Perkymite replied to the topic Dad just diagnosed with MM in the forum Newcomers 13 years, 3 months ago
Hi Sally, I am sorry to hear about your Dad and the problems in the family.
You give very little information about your Dad other than he has now been diagnosed with full blown MM from MGUS. Have they already collected Stem Cells from him during his MGUS period?
I was diagnosed with MM in 09 aged 66. I find it difficult to imagine how I…[Read more]
Perkymite replied to the topic Bon Voyage to Jet & Keith in the forum General 13 years, 3 months ago
Glad to hear things have gone well Jet.
I had the sore throat, although sore throat is a bit of an understatement, but I think you will understand. The ward Thai cleaner/helper suggested a Complan drink with Ice cream, Jelly and a mandarin or banana all whisked up. They were great, I used to vary the flavour of Complan to match the fruit,…[Read more]
Perkymite replied to the topic Tube Free at last in the forum Off topic 13 years, 3 months ago
Great news you two just keep going and VASBTYE.
Kindest regards
David
Perkymite replied to the topic mums in hospital again. in the forum General 13 years, 3 months ago
Heres hoping for some good news for you when the test results come in.
Kinde regards – Vasbyte
David
Perkymite replied to the topic Velcade Cycle 5 – Update: in the forum Treatment 13 years, 3 months ago
You know Dai, if I am feeling down or sorry for myslef I just read a couple of your posts Dai and realise how lucky I am 😀 Just kidding the best of luck with your DVT.
I had a DVT followed by a PE a year before my diagnoses, collapsed in the Park whislt walking my dog, They should have picked up the MM then but failed.
kindest regards -…[Read more]
Perkymite replied to the topic Hi Folks (old and new) in the forum General 13 years, 3 months ago
Hi Mary, Nice to hear from you again, I am pleased all is going well with your family.
Enjoy the sky dive, you will find it exhilarating and as soon as you land you will want to do it again mark my words. I spent 15 years jumping out of planes and it is really something I missed when I had to stop.
My pound is on the way ?…[Read more]
Perkymite replied to the topic Elderly dad in the process of being diagnosed in the forum Newcomers 13 years, 3 months ago
Hi Pam, thanks for the update, I missed your original post having been away from the forum on hols etc. I think you hit the nail on the head when you said he looked so peaceful I would bet your Dad knew the end was coming and just wanted a peaceful end, which is of course what we all want.
Although too late now as a matter of information…[Read more]
Perkymite replied to the topic dad just diagnosed at 48 in the forum Newcomers 13 years, 3 months ago
Hi Christin and Meike,
I think I am the other David that was Dai was referring to. An English David, well ok my Dad was a Scot but I try to keep that a secret, my family originating from Ashover in Derbyshire 1850 and before.
I note from your posts that we David?s have all got something else in common, apart from a most delightful name…[Read more]
Perkymite replied to the topic Patient view/opinion for a Royal College of Pathologists / Association for Clinical Biochemistry in the forum General 13 years, 3 months ago
There were several, technically minded, persons who used to post quite frequently, I have not seen them for some time. If they are still following the site this would be a golden opportunity for them and urged them to respond if they can.
Personally, it is out of my league I think.
Kindest regards ? Vasbyte
David
Perkymite replied to the topic Gordon in the forum General 13 years, 3 months ago
Sarah, My heart goes out to you, please still visit us when you feel up to it. I love this poem, who wrote it is unclear several have claimed it I think.
Do not stand at my grave and weep..
I am not there. I do not sleep.
I am a thousand winds that blow,
I am the diamond glints on snow.
I am the sunlight on ripened grain,
I am the…[Read more]
Perkymite replied to the topic Kidney Failure in the forum Related conditions 13 years, 3 months ago
Yes, I think getting some fluids, anyway you can, in is better than none.
However my understanding of it is that dehydration is one of the dangers facing us and therefore ?fluids?, in my case six pints of water a day, is essential. But ask any two Doctors to give an opinion and you will get six different answers. I know all the…[Read more]
Perkymite replied to the topic 2nd S.C.T Completed in the forum Treatment 13 years, 3 months ago
The very best to you Keith, keep on going.
kindest regards – Vasbyte
David
Perkymite replied to the topic FRIENDS in the forum Off topic 13 years, 3 months ago
How very true. I think this site puts your own problems into perspective, and, sometimes, you realise that things could be a whole lot worse 😉 😀 .
Kindest regards – Vasbyte
David
Perkymite replied to the topic it is back in the forum Treatment 13 years, 3 months ago
Dear Sarah I was gutted to read your post about Gordon. I have been having a terrific time the last months, following my SCT, the result being I have managed to get on the site only occasionally and not for very long and I somehow missed your original post.
I wish you all the best in the world ? May your God be with you – Vasbyte
David
Perkymite replied to the topic Kidney Failure in the forum Related conditions 13 years, 3 months ago
Hi Min, Can I query the "fluids" definition? I was informed that Diuretic drinks, like tea and coffee do not count when measuring the amount of fluid intake. But I support your principle to get something in it is better than nothing.
To be on the safe side I just count pure water, if there is such a thing as "pure" water, he he. (I do not…[Read more]
Perkymite replied to the topic Is this a disaster? in the forum General 13 years, 3 months ago
Hi Amelia, You post all the questions you want girl, that is what we are, or at least I am, here for. Sometimes it is just good to ask although you know the people might not have any idea of the answer, I find it gets it off my plate so to speak and I can relax a little. And, who knows we may, just may, be able to help or reassure you.
If…[Read more]
Perkymite started the topic just popped it to say hallo. in the forum Off topic 13 years, 4 months ago
Hi All,
Just back from our trip down the Rhine/Mosel and popped in to say hallo. We returned late Wednesday night and are spending Thursday and Friday sorting out clothes and garden getting ready for the next trip which is a week?s holiday with all my family at St Ives, which starts Saturday!
The cruise trip was excellent. My first…[Read more]
Perkymite started the topic another check up gets ticked off. in the forum General 13 years, 5 months ago
Pinch Punch first of the month to you all 😀
Just had my 10 week check up, I am now 6 months post SCT, and it is all looking good. PPs are at 2.3 which is up 0.1, so I should complain, on last month but all other measurements? are looking very good I am told. I can now stop taking the anti vial tablets, but, after my trip to the Rhine and…[Read more]
Perkymite replied to the topic Bendamustine Clinical Trial in the forum Treatment 13 years, 5 months ago
Hi Sue, I do not get onto the site as often as I would like these days. I am very busy with jobs and holidays at the moment (just finished making my prototype bird table/ nesting box and my ?Living and the dead? tour of the UK), shortly I am off to the Rhine/Moselle for a Cruise) .
However, I would like to wish Michael the very best of luck…[Read more]
Perkymite replied to the topic Holiday Insurance in the forum Off topic 13 years, 5 months ago
You are right Dai, it is expensive £233 for ten days but I have always been a bit of belt and braces man! The last thing I want to leave my family is an expensive medical bill if I run into problems, although I have always joked with my children that I would leave them an "equal share of the debt in my will" I do not actually want to do it:-D…[Read more]