Perkymite replied to the topic Hello in the forum General 13 years, 2 months ago
Welcome Linda it is nice to hear from you. Your Mum muat be real proud of her very active family. Keep up the good work and regards to your mother.
Kindest regards
David
Perkymite replied to the topic About time I joined the Forum !!!! in the forum Newcomers 13 years, 2 months ago
Hallo Peter and welcome. It is really nice to hear from people like yourself, it gives us all so much hope and helps to cement our postive vibes in place:-D
kindest regards – vasbyte
David
Perkymite replied to the topic WEDDING ANIVERSERY in the forum Off topic 13 years, 2 months ago
Well done Jo and congratulations.
Mo and I have been married 49 years on the 22 Nov 2011, actually we renewed our wedding vows on our 35th wedding anniversary so we have also been married 14 years he he.
When we met Mo was 16 and I was still 18. I was a very young soldier and she had dire warnings from everybody that you cannot trust a…[Read more]
Perkymite replied to the topic Some good news! in the forum General 13 years, 2 months ago
Great news Liz and well done to Kev. Enjoy your travels, Mo and I have spent the year on various travels from Scotland to Trier. We have had a great 9 months.
I go for my appointment this Friday and I feel as fit as a fiddle so I am not really prepared for any bad news :-/ because I EXPECT it to be good and that is that.
Kindest…[Read more]
Perkymite replied to the topic Rash and itch one year after sct in the forum Side-effects 13 years, 2 months ago
Just got back on the forum and read this post.
I had my SCT Dec 2010. I get small acne type bumps which are mildly itchy. However, I get only one or two, normally on my forehead and neck and they seem to go as fast as they come so I would not describe it as a rash.
Kindest regards ? vasbyte
David
Perkymite replied to the topic New to forum but no stranger to MM in the forum Newcomers 13 years, 2 months ago
A warm welcome to you both we all will look forward to your taking part in our little group.
Kindest regards – vasbyte
David
Perkymite replied to the topic Minor Op next week in the forum Treatment 13 years, 2 months ago
Hy Gilll, fastly abot the speling. I am, and always have been, a terrible speller this is compounded by being a lousy typist as well! I was so pleased when Word Processors came along with a Spell Checker. What I do is type my missive in Microsoft Word and then ?copy and paste?, which is exactly what I am doing now.
Interested about the Flu…[Read more]
Perkymite replied to the topic New to Forum in the forum Newcomers 13 years, 2 months ago
Hi Aileen welcome (?) to our merry band.
You have selected the right site it has bags of information, which is up to date. You will find I think a good bunch of people here from Carers to sufferers and no matter what you are about to go through most likely somebody on here will have done it, bought the tee shirt and thrown it away.
We look…[Read more]
Perkymite replied to the topic Count has dropped in the forum General 13 years, 2 months ago
Hi Ivan, just so you can compare my Paraprotien were 33 when a Tumour in my neck ate my 4th Vertebrae. After Radio/operation/Chemo and an SCT I am now at 2.3 and have been there since November 2010. This is for information only and as Helen says it can be different in each person so do not take my readings, for example, as a bench mark for…[Read more]
Perkymite replied to the topic Nettie's finally gone mad!!!! in the forum General 13 years, 2 months ago
I am right behind you Nettie, well not quite right behind you well ok mayby a yard, ok a mile behind you 😀 I spent 15 years in the Parachute Brigade and I am terrified of heights !!!! My £1 or so will be on it way, best of luck. And remember Vasbyte!
kindest reards
David
Perkymite replied to the topic Got on the forum at last!!! in the forum Newcomers 13 years, 2 months ago
Hi Sandy, I am from Somerset so regret I cannot help you with your Hospital.
I had my SCT in early December. My local hospital seems to treat SCT differently to the others. I was kept in for a full 3 weeks after the procedure and just got out in time for Christmas. And, again, the facilities were different, mine was first class. I had a…[Read more]
Perkymite replied to the topic Velcade 6 – Yippee! in the forum Treatment 13 years, 2 months ago
I just have to say how right you are Dai I too am delighted to see Sarah, Tina and Roz posting as often as they do and who could miss out our Min and Bridget the list goes on! We seem to be building a very nice comunity here.
Kindest regards – vsbyte
David
Perkymite replied to the topic Velcade 6 – Yippee! in the forum Treatment 13 years, 2 months ago
That is really great news Dai, I am so pleased for you, strange how MM and the ?cures? affects us all so differently.
Kindest regards – Vasbyte
David
Perkymite replied to the topic 28 days post SCT in the forum General 13 years, 2 months ago
Well done Helen,
I am 8 months post SCT. Had mine as a Christmas present from the MHS. I am now fully recovered the last part to rebuild was my Jaw. The right hand rear was very sensitive to hot and cold and I could not chew on it but it is ok now. I have started my exercising again, 3 mile walk now most mornings and I feel, and,…[Read more]
Perkymite replied to the topic I LOVE in the forum Off topic 13 years, 2 months ago
OK, I will put you out of your misery ? frivolous is spelt with an o not an a >:-) , Sorry…… but I just LOVED doing that.
David
Perkymite replied to the topic Halfway point in the forum Newcomers 13 years, 2 months ago
Great to know you are on the mend Keith, keep going buddy.
Kindest regards – vasbyte
David
Perkymite replied to the topic Work – when is it enough? in the forum General 13 years, 2 months ago
It really comes down to that old say, said many times by many people on this site, [b]listern to your body[/b]. I do, and, I think it pays off.
Kindest reagrds – vasbyte
David
Perkymite replied to the topic That subject no one wants to talk about in the forum Carers 13 years, 2 months ago
Please do not be silent on the site I have always enjoyed your posts and I,and am sure everybody, would feel some lose if you left us.
The Captain is still striding alongside you he cannot help with the dishes but he will be beside you.
Kindest reagards Min – now is the time to really vasbyte.
David
Perkymite replied to the topic Work – when is it enough? in the forum General 13 years, 2 months ago
Hi Amelia,
I think there is an element in us all that deep inside we want to believe that really there is nothing wrong with us and if we just keep working hard it will all disappear and go away. Unfortunately, with MM, it might disappear from view for awhile but it never goes away.
As you know I am 68 and retired but I still have my Job…[Read more]
Perkymite replied to the topic Neatropaenic Sepsis in the forum Side-effects 13 years, 2 months ago
Dear Min, Thank you for a powerful and brave post.
Right from the diagnosis of my mm I asked for the REAL prognosis, two to three years. The Surgeon who repaired my neck came and had a chat with me before we parted company. During the conversation he said, ?If I have to die of a cancer I would choose MM, it at least gives you time to say the…[Read more]