shattered to hear the bad news. I am 71 and I was 66 when diagnosed, then 5 years ago this was considered an old mans decease, but I see more and more youngsters. I am not really up on the latest treatments now, having settled into a routine with the treatment I get and am happy with.

    However the difference…[Read more]

  • I seem to move between Constipation and very loose bowls that can explode at any moment. I won’t recount some of the problems I have had. I am off Chemo at the moment and my bowels have quickly gone back to normal.

    When on Chemo I note bowl movements on my calendar and as soon as I see a gap I start taking Laxatives to help. Not a lot just…[Read more]

  • Perkymite replied to the topic Help needed! in the forum Newcomers 7 years, 10 months ago

    Treatments have moved on since your Uncle Tom died. Dying will still be traumatic I know but I suspect your Dad will live a lot longer than you imagine at the moment.

    I started out on this road in 2009, the prognosis then was “Sale by Date” Jul 2011, I am still here! And I have Prostate Cancer to go with the Myeloma. I went down the normal…[Read more]

  • It sounds as if you are going in the right direction Andrea. Most of the Chemo seems to give the sleepless nights etc…

    Keep going it is all worth it in the end.

    Kindest regards – vasbyte


  • Thanks Andy, I am not on a Dex night, although it would have been if I was still on Chemo, just cannot sleep at the moment. Everybody ask why they have stopped the chemo but I have no clear answer at the moment. It is certainly something to do with the operation on my Prostate Gland on the 13th August. I will ask the Consultant when I next…[Read more]

  • Perkymite replied to the topic PIP in the forum General 7 years, 10 months ago

    I did the same, the Macmillan nurse at Musgrove Park Hospital. I got the indefinite level when I I re-applied after 18 months.

    Is PIP the replacement that is being brought in, not up to date nowadays LOL.

    KIndest regards – vasbyte

    p.s. Teeth out tomorrow afternoon – just not looking for ward to it.

  • yes, got to agree I miss Dai’s comments.

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