Thanks all for your condolences, you are a great bunch.

It just seems weird one minute I am laughing and joking with my Niece about MY funeral and how I was going to take my computer and mobile phone with me so she could keep in touch and the next I am helping her husband plan hers!

Over the years on this site I have come to realise how…[Read more]

Chin up Jo. the is the time to Vasbyte like mad 🙂

kindest regards

David

How about "Having Myeloma is realy great because you meet such nice people!!!!"

Delete to your hearts content. 😀

Kindest regards – Vasbyte

David

Welcome (?) Abi, this is a very good site for information, it is dedicated solely to MM as you no doubt noticed. There is a lot of old information out on the WWB so be careful when surfing.

With your first appointment Monday it will probably be too late, but some people on here take a recording device to the Consultation. This has many…[Read more]

Glad to hear you are doing well Jet. I keep meaning to ask everytime I see it mentioned, How is Revlimid administered – tablets?

Kindeste regards – Vasbyte

David

Sorry to hear you had a bad turn Dai, keep going Buddy.

kindest regards – Vasbyte

David

I think Helen's interesting point that the Blood Test "belongs" to the Doctor is where we are wrong.

All information regarding a patient should "belong" to the patient. The Hospitals and Surgeries have it and control access to it but the information should be the patients and if the patient wants a copy of it, it should be freely…[Read more]

Hi Eve, Yes I take your points and agree with them.

Now you mention it when I was first diagnosed, JUL 2009, I had a chart given to me with the blood readings on and I would ask to have it filled in each appointment. If I remember rightly it always seemed a lot of trouble, for the Consultant that is, at the time and I think I gave up in the…[Read more]

Well the way it works here Eve, in the Beacon Centre, Taunton, Somerset, is that I give blood 5 days before my Appointment. I then get the results, if I ask for them at the appointment. I find, and perhaps it is my age, that I have not got time to think about the implications then. Normally, I ask for the PP count and I get the rest IF it is…[Read more]

I have read the brief several times and correct me if I am wrong but this is a meeting of Laboratory staff, and or, people who work in the background, who supply information to Doctors who then supply that information to us.

When in a chain of information the question is always one of interpretation. We have all, I think, have heard of the…[Read more]

Sorry about this answer Sarah, but "how long is a piece of string?" :-/ . We are all different and as such some take longer than others.

Personally I would not let anyone near the house for the first 4 weeks, my wife and I had a Christmas on our own ( I came out of the hospital on 15th Dec 2010) the first time in 18 years ? no children or…[Read more]

Hi Sarah, Welcome(?).

My first piece of advice is to stop looking on the internet! A lot of the information is out of date and the treatment of Myeloma has moved on since most of it was put up. Two sites worth investigating are this one; it has a host of information on it and is up to date and specific to Myeloma, the other one I would…[Read more]

Glad to hear everything is going well Keith. As you say keep going.

Kindest regards – Vasbyte

David

Hi Kieth,

Remission is not just the PP level as I understand it, although that is a main indicator. I have been told that they look at Blood Measurements of various indicators like White Blood Cell count, Neutrophils etc… . If the PPs are ZERO and the rest of the measurements are within their correct zone or parameters then that I think…[Read more]

Sorry to hear the bad news Gina. May your God walk with you at this difficult time.

kindest regards – vasbyte

David

Hi Glyn and welcome. Your hubby seems to be going for the full monty, auto SCT and Allo SCT. I wish him the best of luck.

Kindest reagards – vasbyte

David

Sorry getting mixed up in my old age. I was thinking of a Kazoo which was like a penny whistle but made an orrible noise! Gazoo was a little green man in the Flintstones I think LOL 😀

Kindest regards – vasbyte

David